Page 1 of 3 123 LastLast
Results 1 to 10 of 30

Thread: Tired of constant search for caregivers

  1. #1

    Angry Tired of constant search for caregivers

    I know a lot of money is flowing into SCI research and that is great. However, I think the issue of providing caregivers for SCI is underfunded. People who have SCI go home from rehab and scramble to find experienced caregivers. You know how hard this is. You go to craigslist and find people and you train them and then they leave for whatever reason. Where can one find dedicated caregivers for SCI, great people who want to stick around? I suggest that a non-profit foundation be formed that will train and certify SCI caregivers and when they "graduate" from training be available to be flown around the country to help out those in serious need. All paid for by non-profit foundation. If I had the time, I would try to do this myself but I am filling in as a caregiver constantly when the caregivers we have call in sick, go on vacation, just can't make it in, their kid is sick, they hurt their back, etc. and I'm not even a trained caregiver. We have interviewed literally hundreds and have hired over 50 in last three years but no one lasts for long - except three that we have had for three years who are very loyal. There must be some agency or something that just specializes in SCI. So far I haven't found it.

  2. #2
    What level are you? How much help do you need? Can you be independent?

  3. #3
    Quote Originally Posted by Veganman View Post
    I know a lot of money is flowing into SCI research and that is great. However, I think the issue of providing caregivers for SCI is underfunded. People who have SCI go home from rehab and scramble to find experienced caregivers. You know how hard this is. You go to craigslist and find people and you train them and then they leave for whatever reason. Where can one find dedicated caregivers for SCI, great people who want to stick around? I suggest that a non-profit foundation be formed that will train and certify SCI caregivers and when they "graduate" from training be available to be flown around the country to help out those in serious need. All paid for by non-profit foundation. If I had the time, I would try to do this myself but I am filling in as a caregiver constantly when the caregivers we have call in sick, go on vacation, just can't make it in, their kid is sick, they hurt their back, etc. and I'm not even a trained caregiver. We have interviewed literally hundreds and have hired over 50 in last three years but no one lasts for long - except three that we have had for three years who are very loyal. There must be some agency or something that just specializes in SCI. So far I haven't found it.
    Start it.
    Get involved in politics as if your life depended on it, because it does. -- Justin Dart

    I shall not tolerate ignorance or hate speech on this site.

  4. #4
    C5/6 incomplete with very limited use of arms and hands, therefore requiring 24/7 care, and caregivers who do intermittent cath and bowel program & CPAP and transfers and shower and feeding and dressing, etc. cuz he sure can't do all this by himself yet.

  5. #5
    Have you considered tendon transfer hand surgery for increased function? Have you considered a supra-pubic catheter for bladder? Or colostomy for bowels?

    24/7 care sounds a little extreme for your level. Are you working? staying in shape? Going to School? Driving? Manual chair?

    Just some suggestions, good luck with your care. If you work hard you may be able to become more independent if that's your goal.

    Onward and upward.

  6. #6
    Senior Member Van Quad's Avatar
    Join Date
    Mar 2002
    Location
    Vancouver, BC, Canada
    Posts
    5,558
    C5-6 needs feeding? Sounds like he missed rehab all together!

    I'm a complete C4-5 and have been feeding myself for 31 years. I know for a fact many experienced care aides look down on a client who is not doing anything for himself. They talk about them all the time. Perhaps that's a reason why the turnover is so great.

  7. #7
    A non-profit organization with funding for care givers? Lord knows there are enough people in need and a program like that would be a blessing. Doubt if it would ever happen but lets hope so!
    From the time you were born till you ride in a hearse, there is nothing so bad that it couldn't be worse!

    All fringe benifits must be authorized by Helen Waite, if you want your SCI fixed go to Helen Waite!

    Why be politically correct when you can be right!

  8. #8
    Senior Member
    Join Date
    Jan 2003
    Location
    Madison,Wisconsin, USA
    Posts
    1,498
    Please remember that not every one has the same abilities, whatever the official level or completeness of paralysis. Many people have other disabilities or medical problems which prevent your level of acheivment. Can you imagine how your assumptions make them feel? It really annoys me when this happens.

  9. #9
    Read carefully. I think veganman is the loved one of someone with sci.

    Veganman, dn't have much of an answer for you other than to be more decearning in the interview process. Secondly, you may have to review your renumeration policy and work conditions. Good caregivers are worth their weight in gold!

  10. #10
    Senior Member StevieP's Avatar
    Join Date
    Mar 2004
    Location
    Winter Park / Fraser, CO
    Posts
    469
    Quote Originally Posted by Veganman View Post
    C5/6 incomplete with very limited use of arms and hands, therefore requiring 24/7 care, and caregivers who do intermittent cath and bowel program & CPAP and transfers and shower and feeding and dressing, etc. cuz he sure can't do all this by himself yet.
    Veganman, Thanks for sharing about your friend who is C5/6 I know Chris Chappell and the stuff he talks about, he knows about and you are right when you say "cuz he sure can't do all this by himself yet" and yet is the key word. Chris knows because he went from needing a care giver to being totally independent. He has helped me with some of the stuff he is talking about and only desires to see people have as much freedom as they possibly can have. Just a word from me, you would be wise to contact Chris Chappell and pick his brain because wouldn't it be great if your friend did not need any caregivers and could be totally independent. Chris may seem a little forward but it is because he knows first hand from his own life.

    Steve Pisano

Similar Threads

  1. Replies: 2
    Last Post: 07-09-2009, 03:02 AM
  2. Tired Of Pain, Tired Of Meds?
    By OMOTS in forum Pain
    Replies: 2
    Last Post: 01-29-2005, 09:21 AM
  3. Replies: 0
    Last Post: 03-28-2003, 09:25 PM
  4. Replies: 3
    Last Post: 11-21-2001, 03:08 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •