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Thread: Are these beginning signs of paralysis?

  1. #1
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    Are these beginning signs of paralysis?

    I'm wondering if I'm at the beginning stages of paralysis? I have Spina Bifida but have been able to walk since birth. However, in the last three months stiffness in the legs has increased, pins and needles in my feet and legs, no strength in my lower back, no strength in my legs when I walk for long periods of time, it feels as if the muscles in my lower back and legs are shutting down. Kind of like my brain is saying walk but the muscles are saying "We can't" we don't know how anymore???

    Anyone ever been or seen someone able to walk and then lose their ability to walk? Specifically from something non-tramatic or accident related?

    Thanks!

  2. #2
    I'm sorry you're having these problems - I'm there now, but from injury, arthritis & DJD. My PT is trying to get me walking, with leg braces, but says it looks like I'm heading into paralysis. The VA might say something different, but...
    You might talk to your doc & see what he/she says - looking into leg braces to keep going might not hurt, either, in my opinion. Good luck & try to keep moving!

  3. #3
    I walked for more than 30 years with a SCI and slowly lost the ability to walk and are now a full time wheel chair user.
    TH 12, 43 years post

  4. #4
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    Quote Originally Posted by woman from Europe View Post
    I walked for more than 30 years with a SCI and slowly lost the ability to walk and are now a full time wheel chair user.
    Thanks for the response.


    What kind of symptoms did you display before you lost all ability?

  5. #5
    Super Moderator Sue Pendleton's Avatar
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    Trout, you describe what many who have had both slow moving TM or Guillame Barre Syndrome do before winding up in the ER unable to walk. Have you seen your neurologist recently and is detethering (again?) an option? You can search the forums for 'detethering' 'shunt' and 'Dr Green' for more information.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  6. #6
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    Quote Originally Posted by Sue Pendleton View Post
    Trout, you describe what many who have had both slow moving TM or Guillame Barre Syndrome do before winding up in the ER unable to walk. Have you seen your neurologist recently and is detethering (again?) an option? You can search the forums for 'detethering' 'shunt' and 'Dr Green' for more information.
    Actually, going to tomorrow to see one of the best in SLC. Hope he has some answers. Today I felt strong so I went on a walk with the dogs, however, on the return I was worn out and wish I would have brought my cane. My legs were weak, lower back shot, and when I got home my feet were tingling (still are) and now my hands and arms are tingling.

    I've been to two neurosurgeons and they both said that untethering won't do much because of the chance of the cord retethering because of the scar tissue.

    I really don't know what to do. I feel as if I'm slowly losing my ability to walk.

  7. #7
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    Sue, thank you again for bringing Guillain Barre' to much attention. I forgot to mention that I had a kidney transplant 9 years ago. Since GB is a auto-immune disease it may make sense. One of the treatments for treating GB is prescribing immunosuppressant drugs. As of two weeks ago I switched from my the regular IMS drug to a "generic". At first I didn't experience any symptons however, last Friday and Thursday I good barely move. I thought something is really wrong with my body. So I called my doc and had him switch me back to the brand name IMSD. Well the next couple of days I felt stronger definitely not as weak but still weak.

    If it is GB it may explain why when I was taking the Generic IMS drug my symptons were so bad. My immune system was not as weak because of the generic drug. So the body was attacking its self. However, when I went back to the "regular full strength IMS drug" the weakness in my body lessened. I felt stronger.

    I'm not sure... I'm just speculating but it may indeed be GB. I'm going to mention it tomorrow to my doc.

    Thanks,
    TB

  8. #8
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    Well for the last 3 weeks I've felt stronger since switching back to regular Cellcept (kidney transplant drug). However, in the last week I've begun to feel like crap again. Legs are stiffening, feet are tingling, hands are tinglings, lower back is severly weak. Fatigue seems to plague me when I wake up in the morning.

    I've seen 2 Neurosurgeons and 2 Neurologists and their all in agreement that I'm suffering from a tethered cord. I'm wondering though if I'm suffering from a Transverse Myelitis as well as the tethered cord.

  9. #9
    Super Moderator Sue Pendleton's Avatar
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    Troat, did any of the 4 specialists do any tests that would indicate TM or GBS? Any lumbar punctures or EMGs? I assume they based the tethering on a new MRI?
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  10. #10
    Member Draggin' Lady's Avatar
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    Sue,
    Have you ever heard back from Trout Bum?

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