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Thread: Folks with MS (or possible MS)...a bit of a rant

  1. #11
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    Quote Originally Posted by woman from Europe View Post
    And I have been checked for MS three times since 2002.
    Where?

  2. #12
    If you ask me, it was the nevrologic section at Ullevål. They are the specialist of MS in Oslo. They say no spots, too strong arms so no MS. I took a lot of other test too, EMG, EEG, MR, CT and so on and did not show any signs of it.
    TH 12, 43 years post

  3. #13
    And with MS you don't show any lack of sensation.
    TH 12, 43 years post

  4. #14
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    Quote Originally Posted by woman from Europe View Post
    If you ask me, it was the nevrologic section at Ullevål. They are the specialist of MS in Oslo. They say no spots, too strong arms so no MS. I took a lot of other test too, EMG, EEG, MR, CT and so on and did not show any signs of it.
    The other two places then.

  5. #15
    LOL, same place. I belong to Ullevål. I did it in 2002, 2004 and 2006. I got a physician referrel in 2000 and waited for 8 months to come inside for the tests, The tests took 2 years and I was finished first time in 2002. Still they did not believe it because they knew nothing about SCI and aging so they started again 2 years later. Then in 2006 they let me stay in the hospital for two weeks and I took the tests again.

    They know a lot about MS there, but nothing about SCI.
    TH 12, 43 years post

  6. #16
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    I don’t follow you (same place etc),. Do you have MS SCI?

  7. #17
    Quote Originally Posted by Leif View Post
    I don’t follow you (same place etc),. Do you have MS SCI?
    Leif, are you baiting WFE? I don't know what your comments are contributing to the thread.
    "The truth will set you free. But first, it will piss you off." -Gloria Steinem

  8. #18
    Danine,
    MS for almost 28 years for me. Not on any meds right now but finished 13 months of IV Steroids last year. I'm not sure what the future will bring but I'm not giving in.

  9. #19
    No , I don't, the neurologist said no all the times even if I didn't take the lumbar puncture. For them SCI is a stable injury, it never changes so if it changes and you loose function, they still believe you have another neurologic desease. So they tried to find out that I had MS because that was the solution they wanted. But they did not find any signs even if they tried hard. You know that story.

    Last year I had an appointment on Rikshospitalet, one neurologist looked at my MR, said he was going to discuss it with the other neurolgist and neurosergeons because he understood something was wrong and I have not heard a word after
    TH 12, 43 years post

  10. #20
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    Quote Originally Posted by Danine View Post
    Leif, are you baiting WFE? I don't know what your comments are contributing to the thread.
    Not sure, trying to find out of ms/sci ppl maybe.

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