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Thread: Recipies for avoiding/treating sores/skin issues

  1. #31
    I have been battling a number of pressure sores above both ankles. Exacerbating these is a severe case of psoriasis that I have had for more than 30 years. Here in Dallas, we are fortunate to have a world-class psoriasis clinic and research facility. Dr. Alan Menter, who is on the science committee of the National Psoriasis Association, says that until the psoriasis on my legs is under control, there is no way for the skin sores (which are in contact with the severe psoriasis on my legs) to heal. My employed caregivers who dress these sores twice a day and see this very clearly. Whenever a chunk of psoriasis breaks off, a new sore appears.

    Dr. Menter has prescribed a biologic injectable medicine known as Humira. I get an injection every 2 weeks, and he told me to use a topical cream called Cedaphile very liberally.

    Meanwhile, my wound care doctors refuse to acknowledge any effect of the psoriasis on my sores. They are convinced it is all due to pressure, and are pressuring me into obtaining a Clintron bed, despite the fact I have produced photographs of my legs suspended by pillows in such a manner that there is no contact of my sores with any part of my air mattress bed. The surgeon keeps asking me when I'm ready to give up and have my feet amputated.

    I am in the process of humoring my doctors and ordering one of these Clintron beds for my home. Of course, there's no way that one of these behemoth, expensive monstrosities will do anything for my psoriasis.

  2. #32
    Senior Member goat's Avatar
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    Quote Originally Posted by Don D. 73 View Post
    a severe case of psoriasis ...
    There seems to be alot of buzz on the web for Serrapeptase or Bromelain relieving psoriasis.
    "Let your food be your medicine" - Hippocrates

  3. #33
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    Ok, I'm almost 6 yrs post and a walking quad, never had a prob with sores until I lost weight. Now I've been getting what I believe is the beginning of a sore at the top of my crack just from sitting at my desk at work and my wheelchair at home when I use my computer. The sore is not deep, I'm not even sure exactly how to explain it, just the top layer of skin gone and very dry. Never having dealt with these before I have no clue what to do. Do I need to see the dr? Do I treat it myself? With what? I do use a cushion in my wheelchair at home, but as I'm a walking quad they just gave me a foam one even though I have very little sensation in my bottom. What is the best way to deal with this sore before it gets even worse?

    Thanks!
    Tina
    C5-C7 Walking Quad - Very Incomplete
    Aug '03

  4. #34
    Unless you sit in a very slumped posture in your chair, pressure ulcers at the top of the crack (coccyx and sacrum) are rarely due to sitting, but much more likely to be laying down pressure ulcers...either from a too hard mattress or sitting up in bed with the head of the bed raised over 30 degrees too much. What do you sleep on? How often do you turn? Do you prone at night?

    It is best to see a wound specialist (nurse or physician) for any pressure ulcers so it can be properly assessed and the proper treated started early.

    (KLD)

  5. #35
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    I only sleep on my sides, never my back, and still wake up on my own every 2 hours to turn over. I guess I do just sit slumped down in the chair. My core muscles are still very weak and it is hard for me to hold myself up for long periods of time. This sore started while I was on vacation and sitting outside on a wrought iron patio chair without a cushion. Once I realized I had it, I started sitting on a pillow. I will call my physiatrist and see what she wants me to do. Thanks!
    Tina
    C5-C7 Walking Quad - Very Incomplete
    Aug '03

  6. #36

    good cream/ointment for moisture barrier?

    OK, pressure areas all clear. My son's now using Medline's Remedy skin protectant as a general purpose cream -- wound care nurse recommended it.

    Is there a good product to use when participating in sports? Something to act as a moisture barrier?

    Also any tips on preventing ischial sores/spots? He does the weight shifts, has a good gel cushion (got a new one for the sport chair -- that is what caused previous problems), plus he is standing quite a bit.
    Ugh, I've been kissed by a dog!
    Get some hot water, get some iodine ...
    -- Lucy VanPelt

  7. #37

    Ride Forward Cushion

    Quote Originally Posted by fullsyz View Post
    Thanks for the advice guys, I'm listening. Question....Anyone have any experience with Ride Designs Cushions?
    I use the Ride Forward and love it. I had a pressure mapping done at rehab using multiple cushions and the Ride Forward was the best. It also helps me sit up straighter. I have been using it for about 8 months and have not had any problems.

  8. #38

    Avoiding pressure sores ideas?

    I'm a C-6 quad that's roughly 17 years post injury and i've never had a pressure sore beyond a very tiny one on my butt bone that i got during a hospital stay after acid reflux surgery about 5 years ago, but it healed quickly. Since i've avoided them, this may sound like a dumb question, but is there special things i need to do as i get older to keep avoiding them?

    I ask because when i read stories on here about pressure sores gone bad, it seems like an absolutely miserable thing to go through over a long time to heal. The thing is though, i don't really know why i never get pressure sores compared to those of you who do get them?

    I got injured at age 21 and am now 38. I've always had a high metabolism, so as you can guess, i got quite skinny from being paralyzed. My butt is pretty much just skin/bones and has been for awhile. I don't sleep on some ultra expensive bed to protect my skin, just a regular mattress with one of those 50 dollars foam egg crate covers on top of the mattress. My chair cushion is a roughly 6-7 year old Invacare cushion. I do quite a bit of transfers myself, in/out of bed, in/out of cars, off/on my shower bench.

    So any idea why i never get pressure sores, but so many others do? I've always made a point to do plenty of butt lifts each day, but that's about it. My diet consists largely of, what tastes good to me. Should i be worried though that i'm nearly 40 and pressure sores likely will come if i do things as i always have? Have others been like me, paralyzed young and went a very long time with no pressure sores, but even with doing things the same, age caused pressure sores?

    Basically, many of these pressure sore stories i read on here are pretty terrifying and i obviously want no part of them. Maybe if i just keep living/doing things as i have since getting hurt, i'll continue avoiding these miserable sores, i'd simply rather be as sure as possible though. So if there are any special tricks, methods, or things that people have used to keep avoiding them or things in retrospect that folks with sores regret not doing, i'd love to hear them because i can't fathom how miserable i'd be to be bed bound for many months or even longer. I think i'd go crazy after only one week.

  9. #39
    Senior Member garyv's Avatar
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    stuck in bed

    Well I am stuck in bed with a sore on my butt reading this thread getting a lot of good info,,
    Florida heat hits me hard every few years if I dont watch out..I have a very small spot about the size if a pencil eraser , not deep or bleeding just started getting a little wet in the area. Starts off like white flaking on the skin then this one has not gone away as fast as others but I have been working out in the 90 degree heat for the last few weeks..
    I went out and got the bag balm for my other side that has no problems and started that, I also have a heat rash in and around my crotch which I have most of the time but use Nystatin cream and it calms down quick..
    ALSO last week I got a burn from a leaky coffee cup on the side of my left leg that caused a big blister , no where near my butt , but keeps me off of my left side and the spot is on my right butt cheek,,,,
    Really not used to being on my stomach most of the day..
    I have read most of the posts here and have not found what to put on a sore to heal it , mostley prevention but that is the thread name prevention.
    What do you put on the sore, keep it dry? Cover with a bandage with duo derm? A Little help please would be appreciated..
    Sorry for the mile long post but laying here with nothin to do is making me stirr crazy..
    Gary

  10. #40
    Nystop powder is good if you sweat a lot or have possible moisture issues. Your doctor prescribes it.

    If you have a rash, creamy Desitin works good to clear it up.

    If you have a open sore, Johnson & Johnson makes a product called "Prisma", it is a wafer. The wafer turns in to gel, and in turn creates skin cells. You'll be amazed how quickly it heals.

    Try to take all pressure off the wound and keep it clean.

    Always Consult a doctor first, even if you think their clueless! Just to get a professional "opinion" is best. They might suprise you.

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