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Thread: I'm tired of this #$%&-ing pain!!!!

  1. #831
    How do you begin to cope when your foot gets so sensitive to touch that resting it on the footplate causes constant, violent spasms? And when the back of the thigh is starting to do the same any time you sit in your chair?
    Last edited by thehipcrip; 07-27-2012 at 10:34 PM.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


  2. #832
    I'm so tired of this fucking pain!!!!!!!I'm supposed to be numb from my chest down, no feeling at all and that's where my pain starts, don't make sence to me!..... There's days when I don't want to talk to no one or see anyone, some days are worse than others and it seems like I just got out of the hospital...
    It's been almost three years and it don't let up! FUCK THIS PAIN!!!!!!!!

  3. #833
    THC -How is this for an answer -
    " it is all in your head. Pain is a choice. God won't give you something you can't handle. You are a drug seeker. I am tired of your pain, aren't you? "

    I guess that didn't help, huh?
    I am in a dark mood myself because my ass and genitals are on fire and that is all I can think about. I am ROBBED by not being able as an adult to do anything but cope.

    Here is what I am doing.
    1.I took extra Lyrica 75 mg and an oxycodone.
    2.I am going to bed early.
    3.I took an ambien.
    4. I have good headphones and I am blasting Shostakovich 8th string quartet . The first movement is very sad, but the 2nd movement will take your mind off the pain. It is about the insane time during Stalin . Dimitri repeats for notes that is his initials DSCH over and over. It can drown out the pain . I have Emerson String Quartet recording.

    HLH may have played this on violin.

    THC- could you clarify what this sagital section is showing. Is your spinal cord tumor pressing on your cord?

  4. #834
    Quote Originally Posted by Garyis View Post
    Interesting and funny too! I went to a new doc yesterday who was billed as a 'pain specialist' but it turns out that he is a GP who is known for prescribing pain meds. The office wanted me to drop my long time MD and be this new guys patient. No way, my Doc gives me what I want no restrictions. I thought the new doc was going to do a complete pain evaluation but no; he asked me if I heard of CYMBALTA I said no, he looked at me with a funny expression and told me that if I take this I may no longer need Oxycodone or the Fentynal patch.

    Anyone here taking this medication?
    I take Cymbalta in addition to Lyrica. Cymbalta is primarily prescribed as an anti-depressant but has apparently been shown to help with neuropathic pain. I think it has helped some but it's hard to tell because the pain fluctuates so much. I do know that going without it now brings on serious withdrawal.

    I don't see how Cymbalta could replace oxy or fentynal, it's a completely different type of drug addressing different types of pain.

  5. #835
    Quote Originally Posted by Lazlo View Post
    I take Cymbalta in addition to Lyrica. Cymbalta is primarily prescribed as an anti-depressant but has apparently been shown to help with neuropathic pain. I think it has helped some but it's hard to tell because the pain fluctuates so much. I do know that going without it now brings on serious withdrawal.

    I don't see how Cymbalta could replace oxy or fentynal, it's a completely different type of drug addressing different types of pain.
    I should have said it did nothing for ME to help my situation knowing everyone is different..My apology

  6. #836
    Quote Originally Posted by Lazlo View Post
    I take Cymbalta in addition to Lyrica. Cymbalta is primarily prescribed as an anti-depressant but has apparently been shown to help with neuropathic pain. I think it has helped some but it's hard to tell because the pain fluctuates so much. I do know that going without it now brings on serious withdrawal.

    I don't see how Cymbalta could replace oxy or fentynal, it's a completely different type of drug addressing different types of pain.
    I figured as much... I did not get the RX on the Cymbalta filled and I'm not going back to that doc. Thanks for the info above.
    Gary Is = L-1 Para for 34 years.....................
    ~~~~~~~~~~

  7. #837
    Quote Originally Posted by BillyG View Post
    Does it help?
    hi billy...yes its helping.....tegretol has been used for many years for nerve pain.....i am now on triptezol what is doing the same but has less side effects ...its a muscle relaxer ...has been used aswell as anty depressend ,but is very good painkiller....i used it one and half year together with neorontine...slowly gone off neurontine ,then only triptezol....slowly gone off that to...it has realy helped me...i always have some in the home for bad days when the nerve pain is back

  8. #838
    Well maybe I am the only one that is a fan of Cymbalta..... It helps me.... How do I know?... If I don't take it I hurt more than when I do take it!!! Hope this helps somebody.... Oh yeah ... Probably should add that I also take Lyrica and Methadone.... Pain sucks... Nerve pain is FUCKED UP!!!!!!!! I know you guys know what I mean!!!!
    L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

  9. #839
    Quote Originally Posted by Broken Doll View Post
    You have a kindred spirit in me right now too. I'm so tired of pretending everything is ok when each day I lose a little bit more of my life to the point I feel like I'm losing myself too. I'm so miserable and pissed off that I function so poorly right now.

    All I do is let people down because I can't keep commitments. My work is slipping away. I need that money and more to survive and pay my bills.

    My mother, who I depend on so much can no longer help me; and I worry each day that I won't be able to help her.

    My service dog of 16 years has 3 tumours encroaching on her throat; the vet says she could maybe live 2 days, 2 weeks or 2 months more.

    I've lost a caregiver and because I don't want to deal with having to hire and train a new one, I'd rather just lay in bed all day.

    I'm tired of everybody expecting me to be their hero and inspiration. I can't be a whiner anyplace else, so it feels real good to do it here. There's a few whiney friends on my Facebook that are so annoying, I don't want to be like that.

    Anybody close to me doesn't want to hear me moan about being in so much pain I'd like to be shot. Their opinion is to just get over it. They have no idea what an effort it is for me just to do something as simple as meet them somewhere. They lose their respect for me if I mention I'm getting depressed because they think I'm suicidal.

    It's frustrating when you can't enjoy events or people because the pain is ever present or embarrassing. Why does living have to be so hard? Let me count the ways I am so lucky; oh yeah, I'm alive.

    It's hard to have to keep a smile on your face when you feel so alone and in so much pain. I am getting more overwhelmed and depressed each day because I have to keep it inside of me. I used to be so active and now I'm becoming more of a shut-in every day. I'm spending so many days in bed that I don't even know what day of the week it is anymore.

    As selfish as it may sound, I hate my life right now and how it affects other people. Thank you for providing me the opportunity and venue to say that notwithstanding how guilty and trivial I feel to express myself like this.
    Hey Broken Doll..... The main reason I started this thread was for people like you and me to have a place to come and say whatever we need to say to help us feel better..... Including the "F" word..... WITHOUT BEING JUDGED!!!!!

    This is a NO JUDGEMENT ZONE!!!!!! So whine, cuss, cry, rant, yell, holler, whatever you need to do!!!!

    Sorry you are having a rough time !!!!!! - Grange
    L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

  10. #840
    Arndog -- Oh, you were so close! Of the hundred people surveyed, the number one answer was, "Get a hobby. If you just keep busy, you won't notice that your foot are so hypersensitive to touch that they'll go to drastic measures to avoid touching anything." But thanks for playing. I'm sure we have some lovely parting gifts for you. ~lol~

    Re: the MRI, there's no tumor to be seen. It took three 15 hour surgeries and radiation therapy, but the neurosurgeons were able to completely remove the astrocytoma. But because the tumor was so intertwined with and almost indistinguishable from the cord, the only way to excise the cancer was to cut out cord along with it. This MRI shows what's left of the cord (it's the extremely thin white line extending down from my brain) and the syrinx in my brain stem (the dark spot at the top of the cord. It also shows the 90 degree kyphosis in my neck, and how much of the C2 and C3 vertebrae were shaved off in addition to the laminectomy in an early attempt at decompression. Oh, and that area on my upper back that's glowing white is a trap flap -- my left trapezius muscle was used as an external dura graft after attempts to close a tear in the dura/CSF leak/non-healing incision failed because the tissue had been opened too many times before and been damaged by the radiation therapy. As difficult as it is to believe, I was able to walk unassisted and with only a slight limp and maintain full use of my upper body minus fine motor skills in my right hand for two decades with only that little wisp of cord left. It was a damn good run.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


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