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Thread: Does anyone use 4-AP outside of the U.S?

  1. #11
    Since we are not in EU we have even more stright rules of medication than them. But we can get other things that the countries in EU can't get. Confusing...
    TH 12, 43 years post

  2. #12
    Senior Member Imight's Avatar
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    Norway isnt in the EU??? really? I dont know why but I thought they were. Or maybe Im thinking NATO.

  3. #13
    Because I think most of the world believe all Europe is in EU. We have votet over it twice and it was no both the times so we are not in. But we are in EEA so the difference is not so big.
    TH 12, 43 years post

  4. #14
    Quote Originally Posted by Imight View Post
    dang. I thought this drug was proven safe. Its the only drug I take and it benefits me.

    Dr Young: Do you provide your patients in China with 4-AP?
    It is not yet approved. Hopefully, when it is approved, it will be available in China. Acorda Therapeutics is currently negotiating with companies who will market Fampridine in Europe and Asia.

    Wise.

  5. #15
    Super Moderator Sue Pendleton's Avatar
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    Quote Originally Posted by Ian B View Post
    Even tho' he specialises in MS, my neuro in the UK can get it it but refuses point blank. I'm not MS nor SCI, but there's a chance it would help my disorder and I've been asking him for the past 2 years to at least let me try it to no avail. He has doubts about it's efficiacy, but is all too willing to believe the possible side effects.

    Ian
    There's a compound called 3,4-diaminopyridine that is made by one US company for a rather small patient group because the disorder it helps is rare. You might check it out.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  6. #16
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    Quote Originally Posted by Sue Pendleton View Post
    There's a compound called 3,4-diaminopyridine that is made by one US company for a rather small patient group because the disorder it helps is rare. You might check it out.
    Hi Sue,

    Thanks for the info. A quick google shows it may help certain MS sufferers as well, so at least my neuro *should* know about it. If it works in a similar way to 4AP, it could possibly help me, I'm due to see him in July so I can at least ask him then.

    My disorder, Hereditary Spastic Paraplegia is often confused with MS, at least initially, as the symptoms are very similar, tho' with a different cause, the ends of the long axons are damaged with HSP, rather than the myelin with MS.

    I'm looking for help with one specific symptom, which has no known association with HSP, which in turn has led my neuro to suggests I may have a secondary disorder, albeit one he is unfamiliar with, even tho' this particular symptom is normally associated with SCI, and to a lesser degree MS.

    Ian

  7. #17
    Super Moderator Sue Pendleton's Avatar
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    Might search for it at www.fda.gov too Ian.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  8. #18
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    Thanks again Sue, there's lots of reading for me there.

    Ian

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