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Thread: Any other PALS here?

  1. #1
    Senior Member MarkPals's Avatar
    Join Date
    Jan 2007
    Location
    Butte, Montana
    Posts
    987

    Any other PALS here?

    Hi ! My name is Mark, and I have ALS. I am 29, and my twin brother has it also. Mike was just dxd last Oct, but I have had it for 7 yrs. I am totally paralyzed with vent, peg, and I use Eye-Gaze to type. I live in Montana, and used to be a pharmacist. Any one who has ALS and is in need of a chair, van or other equipment (even respite money) should check out angels4als@aol.com. The man who runs it name is Stu, and he is indeed an ANGEL. You can also check him out on YouTube.

    Hope you are doing ok, and wish you the best.

    Mark
    http://www.youtube.com/watch?v=LB9DCs4K6lY

  2. #2
    wishing you the very best Mark. Research may just pay off one day hey?


    Rita
    Life isn't about getting thru the storm but learning to dance in the rain.

  3. #3
    Best wishes & bless both you and your brother.

  4. #4
    Damn guy , thats really ruff. Sorry to read this and hope the best for you and your brother.
    oh well

  5. #5
    Junior Member
    Join Date
    Aug 2003
    Location
    Toronto, Ontario
    Posts
    15
    Hi,
    I also have ALS..10 years now. I am 41
    I'm paralyzed from the neck down with a little R triceps to steer my PWC
    FVC at 22%. Nothing bulbar yet...knock on wood

    I read you have a colostomy. I would love your input on my thread here:
    http://sci.rutgers.edu/forum/showthr...90#post1077790

    Take care
    Karin

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