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Thread: I'm tired of this #$%&-ing pain!!!!

  1. #811
    Senior Member
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    Quote Originally Posted by bollofen
    hoping for a few good days.
    Our weather has tken a turn for the better.....I know it helps me a bit, hope it helps you.
    T7-8 since Feb 2005

  2. #812
    Senior Member grommet's Avatar
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    Got asked the 1-10 pain scale question today and used Hipcrip's idea. I just had an in-home eval for a replacement powerchair. His form needed to know the pain scale thing.

  3. #813
    Senior Member alan's Avatar
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    Quote Originally Posted by thehipcrip View Post
    This is what people without chronic pain will never understand. It's also what makes that 1-10 pain scale utterly useless for evaluating chronic pain.

    I firmly believe that the most accurate way to quantify chronic pain is to first use the 1-10 scale to describe the average level of the pain over the last 24 hours. Then increase that daily average by a multiplier based on how long that pain's been present -- say "Y*2" with Y being the number of years you've been in pain.

    What do you think, alan? Would that score start to make doctors, nurses and folks without persistent pain get a feel (word play intentional) for how bad you hurt?
    I doubt it, but skinning them, dousing them with alcohol, and breaking their shoulder blades would be be a start. If I get your proposed scale right, I'd be at 620. Sounds accurate.

    Had to spend a couple days in the hospital at the beginning of this month due to power failure and water main break (my house got to 90 degrees, I was at 102.) Of course, I was asked about pain, and I said 10 (as I always say, because it is - worse than the worst pain I ever had before this. I also apologized for not crying and screaming, because I'm not a crier or screamer.)
    Alan

    Proofread carefully to see if you any words out.

  4. #814
    Crying and screaming does'nt do any good......I've become silent and invisable.....

    Does'nt do any good to complain. GPs afraid to give meds....and pain specialists with their hands tied. Where does that leave us? And who even cares anymore?

  5. #815
    It leaves us eating MJ brownies in one of 13 states. If that doesn't work I'm screwed. For now, suck it up is all I've got...

  6. #816
    I am also feeling the pain suboxone has done wonders but now they know my dosing and my ins wont cover it. $500.00 a script I cannot afford. Back to the drawing board. I was also wondering does anyone get the twitching in the hands this is a new one for me its more like a jerking. Hope everyone gets relief of some sort you may want to try suboxone if your ins. covers it. It worked best for me.
    Good luck all

  7. #817
    I've never had a MJ brownie.....Betty Crocker....but no MJ! I don't see Tennessee being one of the states where that is allowed anytime soon!

  8. #818
    New Mexico isn't real progressive. But they are poor, and in need of a cash crop!

    That suboxone scares me. Lasts too long. I read about it and thought it would work...but if you needed emergency surgery you're out of luck.

  9. #819
    You have a kindred spirit in me right now too. I'm so tired of pretending everything is ok when each day I lose a little bit more of my life to the point I feel like I'm losing myself too. I'm so miserable and pissed off that I function so poorly right now.

    All I do is let people down because I can't keep commitments. My work is slipping away. I need that money and more to survive and pay my bills.

    My mother, who I depend on so much can no longer help me; and I worry each day that I won't be able to help her.

    My service dog of 16 years has 3 tumours encroaching on her throat; the vet says she could maybe live 2 days, 2 weeks or 2 months more.

    I've lost a caregiver and because I don't want to deal with having to hire and train a new one, I'd rather just lay in bed all day.

    I'm tired of everybody expecting me to be their hero and inspiration. I can't be a whiner anyplace else, so it feels real good to do it here. There's a few whiney friends on my Facebook that are so annoying, I don't want to be like that.

    Anybody close to me doesn't want to hear me moan about being in so much pain I'd like to be shot. Their opinion is to just get over it. They have no idea what an effort it is for me just to do something as simple as meet them somewhere. They lose their respect for me if I mention I'm getting depressed because they think I'm suicidal.

    It's frustrating when you can't enjoy events or people because the pain is ever present or embarrassing. Why does living have to be so hard? Let me count the ways I am so lucky; oh yeah, I'm alive.

    It's hard to have to keep a smile on your face when you feel so alone and in so much pain. I am getting more overwhelmed and depressed each day because I have to keep it inside of me. I used to be so active and now I'm becoming more of a shut-in every day. I'm spending so many days in bed that I don't even know what day of the week it is anymore.

    As selfish as it may sound, I hate my life right now and how it affects other people. Thank you for providing me the opportunity and venue to say that notwithstanding how guilty and trivial I feel to express myself like this.

  10. #820
    Senior Member Cowboys_Place's Avatar
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    Broken Doll, sorry to hear you're going through such trying times.. I'd like to say thanks for your post a lot of what you said describes how I feel I just didn't know how to put it in words or whether I should since everyone on here is dealing with pain why should they have to listen to me bitch and complain!

    After years of tests and Dr. Visits with no success in controlling my pain.. Tomorrow I have an appointment at a pain clinic that I'm cautiously optimistic about after reading post after post of people not having any luck..

    Something has to change I'm only 46 and can't see myself living or wanting to live to much long if this pain doesn't ease up even just a little.. O and to top it all off my bowels have taken a sh*t in the last year pun and nopun ntended so I'm contemplating getting A colostomy bag.. I've read on here where it's made life or dealing with BP easier.. Well I hope each and everyone of us is able to find some sort of pain relief if even just a small way!

    P.S a buddy of mine brought me some special peanut butter cookies unfortunately didn't help with the pain however they made some of these stupid comedy shows actually seem funny :-)
    Courage is being scared to death but saddling up anyway. .(John Wayne)

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