Results 1 to 3 of 3

Thread: Rerouting nerves to help spina bifida

  1. #1

    Rerouting nerves to help spina bifida

    Rerouting nerves to help spina bifida

    Families line up for chance to improve bladder control in young patients

    Associated Press
    Monday, November 24, 2008

    WASHINGTON — It's a delicate and daring experiment: Could doctors switch a leg nerve to make it operate the bladder instead?

    Families of a few U.S. children whose spina bifida robs them of the bladder control that most people take for granted dared to try the procedure. And early results suggest the surgery indeed may help, in at least some patients.

    With the technique, pioneered in China, the kids are supposed to scratch or pinch their thigh to signal the bladder to empty every few hours. But surprisingly, some youngsters instead are starting to feel those need-to-go sensations that their birth defect had always prevented.

    "It feels like this little chill kind of thing in me," marvels 9-year-old Billy Kraser of Scranton, Pa.

    "When he goes in there and he's dry and he's clean, it's such a triumph," adds his mother, Janice Kraser. "I'll hear him going, 'Yesss!' "

    The U.S. pilot study consists of just nine spina bifida patients and still is tracking how they fare, as no one is finished healing yet. But already desperate families are lining up for a chance at this nerve rerouting, even as William Beaumont Hospital in Royal Oak, Mich., is trying to raise money to expand the study and provide better evidence.

    "If it works, it'll be a huge improvement in the management of patients with spina bifida," says Dr. Kenneth Peters, Beaumont's urology chairman, who has a waiting list of nearly 100 would-be patients.

    But "it's imperative that we prove whether this works or not" before accepting all-comers, he stresses. "I have many patients who would pay cash and have it done. I refuse to do that."

    Spina bifida occurs when the spinal column fails to close properly. It's a birth defect that affects about 1,300 babies a year, with varying degrees of leg paralysis and other problems.


  2. #2

  3. #3
    Senior Member Leo's Avatar
    Join Date
    Jul 2001
    Yankton, South Dakota
    hi jb3822,

    i think it's Dr. Chuan-Gao Xiao

    dr. xiao was kind enough to reply to me and according to him the results are quite good and they are improving the procedure as we speak.

    the doc in article i am sure is moving as fast as possible

    i asked dr. xiao about sci and i know little about spina bifida

    hope this helps

    Quote Originally Posted by jb3822 View Post
    Last edited by Leo; 12-01-2008 at 12:29 PM. Reason: correction

    2010 SCINet Clinical Trial Support Squad Member

    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

Similar Threads

  1. Healthy Eating Reduces The Chance Of Spina Bifida
    By golanbenoni in forum Health & Science News
    Replies: 0
    Last Post: 10-17-2004, 12:16 PM
  2. Spina bifida: new clue may lead to cure
    By Leo in forum Health & Science News
    Replies: 0
    Last Post: 11-11-2003, 03:11 PM
  3. Replies: 0
    Last Post: 09-26-2003, 10:44 AM
  4. TRICARE Allows Expectant Mothers to Participate in Spina Bifida Study
    By antiquity in forum Health & Science News
    Replies: 0
    Last Post: 01-31-2003, 10:27 AM
  5. Strides against spina bifida
    By Max in forum Life
    Replies: 0
    Last Post: 09-29-2002, 09:03 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts