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Thread: Is there an accurate count, number, percentage known

  1. #1

    Is there an accurate count, number, percentage known

    of how many people now have a spinal cord injury or at what rate it is going up or down?
    From the time you were born till you ride in a hearse, there is nothing so bad that it couldn't be worse!

    All fringe benifits must be authorized by Helen Waite, if you want your SCI fixed go to Helen Waite!

    Why be politically correct when you can be right!

  2. #2

    One Degree of Separation--Paralysis and SCI in the US

    This report was done by the Christopher and Dana Reeve Foundation Paralysis Resource Center. The old numbers had remained static for years. This study counted SCI as well as other types of paralysis. The numbers have held up to statistical review and have pretty much shaken up the fact that SCI and people with paralysis were a small group of folks.

    http://www.christopherreeve.org/atf/...2REPTFINAL.PDF
    Every day I wake up is a good one

  3. #3
    Senior Member lynnifer's Avatar
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    These are old and Canadian:

    http://rickhansenregistry.org/page192.htm

    CANADA

    Spinal Cord Injury Admissions by Province


    2001/2002

    PROVINCE
    TOTAL ADMISSIONS - SCI
    Alberta
    199
    British Columbia
    190
    Manitoba
    50
    New Brunswick
    53
    Newfoundland
    14
    Northwest Territory
    3
    Nova Scotia
    14
    Ontario
    488
    Prince Edward Island
    2
    Quebec
    316
    Saskatchewan
    53
    Territories
    3
    National
    1,382


    NOTE: This data refers to the number of SCI cases admitted to sites in Canada.
    (Some cases counted more than once).
    Data Source: 2004 National Trauma Registry, Hospital Injury Admissions - All Provinces (Table 10 - Appendix F)



    History of Spinal Cord Injuries (SCI)


    1996/1997 - 1,507

    1997/1998 - 1,545

    1998/1999 - 1,347

    1999/2000 - 1,505

    2000/2001 - 1,463

    2001/2002 - 1,382

    Number of SCI in Canada 1996 to 2002: 8,749
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  4. #4
    Cheesecake, for some reason I can't open your link. I assume we are looking at a tiny percent of A percent?

    Lynnifer, looks about the same for Canada?
    From the time you were born till you ride in a hearse, there is nothing so bad that it couldn't be worse!

    All fringe benifits must be authorized by Helen Waite, if you want your SCI fixed go to Helen Waite!

    Why be politically correct when you can be right!

  5. #5
    Senior Member rdf's Avatar
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    Quote Originally Posted by Oldtimer View Post
    Cheesecake, for some reason I can't open your link.
    Oldtimer, do you have Adobe installed? You'll need it to read pdf files.

    Download

    eta: From cheesecake's file link:

    Prevalence

    Approximately 1.9% of the U.S. population, or some 5,596,000 people, reported some form of paralysis based on the functional definition used in the survey.

    Approximately 0.4% of the U.S. population or some 1,275,000 people reported being paralyzed due to a spinal cord injury.
    Last edited by rdf; 01-09-2010 at 04:45 PM.
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  6. #6
    Senior Member Jeff B's Avatar
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    Quote Originally Posted by lynnifer View Post
    These are old and Canadian:

    http://rickhansenregistry.org/page192.htm

    CANADA

    Spinal Cord Injury Admissions by Province


    2001/2002

    PROVINCE
    TOTAL ADMISSIONS - SCI
    Alberta
    199
    British Columbia
    190
    Manitoba
    50
    New Brunswick
    53
    Newfoundland
    14
    Northwest Territory
    3
    Nova Scotia
    14
    Ontario
    488
    Prince Edward Island
    2
    Quebec
    316
    Saskatchewan
    53
    Territories
    3
    National
    1,382
    There were not very many of us that year but I beat the odds and won the 2001 SCI lottery. That's Craptastic!

  7. #7
    Thanks RDF, I don't have adobe installed.

    We are looking at roughly 0.4% of the U.S. being somewhat paralized from SPI, thats all?
    From the time you were born till you ride in a hearse, there is nothing so bad that it couldn't be worse!

    All fringe benifits must be authorized by Helen Waite, if you want your SCI fixed go to Helen Waite!

    Why be politically correct when you can be right!

  8. #8
    Quote Originally Posted by Oldtimer View Post
    Thanks RDF, I don't have adobe installed.

    We are looking at roughly 0.4% of the U.S. being somewhat paralized from SPI, thats all?
    Previous estimates had been 250,000 people. The new numbers are over 1,000000 folks have SCI. That is a significant change in what has previously been reported using only the Model System figures.

    PM me and I will send work something out to send you the printed info if you want it. If not, I can provide you with a series of links. The full text is more meaningful and will give you the entire picture.

    It is important to focus on the number of folks with paralysis vs. SCI. The secondary conditions of SCI cross over multiple diseases and injury types. The larger number will drive public policy, including research dollars.
    Every day I wake up is a good one

  9. #9
    Quote Originally Posted by Jeff B View Post
    There were not very many of us that year but I beat the odds and won the 2001 SCI lottery. That's Craptastic!
    Me too - injured in BC but admitted in Alberta - wonder where I'm counted. Sucks being a statistic.
    Emily, C-8 sensory incomplete mom to a 8 year old and a preschooler. TEN! years post.

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