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Thread: Urostomy Surgery From HELL!

  1. #1
    Senior Member
    Join Date
    Aug 2004
    Tallahassee, FL

    Urostomy Surgery From HELL!

    I just had a Urostomy. The Doctor was supposed to have the Urine go into the bag.. and tie off the Urethra and have only one place it goes... IN THE BAG... however, after removing the post surgery Foley, I got an infection and urine started to come out my Penis... and I was totally freaked, because I thought that would not and could not happen. At any rate, the Doctor either forgot... or screwed up and changed his mind and did not tell me. At any rate, here are the issues:
    #1. I have urine coming out and need to wear condom cath. This sucks.
    #2. I have gotten a huge smelly urine infection and want to minimize. What is the old Antibiotic that has been around for years... Apparently you take it with vitimine C daily and it works pretty well to eliminate Infections?? Does anyone know what I am talking about? Its an old drug, i just do not recall the name?
    Lastly, I was told if I want to stop urine flow though penis, I have to get the operation completely again. This is not going to happen as this one almost killed me. It was the absolute hardest surgery and inflamed my Neuro Pathic Pain... SO bad, I thought I could not get through it. The pain is still high but showing signs of slowing down... so hopefully it will get back to normal... just really awful pain... not near death pain... LOL, this sucks. Wise, what do you think I should do??? HELP. Mike.
    Last edited by mike bauer; 07-06-2009 at 09:57 PM.
    Mike (Florida)

    Cant we get 1 do over?

  2. #2
    Senior Member
    Join Date
    Mar 2009
    New Mexico

    UOA's brochuere on bladder diversions

    Just curious, did you consider the other urological options? The below information is from page 2. The diagrams didn't copy to this response box.


    The UOA is a volunteer-based health
    organization dedicated to providing
    education, information, support, and
    advocacy for people who have had
    or will have intestinal or
    urinary diversions.
    Association, Inc.
    Page 2 of 2


    Procedure: The bladder is removed or
    bypassed. A conduit is made out of a
    section of small intestine or colon.
    • Established surgery, the long-term
    results are well understood.
    • Requires external pouching system for
    collection of urine output.
    • The pouch requires emptying every 3-
    4 hours.
    • The pouching system needs to be
    replaced at regular intervals.
    • Potential backup of urine into kidneys
    resulting in kidney infections.


    The bladder is removed or bypassed. An
    internal reservoir is constructed from a
    segment of the small or large intestine
    and the ureters are implanted in a way to
    prevent reflux (back-up) of urine to the
    kidneys. A valve to retain urine is made
    within the reservoir.
    • A small patch is worn over the stoma.
    A pouching system is not needed.
    • No back up of urine into the kidneys.
    • You must intubate (insert tube
    through the stoma into pouch) to
    empty every 4-6 hours.
    • Potential urinary leakage.
    • The long-term results are not known.
    • Chance of pouchitis (inflammation of
    the reservoir) which requires periodic
    irrigations and possible medication.

    The bladder is removed or bypassed. A
    urinary reservoir is made out of bowel
    and is attached to the urethra, so the
    patient can void normally. Spontaneous
    voiding is accomplished by straining
    • Urinary continence.
    • Normal urination route.
    • No external collection pouch.
    • Possible nocturnal leakage.
    • Possible need of clean intermittent self
    c a t h e t e r i z a t i o n .
    • The long-term results are not known.
    • Chance of pouchitis (inflammation of
    the reservoir).

  3. #3
    Sorry to about your issues. Let's see- if you are thinking about "old time" anti-bioitcs, there are several that come to mind. There is mandelamine, macrobid, and microdantin to name a few. There are a lot more that come to mind if these are not the ones you are looking for.

    I don't know if you are really ready to make any decisions re: more surgery. I think that you are having enough problems right now. I would suggest that you call your surgeon and see what he type of procedure he did. My understanding is that it is not that uncommon early on to have a little urine flowing from the urethra - however, I am not sure how long post op you are.

    In the meantime, if you have an infection, you probably already know the mantra- drink, drink and drink some more.

    Hopefully someone who has had the procedure will respond with a little more info than I have.


  4. #4
    Mandelamine, also known by the brand names such as Hipprex and Uroqid/Uroquid, is the one taken with Vitamin C. It's technically not an antibiotic, but rather an antibacterial since it turns your the urine in your bladder into formaldahyde.

    Good luck

  5. #5
    Senior Member
    Join Date
    Aug 2004
    Tallahassee, FL

    YES!!! QUAD... thats it!

    Thanks to ALL FOR YOUR THOUGHTS. QUAD, THAT WAS THE ONE.... Hipprex. It is taken with V - C and several have told me that it works rather well? Anyone else ever tried this approach? Thanks again for your help. Mike
    Mike (Florida)

    Cant we get 1 do over?

  6. #6
    Hiprex or mandelamine taken with vitamin c was used for many years. I know a lot of people who swear by it, but the research really does not support it's use. However, I don't think that it will hurt you and given the problems that you are having, it might be worth a try. Make sure that you drink enough fluid with the medication.

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