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Thread: It All Adds Up!

  1. #11
    Moderator jody's Avatar
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    yes, my brother in law had to have his butt bones shaved off. they eventually healed with flaps. that was in the mid80's. are their no new ways to treat this? I cant recall what antibiotics he used, he had this crazy bed of sand. the sand stayed heated. he stayed in rehab, because his floors would not support the thing. I hope that you can get to healing now that you know more what is causing it. please keep us posted.

  2. #12
    Quote Originally Posted by jody View Post
    yes, my brother in law had to have his butt bones shaved off. they eventually healed with flaps. that was in the mid80's. are their no new ways to treat this? I cant recall what antibiotics he used, he had this crazy bed of sand. the sand stayed heated. he stayed in rehab, because his floors would not support the thing. I hope that you can get to healing now that you know more what is causing it. please keep us posted.
    I was on 2 different IV antibiotics, don't remember either. Bed of sand, it's called a Clinitron and that's what I used when I had my flap surgery on my sacrum. Bed stays real warm. Osteo is a hard booger to clean with antibiotics.
    C4 incomplete since 1985

  3. #13
    Wife went through an 8 week IV treatment of vancomycin to treat her osteo. She ended up getting C-Diff at the end which we found out is common when you are being treated with any heavy antibiotic for a long time. Found out AFTER that she should have been taking something to help regulate the gut flora that could have prevented that 2 week C-Diff episode (terrible time)

  4. #14
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    Hi Obie...

    Im so sorry to hear this... Don has been battling his first pressure sore... but we are winning this one so far. Its scary. My thoughts are with you...

    Sieg

  5. #15
    I just saw this thread. Damn Obie sorry to hear about yet another sore and setback I hope Bill is able to heal up relatively soon. I hope you are doing okay as well.

    Quote Originally Posted by Obieone View Post
    Anyway to make a long story short .... the AD like symtoms he's been having for over a month now, low grade temp, no appetitie on and off and general malaise were probably all signs (chalky tasting mouth is still a mystery) and of course ..... we missed it ... again ..... was it the flu?? was it depression?? he had other sores that were still healing .. was it them??? agghhh ...... it could drive you drive you crazy sorting it out and then finally when the pieces all come together it's so easy to see in hindsight !!

    Obieone
    I understand some of your frustration. I have chronic osteo in my ankle, something that wasn't clear until it flared up again when it looked like I might be finally starting to heal the area where I had flap surgery. And undid the progress I had been making. It is absolutely devastating when you think you have finally caught a break, only to get caught by something you didn't see coming. As for missing what now seem like such obvious signs, please don't beat your self up. Hindsight is always 20/20. I know that doesn't help for me to say that. But like you say, it's often like a big puzzle and sorting through the pieces isn't always that easy.

    Take care.

  6. #16
    Sorry about this Obie, how frustrating. I hope you and Bill get a break soon.

  7. #17
    Moderator Obieone's Avatar
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    Quote Originally Posted by jody View Post
    what can be done for it then? now that it is in the bone?
    We are going for a bone scan this morning then we'll know for sure just how extensive it is . I will always wonder if that osteo was there when they did the flap a couple of years ago ... lesson learned ... if you're having a flap done insist on a bone scan to rule out all signs of infection in that bone otherwise the surgery is for naught. They will probably have to shave it down because our regular doc said it feels jaggedy and rough .... the other thing that makes all this more difficult is that Bill is alergic to so many penicillin type medicines .... we have to be so careful ...

    Thanks again for the kind words everyone ...... I'll let you know how it goes .... check your skin .... check your skin ..... repeat after me ..... check your skin !!

    Obieone
    ~ Be the change you wish to see in the world ~ Mahatma Gandi


    " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
    Jane Siberry

  8. #18
    Obie, I hope the scan goes well. We're all thinking of you.
    Ugh, I've been kissed by a dog!
    Get some hot water, get some iodine ...
    -- Lucy VanPelt

  9. #19
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    How did the Dr visit ans the scan go?
    T7-8 since Feb 2005

  10. #20
    Obie, we're waiting and prayin'...

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