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Thread: Spinal Cord Injury Network USA (SCINetUSA)

  1. #571
    Quote Originally Posted by Jim View Post
    Update

    I assume that LMN injuries are still not involved in it? As I understand it once you get to T9 injuries go more UMM or LMN. My injury is at T9/10 and while I had atrophy and didn?t respond to what used to be the 500 pulse width estim. I do respond to the RTI 3000 pulse width pretty well. I also have a very elastic bladder. So I would say I have both UMN and LMN, so I question the thinking that I and many others would not benefit from this treatment. Any thoughts or updates on LMN research? Thanks!

  2. #572
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    Thanks Jim.

  3. #573
    Thanks for update Jim

    this therapy won’t benefit me as it’s being tested now because I’m Asia D. But I hope it makes it through and becomes available, just to get rid of the wide belief that SCI is untreatable.

  4. #574
    Senior Member lunasicc42's Avatar
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    Quote Originally Posted by Jim View Post
    Update

    This Sounds great but I wouldn't be Totally truthful if I didn't pose the question of 'when will we be about to see actual videos of the patients ' and other media stuff... This type of recovery is something I would like to be able to "see" ideally
    "That's not smog! It's SMUG!! " - randy marsh, southpark

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  5. #575
    Lyerly,

    Inclusion for the trial is C5-T10. I attached something Wise wrote about lumbosacral injuries. One of our researchers has been working on this for a few years.
    Attached Images Attached Images

  6. #576
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    Jim are y’all not doing untethering anymore? It didn’t say anything about it for SCInetUSA. Also what is the plan of attack for hands?
    Last edited by #LHB#; 07-10-2018 at 08:38 PM.

  7. #577
    Quote Originally Posted by Jim View Post
    Lyerly,

    Inclusion for the trial is C5-T10. I attached something Wise wrote about lumbosacral injuries. One of our researchers has been working on this for a few years.
    Thank you!

  8. #578
    Quote Originally Posted by Fly_Pelican_Fly View Post
    re this lumbosacral research : still no sign of an abstract, a hypothesis, a researcher name, a poster, a paper or a grant award. But we'll take your word for it Jim.
    Like with most low level injuries, I have a great understanding and appreciation that I am fortunate to have full use of my upper body but many of us have BBS issues and we things like atrophy we have to really worry about pressure sores and and muscle tissue becoming fat and possibly too far gone for use it and when a treatment comes.

    i think it is wrong to exclude LMN injuries from a lot of things like the epidural implant etc. I understood it that peripheral nerves regenerate, making it possible that mine might have and the majority of my problems is in the straight line of the cord. As I mentioned I have a very spastic bladder, so I would expect to possibly benefit with bladder improvement or even recovery but nobody knows until they try. Maybe I won’t benefkt as much as some but think there will be a large varying degree of benefit for most people. LMN treatments seem a long long way off.

  9. #579
    Quote Originally Posted by #LHB# View Post
    Jim are y’all not doing untethering anymore? It didn’t say anything about it for SCInetUSA. Also what is the plan of attack for hands?
    If unthethering is necessary, it will be done. I don't think the hand stimulator has been decided on yet. We have a rehab meeting in two weeks.

    The last thing that has to be worked out for approval is the cell processing. The FDA does not want each hospital processing the cells. (Thawing, spinning down, extracting the mononuclear cells, and preparing for injection. This make complete sense to me, way too much room for human error. We are looking for a company here in NJ that will process all the cells, and deliver them to each hospital ready to be inected.

    Quote Originally Posted by Fly_Pelican_Fly View Post
    re this lumbosacral research : still no sign of an abstract, a hypothesis, a researcher name, a poster, a paper or a grant award. But we'll take your word for it Jim.
    This is an ongoing research project for a Ph.D. thesis, not talking about it.

  10. #580
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    Quote Originally Posted by Jim View Post
    If unthethering is necessary, it will be done. I don't think the hand stimulator has been decided on yet. We have a rehab meeting in two weeks.

    The last thing that has to be worked out for approval is the cell processing. The FDA does not want each hospital processing the cells. (Thawing, spinning down, extracting the mononuclear cells, and preparing for injection. This make complete sense to me, way too much room for human error. We are looking for a company here in NJ that will process all the cells, and deliver them to each hospital ready to
    Ok. I remember you saying that y’all were going to be looking at different things for hand therapy. Didn’t know if y’all had come up with a “6-6-6” program for hands. If the subjects will be walking 6 hours there will on be a couple hours a day to work on fine motor stuff.

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