Results 1 to 5 of 5

Thread: Need info on Syringomyelia without SCI

  1. #1

    Need info on Syringomyelia without SCI

    Hello to All,
    I have bulging discs C3 & 4, disc degeneration w/ spurs cervical spine. Two ruptured discs L 3-4, and L5-S1. I don't have SCI. I have 5mm syrinx lower thoracic, upper lumbar cord.
    Terrible headaches, neck pain, upper back pain, low back pain and getting worse daily.
    I'm looking for Neurosurgeon in Tennessee.
    I had one NS tell me "you don't have Chiari Malformation" so basically live with it, and oh by the way, could be a spinal cord tumor mimicing a syrinx. We'll do an MRI again in 1 year and recheck this syrinx.
    I'm definitely not okay with this approach.
    I'm a nurse for 28 years. My exhusband is a paraplegic from MVA 12 years ago.
    If you have info please write to me...
    Thanks so much
    Courage is grace under pressure-Ernest Hemingway
    Sheri

  2. #2
    Have you seen anyone at Vanderbilt? That would be my recommendation as a start. Primary syringomyelia is not real common, and you can get more information about it, as well as referral to experts here:

    http://www.ninds.nih.gov/disorders/s...ingomyelia.htm

    http://www.syringo.org/

    www.asap.org/

    (KLD)

  3. #3
    Hi sheri,
    What did the mri report say & did U get a contrast shot?

  4. #4
    Quote Originally Posted by Smorg0528 View Post
    Hello to All,
    I have bulging discs C3 & 4, disc degeneration w/ spurs cervical spine. Two ruptured discs L 3-4, and L5-S1. I don't have SCI. I have 5mm syrinx lower thoracic, upper lumbar cord.
    Terrible headaches, neck pain, upper back pain, low back pain and getting worse daily.
    I'm looking for Neurosurgeon in Tennessee.
    I had one NS tell me "you don't have Chiari Malformation" so basically live with it, and oh by the way, could be a spinal cord tumor mimicing a syrinx. We'll do an MRI again in 1 year and recheck this syrinx.
    I'm definitely not okay with this approach.
    I'm a nurse for 28 years. My exhusband is a paraplegic from MVA 12 years ago.
    If you have info please write to me...
    Thanks so much
    Smorg0528,

    You need to investigate the reason why you have syringomyelia. Your symptoms are consistent with an enlarging syringomyelic cyst. While the recommendation to wait and see is conservative from the viewpoint of the neurosurgeon (i.e. he doesn't think that he should operate), I think that it is important that you investigate further.

    Did you have some kind of meningitis or other inflammatory problem that may have resulted in arachnoid adhesions in your spinal cord? Did you have a history of injury to your spinal cord? Lots of people get whiplash and don't remember it. Have you had an angiogram (to rule out arteriovenous malformation)?

    Much data now indicate that the syringomyelic cysts develop because there is blockade of cerebrospinal fluid flow in the subarachnoid space surrounding the cord. This is why they develop after an injury that has resulted in bleeding, hemorrhage, or compression of the subarachnoid hemorrhage.

    Normally, about a liter of cerebrospinal fluid (CSF) goes down the spinal cord every day. When the subarachnoid space is blocked up, some of the fluid is shunted into the central canal, which then enlarges as a result of the increased flow. The treatment is to remove the adhesions and restore CSF flow.

    Wise.

  5. #5
    I also have a syrinx that was dx in july 2009 from c5 to t11. I was playing kickball and had a collisions diving into 1st which made my neck pain worse but the pain started before this kickball accident. So I don't know the exact cause. I am a hospice nurse and have had to lift heavy patients in bed. In may 2009 I woke up not being able to turn my neck and thought I slept on it wrong. The pain would come and go. After the kickball collision The pain became worse and radiated down my right arm. Now the pain is in a cape like pattern across my neck, shoulders and upper back. The most severe of it is in my back between my shoulder blades. If left untreated my arms and legs begin to hurt as well. I started seeing a pain specialist in july and started taking lyrica and amitriptyline. the amitriptyline caused hypertention so it was dc'ed. I went though PT for 6 months with no improvement. March 11th I had a breast reduction from a G to a C and still no improvement. My syrinx is 3.8mm at its widest point so I am told is too small for a shunt. I have since moved from hospice into home infusion as it requires much less lifting. I do a lot of driving and my left arm has become very weak and painful when I drive. I am scheduled for an EMG on April 16th. Any other advise or NS in ST. Louis would be very appreciated. Oh and I started taking Embeda 4 days ago. I don't feel any different still in a lot of pain. I was told it takes a few days to work but how may is a few? i would think by 4 days it should work. I am taking lyrica 150mg BID and am wondering if it is even working or if myh pain would be worse without it.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •