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Thread: Working 2 Walk 2010 - Phoenix

  1. #61
    I'm looking forward to these few days together.

    On an aside note, why is this very important SCI event not also sponsored by the Christopher Dana Reeve Foundation? To me it seems like Unite 2 Fight/W2W is a hugely significant event on the SCI/SCI research calendar, and as CDRF has undoubtedly the broadest public profile anywhere for a SCI group it is strange that they don't support this. I don't see them listed as sponsor and I don't see them listed on the programme, so am presuming that they are not involved. Is this correct?

  2. #62
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    I think CDRF is more concerned with feel good stories and independent living stuff these days. Check out their facebook pages.

  3. #63
    Quote Originally Posted by Leif View Post
    I think CDRF is more concerned with feel good stories and independent living stuff these days. Check out their facebook pages.
    Exactly my observation too, which is why I asked. They still fund research projects but any of that effort seems to be hidden behind all the anecdotal stuff.

  4. #64
    Thanks for your kind words Barbara. I appreciated reading what you wrote.

    We've enjoyed the support of the CDRF and participation in the past and look forward to working with them in the future. Our focus is bringing the SCI community into activism and advocacy on our own behalf; we believe it complements very nicely the work of CDRF. We do like to mix up our agenda with new offerings from year to year so it has variety and timely research presentations.

    I’m excited about our schedule this year and the remarkable advocates from all over the globe who are attending. Substantial contributions towards a cure have been made as a result of the efforts of many who are attending W2W this year. We hope their contributions inspire many more to join their efforts and help advance curative therapies. Recovery can’t come fast enough for those who have a personal connection to paralysis!
    "Our lives begin to end the day
    we become silent about things that matter."
    - Martin Luther King Jr

  5. #65

    Join us in our efforts to advance a cure!

    We're getting close to W2W! All the speakers have been confirmed and people are joining us from many parts of this country and four other countries. Kudos to everyone who invests their time, energies and financial resources to show their support for research and make a commitment to work towards advancing it.

    We've provided meeting space, leading researchers presenting current research strategies, superstar advocates sharing their experiences and successes, wellness presentations, great food, awesome conversation and hopefully some warm Arizona sunshine. The movement to advance promising therapies is calling YOU! It's not enough to talk about what others are doing to find a cure. Every person in this community has an opportunity to contribute in their own way.

    Other communities have had an impact on advancing therapies to treat diseases and conditions and I think it's possible for us to increase our impact and move this research forward quicker. Are you part of the solution? Or, are you part the problem? We share a common goal, but we definitely need more people working towards it. Commit to helping and join us at Working 2 Walk.


    Presentations include –

    From Here to Tomorrow: Individuals as a United Voice of Change
    - Mark Smith, Author, Founding Editor – WheelchairJunkie.com,
    Consumer Research Mgr. – Pride Mobility

    SCI 101 – An Overview of Spinal Cord Injuries and
    The Case for Umbilical Cord Blood Mononuclear Cell Transplants & Lithium
    - Wise Young, MD, PhD, Director Keck Center – Rutgers University

    Panel Discussion Participant
    - Anthony Caggiano, M.D., PhD., VP, Preclinical Development at Acorda

    Preclinical & Phase l of Oligodendrocyte Progenitor Cells Derived From Human Embryonic Stem Cells for the Treatment of Spinal Cord Injury
    - Ed Wirth, MD, PhD, Medical Dir., Regenerative Medicine at Geron Corp.

    Induced Pluripotent Stem Cells: Promise & Challenges for Personalized Therapy to Repair the Injured Spinal Cord
    - Phil Horner, PhD, Assoc. Professor – University of Washington

    Overcoming Inhibitors and Making the Right Kinds of Astrocytes for SCI Repair
    - Stephen Davies, PhD, Assoc. Professor – University of Colorado, Denver

    Personal SCI Experience - InVivo’s Novel Technology & Promising Preliminary Results
    - Frank Reynolds – Chairman of the Board & CEO, InVivo Therapeutics

    Advocacy Workshops -

    - Legislative – Rachel Hammerman , Unite 2 Fight Paralysis
    - Media – Sabrina Cohen, Sabrina Cohen Foundation
    - Community Fundraising – Karen Miner & JenJen, Research for Cure
    - Corporate & Micro Fundraising – Martin Codyre – The Martin Codyre Fund

    Wellness Presentations -

    Introduction
    Lindsay Huisman – Restorative Therapies
    Nutritional Consideration of Chronic SCI
    Susan L. Testa,MS, RD, LDN, Testa Nutrition
    Research Outcomes -Benefits of an Intense Physical Therapy Program
    Cathy Larson PT, PhD, Research Coordinator, Rehab Institute of MI
    Adaptive Yoga
    Jo Zukovich, Iyengar Yoga
    Activity Based Restoration Therapy: Physical, Functional, Neurological Recovery
    John McDonald, MD, PhD, Dir. ICSCI, Kennedy Krieger & Johns Hopkins
    Last edited by t8burst; 06-05-2011 at 12:51 PM. Reason: privacy
    "Our lives begin to end the day
    we become silent about things that matter."
    - Martin Luther King Jr

  6. #66
    Senior Member kate's Avatar
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    Phoenix in November . . . . woo hoo!!

  7. #67
    Senior Member 0xSquidy's Avatar
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    How's the weather/temp there?
    Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

    Fenexy: Proyecto Volver a Caminar

    http://www.fenexy.org (soon in english too)

  8. #68
    Today it was cooler than normal because of a little rain, in the 70s. By this Friday we will be in the low 80s. November I'm guessing low 80s depending.

  9. #69
    Senior Member kate's Avatar
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    Quote Originally Posted by gcblarsen View Post
    Today it was cooler than normal because of a little rain, in the 70s. By this Friday we will be in the low 80s. November I'm guessing low 80s depending.
    can't wait.

  10. #70
    Senior Member 0xSquidy's Avatar
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    Quote Originally Posted by gcblarsen View Post
    Today it was cooler than normal because of a little rain, in the 70s. By this Friday we will be in the low 80s. November I'm guessing low 80s depending.
    Ok 26ºC
    Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

    Fenexy: Proyecto Volver a Caminar

    http://www.fenexy.org (soon in english too)

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