Page 1 of 2 12 LastLast
Results 1 to 10 of 12

Thread: Walking Para getting worse

  1. #1

    Walking Para getting worse

    Hello! Long time no see (lol) everyone!

    I am a T12 walking para... pretty much had an unexpected complete recovery... went months walking with very few problems, bowel and bladder returned to almost normal, and only had slight problems with my lower left leg but nothing noticeable until you did a neuro exam.

    Well.... over the last, hmmm 4-6 weeks I have gotten progressively worse. Intermittent numbess in both legs, foot drop on left leg, and even temporary weakness throughout both legs causing me to fall... I have had some bladder control problems as well. I see my neurosurgeon on Monday... my primary doctor looked at a recent MRI who thinks it is from a an L4 herniated disk that was their on my orginal MRI from my injury but has gotten slightly worse throughout each MRI they have taken.

    Now, the only change in the last two months has been I have not been working out. I think this is why I am getting worse. I was working out 3-5 times a weeks in the gym, 2 of they days with a trainer.

    I would like any opinions anyone might have. It would be a bummer, to end up back in the wheelchair.

  2. #2
    You need to see that neurosurgeon. Monday - good 2 days away. You may need something surgical to preserve that precious nervous function. Unfortunately, the spinal segments above and below your fusion have to do double duty of work and can get damaged.
    This happened to me but presented with pain and fortunately no neurologic impairment. I hope that your neurosurgeon can see what is wrong and offer a solution.
    Jon
    Last edited by arndog; 12-20-2008 at 08:51 PM. Reason: wrong words

  3. #3
    I am very worried for you fourstepfarm.

    You have made such incredible strides and improvement after a a serious injury, and your symptoms and new deficits are very very very concerning for something pressing on either your spinal cord or roots.

    Please take it easy this weekend and be sure to have someone with you at all times (or closely reachable by phone) in case things progress and you need to go to the ER for a rapid assessment. Do not exercise this weekend and do things that could exacerbate a potential unstable disc, if that's what this could be. I am glad you see a neurosurgeon on monday. Do not leave there without a careful neurologic examination and a plan you are happy with.

    Your symptoms are not consistent with someone who just hasn't been exercising for the last 1-2 months. Of course, your bladder would never change just from not exercising. That's a nerve problem.

    Take care, and let us know you are ok.

  4. #4
    Senior Member Evonne's Avatar
    Join Date
    Aug 2008
    Location
    Central California/ (the Republican side :)
    Posts
    1,105
    I worked out pretty hard for about 1 yr PO....then as my work load increased in my full-time job it became harder and harder to get to the gym. I am a walkin quad. I would say my walkin was ok....had a limp and most people thought i hurt my leg. After just 2 months of not workin out....i was walkin around all day at work but what i mean is intensive gym/PT workouts I started to go down hill. My rt. weaker leg began to drag and i was walkin very unsteady n wobbly. I was also tired all the time and my nerve pain increased. I just started back to PT & OT 3 times a wk for 3 hrs a day....about 3 wks ago. I am finally gettin stronger again. I'm not sure about your situation i am just tellin u what i noticed about me, good luck n keep us posted

    Evonne
    I have a spinal cord injury...a spinal cord injury DOES NOT have me!

    walking quad-Central Cord Syndrome

  5. #5
    Well I guess Monday with tell us more. I hope that this doesn't mean something worse that what I am thinking.

  6. #6
    Hey 4stepfarm,
    What did the neurosurgeon say?
    jon

  7. #7
    4 step was the recent mri done when the new loss of strength. foot drop/bladder occur ed ?
    depending on how you were fixed , it doesn't take a whole let to mess things up.
    i Am not fused, and i have had 2 discemoties /laminectomy about 5 years apart one at l4/l5 and than again at l4/l5 -l5 s1 . both were emergency type so they didnt fuse because they figured the added trauma of the fusion time on table would probably cause more neurogenic loss.
    i have unstable spine /bone on bone sometimes/ stenosis
    which causes problems whenever i do anything .
    since i also have pretty bad herniated discs above my level of injuries, l2.l3. l4 , they also manifest themselves with weakness/numbness/tripping when i do something that puts to much pressure on those segment's.
    in order to try an fix they would have to fuse from l1 to s1, and two good surgeons said i would come off the table probably with less use and the same pain. only if there was a serious loss would they consider it, and even then the risk may not be worth it . i am walking pretty good, IMO
    cauda equina

  8. #8
    The neuro was very concerned but did not seem surprised. In his eyes I was a walking mystery since I am "walking" anyways...so I think I am less of a mystery to him now that I am having issues...

    I had 4 MRI's done, 2 yesterday and 2 today. I see him on Monday to get the verdict. His thought was either it has to do with my old injury and surgical intervention might be needed (I am not fused either) or he thinks its MS. Those were his first two guesses. i have other signs of MS as well such as one pupil smaller than the other, tingling in my arms sometimes, ect.

    I honestly still think he won't find any sort of MS and that its because I haven't been working out...but his concern, worries me. I have my MRI on disk with me now, but as much as I try and read it, lol, I can't.

    I will update on Monday.

  9. #9
    The neuro was very concerned but did not seem surprised. In his eyes I was a walking mystery since I am "walking" anyways...so I think I am less of a mystery to him now that I am having issues...

    I had 4 MRI's done, 2 yesterday and 2 today. I see him on Monday to get the verdict. His thought was either it has to do with my old injury and surgical intervention might be needed (I am not fused either) or he thinks its MS. Those were his first two guesses. i have other signs of MS as well such as one pupil smaller than the other, tingling in my arms sometimes, ect.

    I honestly still think he won't find any sort of MS and that its because I haven't been working out...but his concern, worries me. I have my MRI on disk with me now, but as much as I try and read it, lol, I can't.

    I will update on Monday.

  10. #10
    Thanks for the update. I'm hoping that means your symptoms haven't gotten dramatically worse.

    It is good to hear that your Neurosurgeon is appropriately concerned, and that he is being aggressive about thinking about the causes (ex. doing the necessary MRIs and seeing you back quickly). Also, some surgeons don't think as broadly about considering alternative diagnoses (like MS), so it's also good that he is being open minded. If he is seriously wondering about this diagnosis, ask him to refer you ASAP for a second opinion with the best neurologist he knows - hopefully someone who is an MS specialist in an academic hospital/university department. Of course, an L4 herniated disc would not be causing tingling in your arms, or changes in your pupils - so either you have something else going on or problems in more then one place.

    If he is considering MS, I am hoping that means he is doing MRI's of your brain as well as your upper spine. If they are at all abnormal, you should have a spinal tap (lumbar puncture) as well, as well as several blood tests. These would be done by a Neurologist, not a neurosurgeon, most likely.

    Yeah, those MRIs certainly look like some sort of alien creature, don't they? Impossible to make any sense of them without someone walking you through them.... But ask your doctor on monday to specifically show you/teach you where your problems are on your MRIs for the heck of it. It's always best that you know yourself (and your xrays!) better then anyone.

    take care.

Similar Threads

  1. Locomotor training for walking after spinal cord injury.
    By wildwilly in forum SCI (Clinical) Research
    Replies: 0
    Last Post: 11-21-2008, 06:49 PM
  2. Replies: 10
    Last Post: 04-15-2005, 08:11 PM
  3. Replies: 3
    Last Post: 01-10-2002, 11:12 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •