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Thread: spino cerebellar ataxia

  1. #1

    spino cerebellar ataxia

    I have been diagnosed with Spino Cerebellar Ataxia. I am unsure what type, not heridty, wondered if anyone else has this disease.

  2. #2
    Senior Member Katilea's Avatar
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    Hi

    I think theres 3 of us so far. I answered on this post, but havent had a reply yet.

    http://sci.rutgers.edu/forum/showthread.php?t=58169

    If your looking for a group specific to Ataxia, I'm also a member of Ataxia South Africa which recently moved to Yuku due to MSN groups closing. we chat on wed, thurs, and sun evenings 7pm GMT. (maybe around 2pm if you in US and about 5 hours behind)

    It's a private group so you have to apply but just say you met Kati on carecure forums and have SCA and they will let you in

    http://ataxiasouthafrica.yuku.com

    If you let me know on here whether you are going to join I'll email the group managers too and give them your name. (just to stop us getting muppets in the group who just want to disrupt chats etc)

    Many members have different types of SCA's, FA's from childhood and later onset, genetic and acquired from other causes.

    Kati

  3. #3

    Response to Kati

    I would be interested in joining. What should I do?


    Quote Originally Posted by Katilea View Post
    Hi

    I think theres 3 of us so far. I answered on this post, but havent had a reply yet.

    http://sci.rutgers.edu/forum/showthread.php?t=58169

    If your looking for a group specific to Ataxia, I'm also a member of Ataxia South Africa which recently moved to Yuku due to MSN groups closing. we chat on wed, thurs, and sun evenings 7pm GMT. (maybe around 2pm if you in US and about 5 hours behind)

    It's a private group so you have to apply but just say you met Kati on carecure forums and have SCA and they will let you in

    http://ataxiasouthafrica.yuku.com

    If you let me know on here whether you are going to join I'll email the group managers too and give them your name. (just to stop us getting muppets in the group who just want to disrupt chats etc)

    Many members have different types of SCA's, FA's from childhood and later onset, genetic and acquired from other causes.

    Kati

  4. #4
    Senior Member Katilea's Avatar
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    click on that link and sign up to join yuku if you not already a member.

    once you are try the link again and you get a box.. type in that you have SCA and you know Kati from the care cure forums.

    in meantime i will email the managers and let them know. if you want to send me a private message on here with the email address or name you would use to join and I will pass it on.

  5. #5

    spino cerebellar ataxia

    By chance, do you answer questions about spino cerebellar ataxia?

  6. #6
    Moved from Doctors & Clinics:

    What questions do you have, and who are you addressing???

    Here is another post: http://sci.rutgers.edu/forum/showthread.php?t=58169

    (KLD)

  7. #7
    The better suggestion is that you should have to consult a doctor at your area..He mite properly diagnose the problem...
    STEVE768

  8. #8
    Senior Member Katilea's Avatar
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    ASA had to close down on Yuku but there is a big international patient community on Ning called Living With Ataxia

    There are many on there with hereditary & non-hereditary SCA's, FA and CA's.

    If its non-hereditary it maybe difficult to find the cause even if your doctor is very sure it is a SCA.

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