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Thread: A book project

  1. #1
    Senior Member vgrafen's Avatar
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    A book project

    I am a long-time member of Care Cure and, as some of you may know, I have been struggling with a drug-resistant staph infection/MRSA with stage 4 wound on my ischium for 3 years now. Been hit with sepsis 3 times now, becoming damn sick in the process, due to an underlying osteomyelitis infection. I am now home and awaiting a final re-do of my flap surgery in January, if the osteo is under control by then. I’ll spare you the horrors and details, as some of you know intimately what I’m referring to, and that’s the point of this thread:

    Because of the epidemic nature of this disease, and how it is devastating the disabled community, I feel compelled to do my part to spread awareness and to educate the inexperienced before they contract this crap. As such, I have been slowly plotting out the story of my 3 years of disease and misery, with an aim to publishing the account some time next year. I have an infectious disease specialist and a wound care surgeon already on board, who’ll add their input in appropriate locations in the book, but I would like to make this book not only my odyssey, but others’ as well.

    Therefore, if you have struggled with chronic MRSA or VRE, have had a chronic ischial wound or perianal abscesses from MRSA/VRE, are dealing with chronic osteomyelitis or your condition in any way mirrors mine and you would like to contribute your story to this book, I would like to welcome your participation. If you’re wondering what those terms mean, please don’t ask; I am looking for people who instantly understand the horrors those terms represent, and that includes care-givers, family friends, anyone with first-hand experience dealing with these chronic conditions.

    Clearly, due to my present condition, it will be awhile before the project can really hit full-speed, but I am taking notes now and beginning to collect my materials for this decidedly non-political book. Oh, I’ll be urging specific actions that must be generated in the political arena, but as you know, MRSA could care less which party you’re in.

    I’ll be laying out the outline soon and penning a proposal to major publishers, but it’s an uphill struggle to get published these days, and I’m looking, should the proposal fail, to simply self-publish the book, and promote it through the disabled community, and any way I/we can.

    I’d like this to be a cooperative effort, and yes, anybody here is welcome to participate, you don’t have to be sick or know somebody who has been, we’ll need some financing and marketing assistance, too. Self-published books generally run about $600 to do, then you’ll need 50 or copies to initially spread the word, so you’re talking about $1000 to get things rolling. My aim is to recoup the costs, then split accordingly, after donating a percentage to CC, with the principals. I have a book already with Bookloocker; if you want to see a sample of my writing or a copy of their work, go to the link at the bottom of this thread.

    This is all still in the planning stage, but if you know me, this book WILL be published, and I’d like to invite CareCure participation. If you’d like to submit your story or get involved or have questions, please write me at: vgrafen@hotmail.com.

    This disease is reaching epidemic proportions, and I believe I/we have a duty to inform the public just how miserable it is, and how it can be prevented and treated. Thanks for listening.
    __________________
    vgrafen

    My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

    www.booklocker.com/books/2857.html

    A percentage of every sale goes to CareCure.

  2. #2
    Senior Member vgrafen's Avatar
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    I want to thank everyone for the response to my book project. Lots of great snippets of stories and great questions from everybody.

    As I said, I am not ready to actually get to this immediately, but I do think we have the makings of a really excellent book; the sad, terrible and disgusting suffering amongst those of you who sent me your tales is heart-rending… and just what the world needs to hear!

    For those of you who haven’t sent your stories in or are still thinking about it, please do. There’s no hurry, and I’ll work with anybody who isn’t a confident writer; what’s important is the range of stories and conditions.

    Somebody asked me, ‘will there be pictures?’ Wow; uh, I have several photos of my parched and gaping ass, and a few people have said they, too, have pictures, but this one is open to debate, believe me. For now, keep the photos and concentrate of your story; as much detail as possible.

    At any rate, great stuff already, but keep ‘em coming! v
    vgrafen

    My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

    www.booklocker.com/books/2857.html

    A percentage of every sale goes to CareCure.

  3. #3
    Senior Member vgrafen's Avatar
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    I want to thank everyone for the response to my book project. Lots of great snippets of stories and great questions from everybody.

    As I said, I am not ready to actually get to this immediately, but I do think we have the makings of a really excellent book; the sad, terrible and disgusting suffering amongst those of you who sent me your tales is heart-rending… and just what the world needs to hear!

    For those of you who haven’t sent your stories in or are still thinking about it, please do. There’s no hurry, and I’ll work with anybody who isn’t a confident writer; what’s important is the range of stories and conditions.

    Somebody asked me, ‘will there be pictures?’ Wow; uh, I have several photos of my parched and gaping ass, and a few people have said they, too, have pictures, but this one is open to debate, believe me. For now, keep the photos and concentrate of your story; as much detail as possible.

    At any rate, great stuff already, but keep ‘em coming! v
    vgrafen

    My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

    www.booklocker.com/books/2857.html

    A percentage of every sale goes to CareCure.

  4. #4
    When I worked in the hospital/home health I also found that diabetics went through this very often. You may want to check a diabetic board and get their input.

    It is very difficult to treat and often leads to surgery/amputation, although circulation is an issue in the treatment of this.

  5. #5
    V

    I think it's a great idea and, although we clash, you're a good storyteller, but I think you're going to struggle to find a publisher in these times....and a relatively niche, book-buying audience.

    Assuming you aren't expecting to make money (you're crazy but not that crazy) why don't you set up a blog?

    After all, if your intention is to help others, people are more likely to find it, link to it and repost it if you publish it online.

    I've never bought a book about SCI and it's unlikely I ever will but I consume pages of info about it online and a personal blog, promoted online, could be a lot more powerful.

    Unless you're thinking book = fame = Hollywood = your own stunt ass.
    C5/6 incomplete

    "I assume you all have guns and crack....."

  6. #6
    I'm with Rehab Rhino. It's a great concept, and very worthwhile mission. But if your goal is really getting the word out to as many people as possible, publishing it on the net instead of in a book -- especially one from a vanity press -- is the way to go.

    The only reason I can see for limiting yourself to reaching ~50 people (based on the initial print run you cited earlier) when you could easily reach 50,000 or more with the right online promotion, and at at a mere fraction of the cost, is to be able to say that you're the published author of two books.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


  7. #7
    Senior Member vgrafen's Avatar
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    Rehab, hipcrip, you are probably right in every respect. Yes, my goal is to reach people, and I am not expecting a 'career' from this, believe me.

    My issue is incompetency: I have no idea how to go about setting up a blog or where. If anyone cares to assist, wow, I would greatly appreciate it.

    I am not well today, though, and am headed back to SF tomorrow for another indefinite stay in prison. Again, if anyone can help me set up a blog, please write me at vgrafen@hotmail.com, or leave instructions here. Thanks to everyone!
    vgrafen

    My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

    www.booklocker.com/books/2857.html

    A percentage of every sale goes to CareCure.

  8. #8
    V

    You can set a blog up on Wordpress with no techy knowledge:

    http://en.wordpress.com/signup/

    Let me know if you have any problems. I'm in the process of doing one myself.

    Regards

    Paul
    C5/6 incomplete

    "I assume you all have guns and crack....."

  9. #9
    Senior Member cypresss's Avatar
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    Wordpress offers a free subdomain, host and platform. I'll recomand you to buy a domain(ex: scilifebook.com) and use the wordpress platform. In our days are some good hosting deals out there.

    Start with the free account from wordpress just to accommodate with the environment. I will recommend you to use your own domain because on wordpress you will never add advertising. Even the adsense or amazon are good for some income. If your websites generates a lot of traffic(bc u have good content) you will be capable to choose who to offer your advertising space.

    good luck !
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  10. #10
    Senior Member vgrafen's Avatar
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    A couple questions, revealing my computer naivete:

    Once you set up a blog, how does the world know you're there? How does a blog get promoted and/or how do you promote a blog? I'm unclear on that aspect, but I am receiving great/sad as hell stories that I think people should read. Any help in this direction I would appreciate.

    And no, I am not doing this so I can say, 'gee, I have two books published!' I was under the assumption that people still want to read physical books, but I am not wedded to the idea. Thanks for input.
    vgrafen

    My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

    www.booklocker.com/books/2857.html

    A percentage of every sale goes to CareCure.

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