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Thread: UTI resisting treatment

  1. #1

    UTI resisting treatment

    And I'm freaking out, this is a first for me. This bug has been around a while I believe, it was asymptomatic -but causing smelly urine and urge to pee at 300cc- until my mitro revision. After I had the foley removed 3 weeks after the surgery I developed symptoms - dizziness and leaking - so I filled a macrobid rx - 100mg 2x 20 days- my surgeon wrote me [I know bad without culture but he wouldn't do it since i had just had the foley.] The symptoms mostly subsided but not completely and returned more after meds were finished so i had a culture done 5/28 with my local uro doc, it showed greater than 100,000 of both e coli and Streptococcus agalactiae. My doc gave me Omnicef 300mg once a day for 20 days. Symptoms went away except strong smell returned toward the end of treatment and I wasn't surprised when symptoms returned a couple days after finishing the med. So I did another culture which showed just the e coli bug still there at greater than 100,000. The doc gave me macrobid 100mg 2x day altho I told the nurse I had already taken it previously, and the symptoms actually started to get worse. On day 4 of macrobid the doc had me discontinue it and put me back on the omnicef which got rid of the malaise I had developed but it hasn't helped the leaking [thank god for the stoma]. The doc has scheduled me for a catscan on tues to see if I have any stones inhibiting treatment. Anything else the doc should be doing?

    BTW I'm surprised the cultures are showing Macrobid as susceptible as I took it for the first 20 something years of my sci as a prophalactic even tho I rarely got utis, so I would have thought I'd be resistent to it no?
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

  2. #2
    Sorry this is going on, Leschinsky.

    I would think that the best course of action would be to switch to a different antibiotic on the sensitivity list. If the Omnicef didn't fully knock it (the e coli) out the first time, it seems unlikely it would do it the second time around.

    On the natural remedy side, I've had great success with getting rid of, and preventing, e coli UTIs with high doses of D-Mannose. Three 500 mg capsules every two hours for 48 hours cleared the first (and only) e coli UTI I ever treated with it. It was a huge PITA to do that dosing, though, but it worked. Three 500 mg capsules four times a day has now kept me e coli infection free for the 18 months since. (I was getting full blown e coli UTIs about every four months prior to that.)

    A lot of people here have also reported that the home remedy of 1/4 tsp. of cream of tartar taken twice a day with 8 oz. of water has cleared their (non-cultured) UTIs, but I've never tried it -- too gross for me.

    Hope you get something that helps you kick this soon. Feel better.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


  3. #3
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  4. #4
    Sounds like the necessary things are being looked at. If you can't get this resolved in the next week or so, I would request a consultation from an infectious disease specialist and see if they can track down the problem and identify a better course of treatment.

    (KLD)

  5. #5
    thanks guys. Unfortunately hip the only other drugs I'm sensitive to are IV ones. I think the doc gave me the 5 days of omnicef to hold over until the catscan tuesday tho I'm taking the last dose today. I do have mannose but haven't taken nowhere near your dose so I'll try that thanks. I tried the cream of tartar for a few days but it didn't work, according to the info I found it makes the urine alkaline and I've increased my asorbic acid dosage to make mine more acidic [it helps with the spasms]. My prima donna doc is going to love me if/when I tell him I'm going to seek an expert opinion!
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

  6. #6
    Quote Originally Posted by leschinsky
    Unfortunately hip the only other drugs I'm sensitive to are IV ones.
    I see. Bring on the Omnicef! That is some nasty e coli you're battling -- seeing an infectious disease specialist sounds like a very good plan.

    Quote Originally Posted by leschinsky
    I do have mannose but haven't taken nowhere near your dose so I'll try that thanks.
    I tried the recommended dosage for a while but it didn't do anything -- I felt like I was just wasting my money. Although I forget how I first arrived at my effective prophylactic dose, I've tried lowering the amount I take a couple of times since then with the same results every time. As long as I take 1500 mg four times a day, my urine stays clear, devoid of bad odor, and 99 percent sediment free. Drop below that dose and it's cloudy, smelly, and gunked up within a day.

    Hope the higher doses will be as effective for you as they have been for me.

    Quote Originally Posted by leschinsky
    I think the doc gave me the 5 days of omnicef to hold over until the catscan tuesday tho I'm taking the last dose today.
    Would the results of the CT scan change the way you are treated in the short term -- i.e. do the docs stop standard UTI treatment with antibiotics if there are stones present? I'm confused about why you would only be given a five day script.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


  7. #7
    I don't know either hip, this is a first for me. Luckily I've had a good almost 24hours of normalcy since I upped the mannose, I even stopped it at 11pm when I went to bed as there was no way I would wake up every couple of hours. thanks so much!
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

  8. #8
    Let us know what shows on the scan. One reason that they may have only given you 5 days medication is that if stones show, you might have to go the IV route to get rid of the infection behind the stone(s).

    CKF

  9. #9
    ok I wont be surprised if I have a bladder stone as there has been a few times when the urine stopped flowing before I was done and I had to manipulate the cath and push on my belly to get it started again. But really ony a few times, weird. I hope it's not from too much asorbic acid and cranberry
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

  10. #10
    well I have no stones, I guess that's good. My doc left on vacation so I spoke with his partner. He looked at the culture which said cipro is susceptible to this uti so I'm gonna take that. I don't know why my doc didn't recommend that one before.
    Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

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