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Thread: RSD and headaches?

  1. #1
    Junior Member
    Join Date
    Oct 2009
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    Lafayette Colorado
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    RSD and headaches?

    Was diagnosed with RSD about 1 year ago due to a crush injury to the right hand. Eight weeks ago it spread to left arm and hand. Before it spread i had 4 right nerve blocks and today i had my first double block. My question is when it spread i started to get severe headaches. Now i get them at least 5 times a week. My regular Doctor says headaches have nothing to do with rsd. Does anyone else get headaches who has RSD?

  2. #2

    NEW to RSD/CRPS

    I have had RSD for 14 years and have been almost through it all. Yes, headaches can be associated with RSD. If you have any more questions feel free to ask - it might keep my mind off my own RSD problems which started in 1995 from a simple ankle injury from playing basketball. A GREAT website to go to is RSDHOPE! And if I was you - start seeing a pain management doctor or neurologist like most RSD patients do. And if someone mentions a lumbar sympathectomy "SAY NO". Go to that website. Good Luck & I am here for you!

    Gatetraveler - Kim

  3. #3
    Junior Member
    Join Date
    Oct 2009
    Location
    Lafayette Colorado
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    2
    Ive heard about the pain management. Since it's a comp case, i don't get as many choices. The blocks work but not for very long. I do need some type of RSD specialist because my Doctor i feel, doesn't know enough about the disorder. The headaches are tough to go through.

  4. #4

    Please get the help you need!

    Hi again. My pain is so bad that I hardly can walk, I don't eat much (just found out that I am anemic - which didn't surprise me & I don't care)and like I told you before I have tried everything that my insurance covered & what we can afford. I had so many lumbar blocks before my pump was put in 2 years ago that at the end I would have them done to help for a few hours. I do not collect disability because eventhough I had worked for 11years at the time of my injury I was a stay at home Mom and never heard of RSD or thought it would be this life long thing. When I first got it there was NO info on the internet & was lucky to be diagnosed and my doctors in VaBeach did their best. Today, still most doctors don't know what it is even though it is ranked #1 form of chronic pain(before cancer except terminal). Did you go to RSDHope yet? PLEASE READ AS MUCH AS YOU CAN LEARN! I saw an excellent doctor in Clearwater FL but when my husband retired from the Navy at the age of 40 he couldn't find work in the area.(After 9-11)We moved to Orlando where he has to work 2 jobs with his pension because of my medical bills. I still saw mydoctor in Clearwater(2 hrs away) but when the time came and I finally had NO CHOICE - I had to find a dr in Orlando to do it. (it is very time consuming at first & an appt every month and a half to get refilled). I knew my RSD would get worse but the morphine didn't help, I thought the diluadid did but had extreme swelling in legs, hands and feet but my doctor did nothing for 2 summers and in Jan will be 2 winters. He has crippled me. But, there are only 2 other doctors in this area and they don't see RSD patients. I am worse now because of his lack of knowledge. I went back to my doctor in Clearwater and he is disgusted by everythingand my hope is that he starts his outpatient ketamine procedure soon! He isn't charging as much as the hospital would because he has a surgical unit where he practices. I won't be done with the dilaudid until sometime in December - I don't know how I am going to make it. I have no support except my husband and he is always working. PLEASE LEARN, GET PROPER HELP because you are just starting. You can email me at home anytime or at RSDHOPE you can ask for a mentor. I will do my best to help but I hardlycan type this to youfor us both at different stages.

    Your Friend, Kim

  5. #5
    I believe with new RSD/CRPS they sometimes try an alpha blocker such as phenoxybenzimene (Dibenzylene). Also oral steroids (prednisone) might be of use. Although a year in, I'm not sure if they would still use those meds.

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