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Thread: I'm tired of this #$%&-ing pain!!!!

  1. #821
    Quote Originally Posted by Cowboys_Place View Post
    Broken Doll, sorry to hear you're going through such trying times.. I'd like to say thanks for your post a lot of what you said describes how I feel I just didn't know how to put it in words or whether I should since everyone on here is dealing with pain why should they have to listen to me bitch and complain!

    After years of tests and Dr. Visits with no success in controlling my pain.. Tomorrow I have an appointment at a pain clinic that I'm cautiously optimistic about after reading post after post of people not having any luck..

    Something has to change I'm only 46 and can't see myself living or wanting to live to much long if this pain doesn't ease up even just a little.. O and to top it all off my bowels have taken a sh*t in the last year pun and nopun ntended so I'm contemplating getting A colostomy bag.. I've read on here where it's made life or dealing with BP easier.. Well I hope each and everyone of us is able to find some sort of pain relief if even just a small way!

    P.S a buddy of mine brought me some special peanut butter cookies unfortunately didn't help with the pain however they made some of these stupid comedy shows actually seem funny :-)

    I've got an appointment in 2 weeks to discuss a colostomy. Right now my life truly is "shit or die".

    I wish you luck in finding a solution.

    I'd like to find an altrnative to opioids because I know they back up the bowels.

  2. #822
    I was once given those fake THC pills for the early HORRIBLE nerve pain, when my feet woke up after a yr. They helped. Unfortunately they made me so high I had to lay in bed under the covers and I had a 12 yr. old. They are gelcaps and $20 each, off-label use, there was no way to lower the dosage w/o being extremely wasteful.

    But this does give me hope for medical MJ.

  3. #823
    I went to see a new neurologist and he ask me if I have heard of Carbamazepine when I told him no he looked at me like I was nuts. He said once you start taking this you probably wont need the oxy. Has anyone used this drug? Its very inexpensive - so here it goes I will keep you all updated.

  4. #824
    Quote Originally Posted by BillyG View Post
    I went to see a new neurologist and he ask me if I have heard of Carbamazepine when I told him no he looked at me like I was nuts. He said once you start taking this you probably wont need the oxy. Has anyone used this drug? Its very inexpensive - so here it goes I will keep you all updated.
    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000620/

    It's tegretol. Basically an older anti-seizure drug. Similar to neurontin.
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

  5. #825
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    Quote Originally Posted by Broken Doll View Post
    You have a kindred spirit in me right now too. I'm so tired of pretending everything is ok when each day I lose a little bit more of my life to the point I feel like I'm losing myself too. I'm so miserable and pissed off that I function so poorly right now.

    All I do is let people down because I can't keep commitments. My work is slipping away. I need that money and more to survive and pay my bills.

    My mother, who I depend on so much can no longer help me; and I worry each day that I won't be able to help her.

    My service dog of 16 years has 3 tumours encroaching on her throat; the vet says she could maybe live 2 days, 2 weeks or 2 months more.

    I've lost a caregiver and because I don't want to deal with having to hire and train a new one, I'd rather just lay in bed all day.

    I'm tired of everybody expecting me to be their hero and inspiration. I can't be a whiner anyplace else, so it feels real good to do it here. There's a few whiney friends on my Facebook that are so annoying, I don't want to be like that.

    Anybody close to me doesn't want to hear me moan about being in so much pain I'd like to be shot. Their opinion is to just get over it. They have no idea what an effort it is for me just to do something as simple as meet them somewhere. They lose their respect for me if I mention I'm getting depressed because they think I'm suicidal.

    It's frustrating when you can't enjoy events or people because the pain is ever present or embarrassing. Why does living have to be so hard? Let me count the ways I am so lucky; oh yeah, I'm alive.

    It's hard to have to keep a smile on your face when you feel so alone and in so much pain. I am getting more overwhelmed and depressed each day because I have to keep it inside of me. I used to be so active and now I'm becoming more of a shut-in every day. I'm spending so many days in bed that I don't even know what day of the week it is anymore.

    As selfish as it may sound, I hate my life right now and how it affects other people. Thank you for providing me the opportunity and venue to say that notwithstanding how guilty and trivial I feel to express myself like this.

    Don't feel guilty. All of us in chronic pain feel this way, at least sometimes. The never-ending pain just wears us and those close to us out. All we can do is search for the next drug. Hope you get some relief.
    2012 SCINetUSA Clinical Trial Support Squad Member
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  6. #826
    Quote Originally Posted by november View Post
    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000620/

    It's tegretol. Basically an older anti-seizure drug. Similar to neurontin.
    Does it help?

  7. #827

    Carbamazepine - CYMBALTA

    Quote Originally Posted by BillyG View Post
    I went to see a new neurologist and he ask me if I have heard of Carbamazepine when I told him no he looked at me like I was nuts. He said once you start taking this you probably wont need the oxy. Has anyone used this drug? Its very inexpensive - so here it goes I will keep you all updated.
    Interesting and funny too! I went to a new doc yesterday who was billed as a 'pain specialist' but it turns out that he is a GP who is known for prescribing pain meds. The office wanted me to drop my long time MD and be this new guys patient. No way, my Doc gives me what I want no restrictions. I thought the new doc was going to do a complete pain evaluation but no; he asked me if I heard of CYMBALTA I said no, he looked at me with a funny expression and told me that if I take this I may no longer need Oxycodone or the Fentynal patch.

    Anyone here taking this medication?
    Gary Is = L-1 Para for 34 years.....................
    ~~~~~~~~~~

  8. #828
    Quote Originally Posted by BillyG View Post
    Does it help?
    I never ramped my dose up enough to see. Sorry.
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

  9. #829
    Quote Originally Posted by Garyis View Post
    Interesting and funny too! I went to a new doc yesterday who was billed as a 'pain specialist' but it turns out that he is a GP who is known for prescribing pain meds. The office wanted me to drop my long time MD and be this new guys patient. No way, my Doc gives me what I want no restrictions. I thought the new doc was going to do a complete pain evaluation but no; he asked me if I heard of CYMBALTA I said no, he looked at me with a funny expression and told me that if I take this I may no longer need Oxycodone or the Fentynal patch.

    Anyone here taking this medication?
    LOL - Funny how theses docs can be and there is nothing else to do but laugh. Yes i have tried Cymbalta I think it's a low rate version of Lyrica. To sum it up it didnt work at all.

  10. #830
    Senior Member alan's Avatar
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    The neurologist added Lamictal (another old anti-seizure med) to my 3 x 100 Lyrica. Whoopee. Pains don't care.

    Meanwhile, my upper back (in particular) keeps getting worse, while my spine twists like a corkscrew. Bah.
    Alan

    Proofread carefully to see if you any words out.

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