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Thread: Wise. Question about vocal cords

  1. #11
    Am sure by now that many people on this forum think I am a wacko with some of the alternative things recommended. Go ahead and LOL. However, I never recommend anything that I have not used personally and found some improvement. That said, your case is unique with the damage incurred. I feel for you.

    There is something to research that may help. My guess is that you will not find much of anything on an Internet search for your condition. But, the Magnetic Molecular Energizer (MME) may be able to help. The machine produces a strong magnetic field that the body uses to speed up its own internal healing using the body's own stem cells which gravitate toward the magnetic field. With enough hours under the MME, the machine may help the body to regrow your nerves and vocal cords. In the process since your vocal cords are in the same area, it will help regrow your injured spinal cord. Do I have proof, NO. No one has had your condition that has been treated with the MME. There have been maybe up to 100 persons who have been treated for spinal cord injury, one of them my son (C-6 quad) who has had amazing change of function. Many of those have seen enough progress to get repeat treatments.

    There are 4-5 clinics in America and 1 in Canada. The technology is new, experimental, and one must pay out of pocket. To date, the MME has helped persons with stroke, CP, and brain injury to partially recover from their paralysis, repair leg and feet nerves in persons with diabetic neuropathology, and repair orthopedic conditions such as knee cartilage, tennis elbow, and shoulder rotocuff damage. Not much on their websites due to FDA restrictions on advertising during the clinical trials, but a call to any of the clinics may get you the information you need to help you make a decision.

    Go to www.amri-va.com or www.amri-intl.com or www.amritucson.com

  2. #12
    Senior Member lunasicc42's Avatar
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    I e-mailed the doctor in boston and he e-mailed me back wanting to set up a consultation. I explained to him that I am tetrapalegic and it's difficult for me to travel ( especially from tampa to boston ) for a consultation. I gave him my moms e-mail address and our phone number as she is my primary caregiver and knows all my issues and history.
    Did I do the right thing?
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  3. #13
    Quote Originally Posted by lunasicc42 View Post
    I e-mailed the doctor in boston and he e-mailed me back wanting to set up a consultation. I explained to him that I am tetrapalegic and it's difficult for me to travel ( especially from tampa to boston ) for a consultation. I gave him my moms e-mail address and our phone number as she is my primary caregiver and knows all my issues and history.
    Did I do the right thing?
    Information is pretty cheap to obtain. The key is finding out what is left to repair and the extent of what has been damaged, but is still there. Your area of damage must be loaded with scar tissue. The body produces a protein called Nogo which causes the scar tissue to form and last for up to 15 years. However, the MME can reverse that scaring.

    Surgeons can re-attach, sew together, and maybe do a butt-to-butt nerve or skin graft. But there is no surgeon on earth that can regrow any part of the body. Only the body can do that thus far. Researchers are working on modifying stem cells that may regrow damaged body parts, but that is years off at this point.

    How old is your injury?

  4. #14
    Quote Originally Posted by 6 Shooter View Post
    Information is pretty cheap to obtain. The key is finding out what is left to repair and the extent of what has been damaged, but is still there. Your area of damage must be loaded with scar tissue. The body produces a protein called Nogo which causes the scar tissue to form and last for up to 15 years. However, the MME can reverse that scaring.

    Surgeons can re-attach, sew together, and maybe do a butt-to-butt nerve or skin graft. But there is no surgeon on earth that can regrow any part of the body. Only the body can do that thus far. Researchers are working on modifying stem cells that may regrow damaged body parts, but that is years off at this point.

    How old is your injury?
    6 Shooter,

    I disagree with you on the following:
    1. Nogo does not cause scar tissue to form and last for 15 years.
    2. It is not true that surgeons cannot regrow any part of the body.
    3. Not all nerve repair or reinnervation is "butt-to-butt".

    Nogo is a protein that is present in myelin. It stops axonal growth. it has nothing to do with scar formation and I don't know where got the 15 years from. It is simply not true.

    Surgeons have long been reinnervating structures with peripheral nerves. For example, they can get reinnervation of facial muscles, restore sensation in the hand, and even regain bladder function with peripheral nerve transfers. So, it may be possible for them to reinnervate larynx. I don't know whether it has been done but I believe that you are providing too pessimistics a picture of surgical reinnervation and repair of the body.

    Not all peripheral nerve repair is end-to-end. They have been doing end-to-side and even side-to-side anastomoses of peripheral nerves for years.

    I agree with you that there is likely to be a great deal of scar tissue but a careful evaluation by a expert would provide important and useful information that would be critical for any decisions concerning therapy.

    Wise.

  5. #15
    Luna - I hope you get to see someone of the caliber of the doctor at an institution like Mass General in Boston for such a difficult problem as you have.
    Last edited by arndog; 06-19-2009 at 09:10 PM.

  6. #16
    Luna, I think I would speak to my mother about a trip to Boston. I know traveling isn't always easy, but if you could manage it, it sounds like it might do you some good.

    Good luck in whatever you decide.

  7. #17
    Quote Originally Posted by arndog View Post
    6 Shooter - what a great avatar for you! You really do "shoot from the hip" with your 'one treatment fits all problems' of magnetism - if your only tool is a hammer, everything starts looking like a nail !
    Arndog--Please provide me with a medical solution for a spinal cord injury. How about a medical solution for paralysis from a stroke? How about a medical solution other than amputation for diabetic neuropathy? Research is working on a medical solution, but don't think we are at that point with stem cells yet.

    In the mean time, you can accept where you are. In my case, we chose to try something where there was NO medical solution. It worked to a degree. Was it a cure, NO. And I do not believe that stem cells for SCI will be a "cure" either (cure being defined as returning one to pre-injury condition). However, I do believe that stem cells will prove out in the long run to restore some function in an SCI. With my son, I have witnessed a good deal of restored function which is huge when one has only 3 muscle groups working--writs up, biceps, and some shoulder movement.

    I agree with you that there is "one treatment that fits all problems"--proper nutrition. Get proper nutrition in the body and it will heal itself in most instances.

  8. #18
    Quote Originally Posted by lunasicc42 View Post
    yeah, the nerves were cut. Many specialists have scoped my vocal cords in Miami and tampa am they are halfway open and paralyzed in a position like an upside down V. I have a trach hole but don't need the tracheotomy tube to breathe.
    I will ask my Mom to comment on this thread as she is my primary caregiver and might have something to add

    I just haven't had them explored in a while and was just wondering if there were any advances in surgical procedures or what not... Just checking
    Anthony we don't know for sure if the nerves were cut, they could either have been damaged by the initial injury, damaged by having the trach put in, damaged by a little stroke we think you had, and/or damaged by the initial ER surgery to repair your throat.
    Cindy Waters
    mom to Anthony, right c5, left c4 (24yo)
    injury march 2003

  9. #19
    Quote Originally Posted by ricanstruction View Post
    Luna,

    I have tracheal stenosis, which means my trachea is closed off due to scar tissue. air cannot pass through my vocal chords to speak. I have a tracheostomy to breathe and use a device to speak. Can you use any device for speech? I know how frustrating it is. I'm going to Mass General in boston for a resection surgery and possible trachea reconstruction. They are THE BEST in the country. Look them up online. I'm going to see Dr. Mathisen and he gives me hope to speak again. I know your problem is much different but they have voice specialists. Look up online communities with your condition. That helped me out tons too.
    The passy muir valves will not work, the vocal chords do not move they have been looked at several times over the years. I have heard of this Dr. you mention in Boston and even had correspondence with him, but it is not a matter or reconstructing the trachea. His trachea is fine the issue is with the vocal chords not moving and the only thing I think would help if there was something that would electrically stimulate them to move then there might be a chance of getting some kind of sound out. There is also a device that can be inserted in and move one vocal chord closer to the other, but that would only work for him if one of the vocal chords were able to move. And that is not the case.
    Cindy Waters
    mom to Anthony, right c5, left c4 (24yo)
    injury march 2003

  10. #20
    The most closest to what I think will help Anthony would be what Dr. Wise was stating about reinnervating. Dr. Wise when you mentioned how Drs. have done this with facial muscles, peripheral nerve tranfers, etc. Does that mean there are Drs. that specialize in this type of surgery. What kind of Dr. would this be? Do you know any, can you ask around the world to see if a surgery has ever been performed to help restore nerves back to the vocal chords, one vocal chord restored might even be helpful. Thank you.
    Last edited by waters3; 06-19-2009 at 04:52 PM.
    Cindy Waters
    mom to Anthony, right c5, left c4 (24yo)
    injury march 2003

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