Page 66 of 72 FirstFirst ... 165657585960616263646566676869707172 LastLast
Results 651 to 660 of 718

Thread: Spinal Cord Injury Network USA (SCINetUSA)

  1. #651
    Quote Originally Posted by lunasicc42 View Post
    My fear: (unfounded but it's still there )... Is that the trial is not actually going to get off the ground despite the chatter due to lack of efficacy that we don't know about but the high-ups do and we are just being strung along Perpetually waiting for American trials to begin. The thing that would most likely Calm my fears is actual before and after videos of the patients performing physical tasks, sorry but the integaconnect paper just doesn't have me fully convinced and leaves some questions. I need to SEE it... When do we get multi-media coverage?
    There was a video of a guy from the China study. Not sure how to find it now.

  2. #652
    Quote Originally Posted by lunasicc42 View Post
    My fear: (unfounded but it's still there )... Is that the trial is not actually going to get off the ground despite the chatter due to lack of efficacy that we don't know about but the high-ups do and we are just being strung along Perpetually waiting for American trials to begin. The thing that would most likely Calm my fears is actual before and after videos of the patients performing physical tasks, sorry but the integaconnect paper just doesn't have me fully convinced and leaves some questions. I need to SEE it... When do we get multi-media coverage?
    Yea, we and the FDA are just stringing you along ...

    http://www.icontact-archive.com/arch...cd3f59ef7b74ad

  3. #653
    Senior Member lunasicc42's Avatar
    Join Date
    Oct 2004
    Location
    Lutz, Fl USA*********C456
    Posts
    2,338
    I see what you are saying but after years of paralysis and utter disappointment there is still that inkling in the back of my mind... Ya know, fear isn't always rational... Godspeed.

    But one question still remains: "will there be a media blitz of some kind? "
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

  4. #654
    Senior Member lunasicc42's Avatar
    Join Date
    Oct 2004
    Location
    Lutz, Fl USA*********C456
    Posts
    2,338
    Quote Originally Posted by Barrington314mx View Post
    There was a video of a guy from the China study. Not sure how to find it now.
    anybody? Jim?
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

  5. #655
    Quote Originally Posted by Jim View Post
    Yea, we and the FDA are just stringing you along ...

    http://www.icontact-archive.com/arch...cd3f59ef7b74ad
    Jim, how are the trials in India, China and Taiwan coming along? Have they started? Do they operate independently of each other or are their schedules related in some way?
    Thanks


  6. #656
    Don?t know about the trials in China and Taiwan but the trials in India would began after the Phase 2 trials have started in US. Have also been to one of the hospitals in India where the trial is planned, they also use the same Kunming walking program (6:6:6) but I don?t think that would be beneficial without Stem Cells

  7. #657
    China won't be involved until the phase III. We would like to start India, Taiwan, and US at the same time but that will be difficult to pull off. Wise recently visited each country, but I didn't get a progress report. India has been doing the 6-6-6 walking program for about a year now. Like in China, some are recovering without any cells.

  8. #658
    The walking program that Jim mentions is currently paid by the patients ( approx 30$ for 6 hours or 2000 INR for 6 hours) it’s not under any trial. I personally have tried it but none of patients that I know are able to complete the 6:6:6. It’s pretty exhausting and extremely hard.

  9. #659
    Thanks for the report, Parth.

    If I recall, some are able to make it to Kunming Level IV?
    Attached Images Attached Images

  10. #660
    No problem Jim. Personally I have seen some patients walk some distance on Kunming walker with rope tied on their knees so that they don’t buckle up, but again at the end of the day the patients go back home on their wheelchairs only. I don’t know if the patients progressed any further. All of these patients are without the intraspinal UC cells.

Similar Threads

  1. Replies: 67
    Last Post: 12-04-2015, 12:50 PM
  2. Replies: 7
    Last Post: 08-29-2012, 01:08 AM
  3. Ongoing NIH Grants for SCI
    By Steven Edwards in forum Cure
    Replies: 1
    Last Post: 08-28-2006, 10:40 AM
  4. Dr.Young
    By pla9302 in forum Cure
    Replies: 1
    Last Post: 07-06-2006, 02:08 PM
  5. Replies: 66
    Last Post: 01-11-2006, 03:59 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •