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Thread: Recipies for avoiding/treating sores/skin issues

  1. #111
    This is extremely helpful. I think I am confused though.

    *Question - As a woman, I am getting heat rash on the inside of my legs. Then my groin. and redness under my breasts, ( I never thought about that.). so, powder? or Desitin cream would be better? or udderly smooth? Will the powder help better with moisture?

    I was using hydrogen peroxide and then anti-biotic ointment in a couple of areas.

    My PT is looking at the Comfort Company Vector Cushion, high profile. I guess upon the skin integrity check I was already red in the wrong areas and one hip sits higher than the other.

    My PT said 1 minute ever 10 minutes pressure relief would be excellent if I would get into that habit.

    *often I use pure lavender oil for small bug bites, scrapes etc. I am amazed how well. one tiny little drop. but I would consult a naturopath.

    *I am an avid moisture freak. I use a Dial extra dry skin/shea butter lotion, I use coconut oil mixed with a couple of drops of lavender oil, sometimes I use a vitamin E oil/cream. I use pure Aloe Vera if my legs are inflamed as it cools too. Depends on what I have in the moment. or I use what is close throughout the day. Next to the bed. side table. etc. I use it throughout the day.
    Systemic autoimmune more in the family of Lupus (if NMO and Lupus had a baby, you would have me); Art, Poetry, and the Great Outdoors; these are my passions. My motto: Paint much love, always ~ Connie

  2. #112
    I am not clear on some of your questions. Here goes for my take on these:

    Quote Originally Posted by cklovesflowers View Post
    This is extremely helpful. I think I am confused though.
    Quote Originally Posted by cklovesflowers View Post
    *Question - As a woman, I am getting heat rash on the inside of my legs. Then my groin. and redness under my breasts, ( I never thought about that.). so, powder? or Desitin cream would be better? or udderly smooth? Will the powder help better with moisture?
    For either men or women with groin or inner thigh rash, you need to determine if it is actually "heat rash" (small punctate raised rash) or a fungal rash (irregularly shaped patches that are smooth, usually). For both men and women, I strongly encourage a routine of at least once a day (twice is better) getting into a frog position without any lower body clothing on, washing the area with gentle soap and water, rinsing well, patting dry, and then staying in the frog position for about an hour. Some use a small fan or hair dryer (on cool setting) to aid in drying the area in this position. For prevention, use of something like Interdry fabric, which both wicks moisture away and inhibits the growth of bacteria and fungal with silver, can be very helpful. Fold a piece into place in skin folds (pannus, groin, under breasts, etc.) after doing the washing/drying above, and after applications of any antibiotic or fungal creams or powders.

    Quote Originally Posted by cklovesflowers View Post
    I was using hydrogen peroxide and then anti-biotic ointment in a couple of areas.
    Avoid the use of hydrogen peroxide (H202). It actually kills the good cells like fibroblasts that are trying to heal wounds, and has no real benefit. Antibiotic creams are helpful only if you have a bacteria infection (won't help with fungus).

    Quote Originally Posted by cklovesflowers View Post
    My PT is looking at the Comfort Company Vector Cushion, high profile. I guess upon the skin integrity check I was already red in the wrong areas and one hip sits higher than the other.
    Did you have computerized interface pressure studies done on a variety of cushions? This is a much more accurate way to determine which cushion provides you the best pressure reduction. Also, that cushion does not really do a good job of either heat or moisture dissipation, which can be factors in both rashes and pressure injuries.

    Quote Originally Posted by cklovesflowers View Post
    My PT said 1 minute ever 10 minutes pressure relief would be excellent if I would get into that habit.
    That is a good recommendation. What method are you using? How are you developing that habit?

    Quote Originally Posted by cklovesflowers View Post
    *often I use pure lavender oil for small bug bites, scrapes etc. I am amazed how well. one tiny little drop. but I would consult a naturopath.
    I would not recommend this for pressure injuries.

    Quote Originally Posted by cklovesflowers View Post
    *I am an avid moisture freak. I use a Dial extra dry skin/shea butter lotion, I use coconut oil mixed with a couple of drops of lavender oil, sometimes I use a vitamin E oil/cream. I use pure Aloe Vera if my legs are inflamed as it cools too. Depends on what I have in the moment. or I use what is close throughout the day. Next to the bed. side table. etc. I use it throughout the day.
    It is good to keep skin moisturized, but don't overdo it. This can lead to moisture related skin breakdown.

    (KLD)

  3. #113
    avalon patches and reganerex will get rid of any sore. Dealt with one for 6 months last summer and just fixed one this week right on tailbone.
    The one last summer I went to wound clinic and they always wanted me to keep it "moist" well that didn't work to well, stinky and took FOREVER....did my own thing, regenerax and avalon and it was gone. Have had 3 in the 6 yrs I've been hurt and there's nothing worse then laying around doing nothing, drives me F'ING NUTS

  4. #114
    thank you. KLD,

    1) its heat rash. but that is very good information I am going to put into memory.

    2) I will stop using Hydrogen peroxide, I had no idea. I was using the antibiotic ointment in case kind of thing.

    4) . never thought of the overdo on lotion.

    5) The vector cushion. hmm. and no, I am just beginning this journey. Don't know if that is something we will do???? or if I have to ask. This is one cushion he said, and they happened to have one there at the place and I had seen it online. low maintenance. Interesting about no heat dissipation. That is a concern. I will ask about the mapping. and other cushions.

    6) About the 1 min every 10 - I am not able to hold myself up for one minute by my arms. I am using combination of holding myself a few seconds. but mostly scouching (is that a word) side to side. does that make sense? so one side gets relief then another. counting in my head. Right now I tend to sit in a side swept position I am told? So I have to work to get relief off the side that get a lot more of pressure. My new chair with a proper cushion and back will help me be in a better position/posture etc. My PT said. Honestly, developing the habit is a great question. All of it is. At the moment, just attempting to notice time although I thought I might set an alarm on my phone. I set alarms for everything else. Meds, empty bladder, etc. So, why not add pressure relief to the mix.

    7)So, simply washing and air dry. and the special fabric. makes sense. thanks.

    Things to write down for my next Dr. appt.

    C
    Systemic autoimmune more in the family of Lupus (if NMO and Lupus had a baby, you would have me); Art, Poetry, and the Great Outdoors; these are my passions. My motto: Paint much love, always ~ Connie

  5. #115
    A side-to-side weight shift can be effective. Just be sure to have someone spot you when learning the position to be sure that you clear your ischium completely on each side, and hold for 1 min. on each side if possible. Most people who do push up weight shifts only hold them for 15 seconds, which is fine if you do them at least every 15 minutes.

    You have to learn to be your own advocate. Tell the PT who is fitting you for the cushion that you want to have interface pressure studies done on several different cushions. If they are really expert in SCI/D seating, they should have advised this from the beginning.

    (KLD)

  6. #116
    Quote Originally Posted by Ajstevens View Post
    avalon patches and reganerex will get rid of any sore. Dealt with one for 6 months last summer and just fixed one this week right on tailbone.
    The one last summer I went to wound clinic and they always wanted me to keep it "moist" well that didn't work to well, stinky and took FOREVER....did my own thing, regenerax and avalon and it was gone. Have had 3 in the 6 yrs I've been hurt and there's nothing worse then laying around doing nothing, drives me F'ING NUTS
    For pressure injuries (not rashes) the wound does need to be kept moist, not wet. Regenerex is a stem cell therapy and very expensive, and requires a prescription. Not sure what you are referring to re: "avalon". Perhaps you mean ALLEVYN foam dressing?

    (KLD)

  7. #117
    Quote Originally Posted by SCI-Nurse View Post
    For pressure injuries (not rashes) the wound does need to be kept moist, not wet. Regenerex is a stem cell therapy and very expensive, and requires a prescription. Not sure what you are referring to re: "avalon". Perhaps you mean ALLEVYN foam dressing?

    (KLD)
    Yes, those. Thanks. That has been my best to cure a sore. Also you agree for pressure injuries it is better to keep moist ? I just couldn't get it to heal while staying moist. Seemed to stay at damn near a stand still. My insurance covers regenerex. Dr's fight for it thank god

  8. #118
    Fibroblasts (the cells that fill in an open pressure injury) are killed by drying, so if you keep the wound dry all the time, and uncovered, it will inhibit the growth of fibroblasts.

    (KLD)

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