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Thread: Anyone familiar with Kluge in VA?

  1. #11
    @Sharon, where do you live?

    I grew up in Charlottesville (just moved to NC in April) and have a few friends who work @ KCRC. It's decent, but far from the best in terms of SCI rehabilitation. It's specifically tailored towards children.

    40min west in Fishersville is Woodrow Wilson Rehab Center (www.wwrc.net), which is a better choice if you're looking in central Virginia. Richmond has a couple options as well (MCV, Sheltering Arms).

    I went to The Shepherd Center, in Atlanta. Logistically it wasn't the easiest decision, but it was one of the better ones my family made at the time.

    Do NOT skimp on quality of care if at all possible.

  2. #12
    Scott,

    We live in Midlothian, just outside of Richmond. I want the best care, regardless of where it is. So far Im hearing Shriners in Philly and Kennedy Krieger in Balt. I will look into The Shepherd Center as well.

    Thank you!!!

    Sharon

  3. #13
    Right on. The top two, IMO, are either Shepherd in Atlanta or Craig in Denver.

    http://www.shepherd.org/
    http://www.craighospital.org/

    There are better centers outside of Virginia.

  4. #14
    Quote Originally Posted by SharonD View Post
    This is so new to me I dont even know what to ask yet! Did you feel that you received the best care at Kluge? How long ago were you there? If you had a 14 yr old son with a SCI would you take him there?
    Given that he is 14, I would send him to either Shepherd or Kennedy Krieger. You can get info specific to paralysis at www.paralysis.org
    Submitt a question to an Information Specialist and they will send you a new injury package.
    Every day I wake up is a good one

  5. #15
    I wouldn't send my child there if I had the choice. I have a c-7 quad friend that was sent home from there not even knowing where to start on feeding herself. I know we all can't do everything another might be able to, but that's ridiculous! The saddest part is that she was also coming home to a baby she had no clue what to do with. She was 17 at the time & I know things would've been different if she would have went somewhere else. Her parents thought all because it was @ UVA that it was a good thing. Not even until she/they met me did they realize how she was robbed.

  6. #16
    Hi Sharon...very sorry to hear about your son, but given his reflexive movements, yes, those are HUGE!.......I went to Mt Vernon in Alexandria, and it wernt the best, not the worst either. Best of luck to you and your family....really hope he recovers from this injury.

  7. #17
    Sharon~ I sent you a private message with more info. You can find the PM in the upper right hand corner. It says Your Notifications.
    Every day I wake up is a good one

  8. #18
    Scott is right, Woodrow Wilson is a great place (for therapy) however they won't take new patients until they have been home from another facility atleast 1, preferably 2 months now. This way you get a feel for what you most want/ need to work on. However there is no locomotor training or such but they do have the fes. The ot is wonderful & the pt is hell, but that's good. Oh, they also have the driver training as well.
    Last edited by quad79; 12-18-2009 at 06:16 PM. Reason: to add

  9. #19
    Senior Member brucec's Avatar
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    Quote Originally Posted by quad79 View Post
    Scott is right, Woodrow Wilson is a great place (for therapy) however they won't take new patients until they have been home from another facility atleast 1, preferably 2 months now. This way you get a feel for what you most want/ need to work on. However there is no locomotor training or such but they do have the fes. The ot is wonderful & the pt is hell, but that's good. Oh, they also have the driver training as well.
    woodrow wilson must have changed, i went straight from hospital to UVA Towers for 2 months and straight to woodrow wilson, it was great at woodrow, did my GD while there, training and then stayed on for the computer course. of course that was back in 1978
    We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
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  10. #20
    Quote Originally Posted by brucec View Post
    woodrow wilson must have changed, i went straight from hospital to UVA Towers for 2 months and straight to woodrow wilson, it was great at woodrow, did my GD while there, training and then stayed on for the computer course. of course that was back in 1978
    Yes, I went in '06 & I believe they said it had just changed over a short course before that. Heck, they used to be an acute facility back in the day. Now they no longer do extreme nursing care either. Idt they get the state funding like they used to.

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