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Thread: Why doesn't it fit? Neuroleptic pain

  1. #1
    Junior Member VavaBoomer's Avatar
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    Why doesn't it fit? Neuroleptic pain

    This past week I went to see my Neurologist and my Orthopadic Surgeon. I handed them both the same paper with my list of concerns and my current condition:
    Palms to elbows, knees to ankles and feet are a major source of pain, stiffness, burning/cold and other abnormal sensations that increase when in contact with objects or movement.

    I went on to further try to explain the pain, they are both very familiar with the arm complaints, I've had problems with the legs before, but the Lyrica seemed to subdue the stabbing pain and vibrations. In the past I've informed them of the involvement of the legs. My Neurologist has previously diagnosed me with Neuroleptic pain stemming from the cervical spinal cord.

    My complaint to the Doctors mainly seemed to make them focus on the joints. They both told me the elbows fit, but pain in knee's and ankles didn't fit. I tried to explain, it's the tissue surrounding those area's causing the pain with movement. I get so flustered trying to explain this pain. I finally blew it off with both of them as overdoing it with the walking. But, I still wonder why are they both saying it doesn't fit! Can anyone explain this to me?

    C5-6, C6-7 incomplete walker.

  2. #2
    Are you walking? If so, God Bless and keep us abreast.

  3. #3
    Junior Member VavaBoomer's Avatar
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    yes, I'm walking with a cane, can't do the heal-toe thing. I walk with a wide base, far from normal but I'll take it.

  4. #4
    I've been trying to come up with a guess at this. Perhaps since you mentioned so many joints in your description, they thought you had joint pain? I interpret what you said is that you have pain all along your lower arms and legs, from the knees or elbows on down - but I wonder if they just thought it only hurt at the joints.

    If they thought that, perhaps they decided because of the level of your injury that would make sense for the arms.

    But for the legs, perhaps they just focused on the walking and the joints.

    My best guess... hopefully someone else will know better. I am sorry, that sounds SO frustrating, not feeling that the doctors understood what you were saying.

  5. #5
    Junior Member VavaBoomer's Avatar
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    They definitely thought the joints. The Neurologist ran blood test for arthritis, lupus, vitamin B deficiencies and some others. I tried to explain so many times to these Doctors it's not in the bone it's the tissue surrounding. I started to read Dr Wise's post on shrinking tendons, I'm wondering if that could play a role in my problem. My walk is far from normal, very stiff, my neuro says it's spastic. I think most of the time my body is just enduring a lot of abuse, because I make it do things it doesn't want to do!

  6. #6
    Well I guess I am glad they are enthusiastic (j/k, mostly).

    Do your legs hurt just in the area of the joints - or everywhere from the knees on down?

    They could have a point, if it hurts/is swollen all around the joints, even not the bone, it could be some inflammatory thing such as those they are testing for.

  7. #7
    Junior Member VavaBoomer's Avatar
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    Yes, I applaud the effort, and it could be something inflammatory. But I guess what I'm confused about is, why is it okay for it to be this way in the elbows, (arms) but not the lower half of my body??? I wish I would have thought to ask!

  8. #8
    It sounds like it is driving you crazy - and I don't blame you.

    Are you going to be given the results of the testing soon? If so, you can ask then.

    If it is going to be a while, I suppose you could call the office with the question. At the least, I would hope a nurse could call you back with some answer.

  9. #9
    Neuroleptic or neuropathic??

    Definition of neuroleptic:
    Neuroleptic: A term that refers to the effects of antipsychotic drugs on a patient, especially on his or her cognition and behavior.

    Neuroleptic drugs may produce a state of apathy, lack of initiative and limited range of emotion. In psychotic patients, neuroleptic drugs cause a reduction in confusion and agitation and tend to normalize psychomotor activity. The term comes from the Greek "lepsis" meaning a taking hold.
    Are you taking neuroleptic drugs (ie, Thorazine, Haldol, etc.)???

    Neuropathic (also called "central") pain is due to damage to the central nervous system (the cord or brain) or sometimes to the peripheral nervous system (such as in diabetic or alcoholic peripheral neuropathy).

    A physiatrist or a chronic pain specialist are much better at management of neuropathic pain than most neurologists and pretty much all orthopedists. The pain is in your cord, and is not usually due to a problem in the area where you feel pain (ie, your joints, arms or legs). Treatment of the arms and legs or joints will not make neuropathic pain better.
    (KLD)

  10. #10
    Quote Originally Posted by VavaBoomer View Post
    Yes, I applaud the effort, and it could be something inflammatory. But I guess what I'm confused about is, why is it okay for it to be this way in the elbows, (arms) but not the lower half of my body??? I wish I would have thought to ask!

    Because they can explain it more directly. Did they check out your ulnar nerves?

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