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Thread: Anyone using suprapubic with valve?

  1. #1
    Junior Member
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    Anyone using suprapubic with valve?

    If so, I'd like to talk to you. I know the nurse on this site doesn't approve of this set-up, but my doctor assures me it is safe in my instance. She gives me a rosy picture, though, assuring me that spasms and infections won't be a problem.

    Background: I have m.s. and use a wheelchair. It's getting hard to hop to the toilet and pull up my pants and I'm getting tired of peeing everywhere.

    Thanks!

  2. #2
    I have had SP for 5 years and I'm in the process of getting a plug 4 it. I think it's a good thing, personally. Since I got the SP, i'm down to 1 UTI every 2 - 3 years. I don't think I'd plug my SP all the time but 1/2 half. Give the bladder a break.
    "Always look at the bright side of life...."

  3. #3
    ChinaDoll which plug u planning on getting?
    coolbreeze c6/7

    Keep on moving don't stop!

  4. #4
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    Thumbs down same question as coolbreeze

    Yes, what kind of valve? I've read the flip-flo is secure but someone said it digs into their leg and they switched to a "push-pull" system, don't remember what it's called. Also, is it hard now to re=train your bladder? Has it deflated?

    Excuse my ignorance.

  5. #5
    The Flip-Flo is a valve on a BARD legbag. It does not clamp off the indwelling catheter. If your urologist is a neurologic urology specialist, I am amazed that they are recommending plugging an indwelling catheter which significantly increases your risks of reflux of colonized urine from your bladder to your kidneys, does not "train" the bladder, and increases your risks for AD (and yes, people with MS can get AD). Ask your physician for a scientific research study that shows that this method is safe and effective.

    Have you explored self intermittent cath, either through your urethra (which can be done in your wheelchair without having to transfer) or through a Mitrofanoff?

    (KLD)

  6. #6
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    Yes my uro has expertise

    with neurogenic bladders, and I will ask about research. At this point, I'm still gathering information. And getting more and more scared, though many have said the sp, in some form, improved their lives.

  7. #7
    You asked about plugging the catheter, not about using an indwelling catheter (SP or urethral). Although not as good in the long term as properly done intermittent cath, you can opt for an indwelling catheter (either urethral or SP) long term, as long as you properly care for it, get regular proper check-ups, and understand the consequences. Regardless, the indwelling catheter should not be plugged or clamped off. A free flow of urine into the bag is required for it to be safe.

    (KLD)

  8. #8
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    I should have said

    I can't do the yoga required for me to self cath. I would still like to hear from others about their experiences with the supra pubic tube. Thank you.

  9. #9
    Senior Member Rollin Rick's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    You asked about plugging the catheter, not about using an indwelling catheter (SP or urethral). Although not as good in the long term as properly done intermittent cath, you can opt for an indwelling catheter (either urethral or SP) long term, as long as you properly care for it, get regular proper check-ups, and understand the consequences. Regardless, the indwelling catheter should not be plugged or clamped off. A free flow of urine into the bag is required for it to be safe.

    (KLD)
    Didn't Christopher Reeve clamp off his SP? He did this when he went into the pool didn't he?

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