, Hey Jim Finally managed to get the article posted that I put in the local and national papers and in the SCI magazine and response has been AMAZING. tHE MONEY JUST KEEPS COMING IN. iF MORE PEOPLE TOLD THEIR STORY AND SPREADED THE WORD i FEEL IT WOULD FAST FORWARD THE NEXT 10 YRS FOR US ALL. a LADY IN gALWAY GOT in touch with me too as she now wants Barb's bracelets to sell in her area. It could reallly catch on. Feel free to transfer this to whatever forum /sticky is best. THanks for your help in the wording of this, Sonia.
Our lively active daughter sustained a spinal cord injury (SCI) at the age of 4 after being involved in a car accident in May ‘08. She is paralyzed from the chest down and is dependent on a wheelchair to get about. While she remains upbeat and keeps herself busy horse riding, swimming, taking music lessons and socializing, there are moments that we all struggle to come to terms with what has happened and how our lives have been turned upside down.
Our family has spent the last 3 years trying to adapt to our new way of life while encouraging Noirin to be as independent and happy as possible. We have been trying our best to keep the complications of SCI to a minimum but alas; this is easier said than done. The specter of scoliosis (curvature of the spine), hip deformity and Osteoporosis with resultant leg fractures, has already raised it’s ugly head as well as numerous bladder and chest infections.
As a parent there is an innate urge to try to fix the problem and while I realize there is no cure for SCI at present, I am aware that there is a lot happening in this area and I wish to take an active part in this for Noirin and all people living with SCI.
When Noirin attended Shriner’s hospital in Philadelphia last summer the Medical Director said he believes a cure for SCI will happen within the next 10 years. I will do all I can to make this a reality by helping to raise money for clinical trials. The sooner she some form of treatment becomes available, the less amount of damage SCI will cause her developing body.
While researching curative therapies for spinal cord injuries, we have been most impressed by the work of Dr. Wise Young, Founding Director of the W.M. Keck Center for Collaborative Neuroscience at Rutgers University, New Jersey. Dr. Young, M.D. Ph.D., is recognized as one of the world’s foremost neuroscientists. He has dedicated nearly 30 years of his life to discovering a cure for paralysis caused by spinal cord injury.
To reach this goal, Dr. Young formed ChinaSCINet, a 25 center clinical trial network in China, Taiwan and Hong Kong. A phase 2 trial is now underway in Hong Kong to assess escalating doses of umbilical cord blood mononuclear cell transplants in 20 patients with chronic spinal cord injury. To date, 6 patient’s spinal cords have been injected with these cells. All are doing well and we will know in the coming months if regeneration is occurring.
In 2009 The Spinal Cord Injury Network USA was launched with the purpose of testing promising treatments for Spinal Cord Injury. The network will organize, administer, train, develop protocols and get approvals for the clinical trials. When the safety data is available from the ChinaSCINet trials, it will be used to gain approval to begin the next phase of the trials in the US.
The first SCINetUSA trial is planned for the summer of ’11 at Brackenridge Medical Center in Austin Texas. This trial will test umbilical cord blood cell transplants, methylprednisolone, and lithium therapy to establish the safety, feasibility, and potential efficacy of this therapy.
To learn more about these trials, please visit- www.justadollarplease.org/
. By wearing/selling/buying a wristband.
SCI is considered a ‘small market’ and large pharmaceutical companies have been reluctant to invest in clinical trials to test these promising therapies.
WWW.JUSTADOLLARPLEASE.ORG is a fundraising project for SCINetUSA. Instead of waiting for a millionaire, determined mothers decided to ask a million people for JustADollarPlease to support spinal cord injury clinical trials.
Donations can be made on the web-site or alternatively…
These can be purchased in any Healthwise Pharmacy-listed on www.healthwisepharmacies.ie
Or bought directly from www.scibracelets.com
Dr. Wise Young has promised that if this combination of treatment isn’t successful they will continue to search to find the correct one to unlock the cure. With JustADollarPlease.org you can help make this happen.