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Thread: Anyone use the peristeen anal irrigation by coloplast?

  1. #31
    That's great news. I'll contact Sharp today.

    Last week, I met with Dt. bard Cosmann about a colostomy. I'm still scared to make this big step. I'm also addressing some other bowel issues that I'd like to clear up first. He said he would be totally supportive of me trying the Peristeen as another option.

  2. #32
    FYI: New Mobitity Article on Peristeen April 2014 by Bob Vogel
    http://www.newmobility.com/2014/04/p...el-management/

  3. #33

    Coloplast Peristeen

    I tried six months to get the Coloplast Peristeen system as I am a SCI patient with neurogenic bowel and bladder. You must go through Coloplast training before you can get this system and use it. The only problem is there are only a few private doctors and nurses trained on this and they all want you to become their patient before they will train you. Then you must follow up with them every month. I do not know about the rest of you but I already have too many specialist who want to see me routinely. Living on Social Security Disability does not leave a lot of money to see all these specialist every month. All the doctors and neurosurgeons have already told me my bowels have little to no mobility because of my SCI. The CT scans confirm the digestive system is backed up. The Peristeen system is as easy to use a a catheter and they have a training video online. My wife has been an ER nurse for 21 years, is a trainer, chart reviewer, and on the clinical ladder. She has a PHD in nursing education and teaches nursing at a local University as well as proctors nurses on their hospital rotations. They will not let her train me. I also have a RN who comes to visit me every day to change wound bandage and they will not let her train me either.

    So first you have to get insurance approved (no company on my insurance carried this item and my insurance had to ask one to pick it up so I could get it or so I thought), second find a supplier, and third find a trainer, The trainers are very few and far between. They found 2 in South Florida, none will come to me and went I tried to go to them i was told " you have to be a patient of the doctor for several months before we will even consider the Coloplast Peristeen system and you must follow up monthly with the doctor." The doctor is not in my area and is not on my insurance so after six months I gave up on Coloplast. The good news is for about $50.00 US you can make your own Peristeen system off Amazon. Buy a silicon enema bag about $36, a bulb squeeze tube with one way valve for $12, and EZEM 5250 anal balloon catheter almost exactly like the Peristeen, just not disposable) it uses a pouch inflator for the catheter balloon.

    If enough people make their own system maybe Coloplast will learn their lesson. If they insist on training have their own nurses who go to the patient like most other medical companies.

    I URGE EVERYONE TO BOYCOTT COLOPLAST UNTIL SUCH TIME AS THEY START PUTTING PATIENTS FIRST!!!

  4. #34
    The rules on this were set by the FDA, as a condition of approval of the Peristeen system as a medical device, so this ponderous system was not set up by Coloplast; in fact they fought it every step of the way. Perhaps they should try again with the new administration which is heavily defunding the FDA along with other consumer protection agencies.

    (KLD)

  5. #35

    Coloplast peristeen training impossible to find

    Coloplast should have put their own nurses in the field to train the patient and local doctors, nurses, specialty groups until all areas were flooded with qualified trainers in multiple specialties and insurance programs. The peristeen system is like dangling a carrot in front of a horse. You want/ need it but can never get it. From everything I have seen and tried Coloplast just does not care about the patient. They are a typical corporation caring only about the money.




    QUOTE=SCI-Nurse;1828666]The rules on this were set by the FDA, as a condition of approval of the Peristeen system as a medical device, so this ponderous system was not set up by Coloplast; in fact they fought it every step of the way. Perhaps they should try again with the new administration which is heavily defunding the FDA along with other consumer protection agencies.

    (KLD)[/QUOTE]

  6. #36
    Quote Originally Posted by dellis View Post
    I tried six months to get the Coloplast Peristeen system as I am a SCI patient with neurogenic bowel and bladder. You must go through Coloplast training before you can get this system and use it. The only problem is there are only a few private doctors and nurses trained on this and they all want you to become their patient before they will train you. Then you must follow up with them every month. I do not know about the rest of you but I already have too many specialist who want to see me routinely. Living on Social Security Disability does not leave a lot of money to see all these specialist every month. All the doctors and neurosurgeons have already told me my bowels have little to no mobility because of my SCI. The CT scans confirm the digestive system is backed up. The Peristeen system is as easy to use a a catheter and they have a training video online. My wife has been an ER nurse for 21 years, is a trainer, chart reviewer, and on the clinical ladder. She has a PHD in nursing education and teaches nursing at a local University as well as proctors nurses on their hospital rotations. They will not let her train me. I also have a RN who comes to visit me every day to change wound bandage and they will not let her train me either.

    So first you have to get insurance approved (no company on my insurance carried this item and my insurance had to ask one to pick it up so I could get it or so I thought), second find a supplier, and third find a trainer, The trainers are very few and far between. They found 2 in South Florida, none will come to me and went I tried to go to them i was told " you have to be a patient of the doctor for several months before we will even consider the Coloplast Peristeen system and you must follow up monthly with the doctor." The doctor is not in my area and is not on my insurance so after six months I gave up on Coloplast. The good news is for about $50.00 US you can make your own Peristeen system off Amazon. Buy a silicon enema bag about $36, a bulb squeeze tube with one way valve for $12, and EZEM 5250 anal balloon catheter almost exactly like the Peristeen, just not disposable) it uses a pouch inflator for the catheter balloon.

    If enough people make their own system maybe Coloplast will learn their lesson. If they insist on training have their own nurses who go to the patient like most other medical companies.

    I URGE EVERYONE TO BOYCOTT COLOPLAST UNTIL SUCH TIME AS THEY START PUTTING PATIENTS FIRST!!!

    Thank you very much for posting this. I am truly stunned to hear about your situation. So frustrating.

    We we have been reaching out to a nurse to train my father since December. She is the only RN in our area trained on the device, is very difficult to reach, and has very little availability. She has already cancelled my Dad's first appointment with her twice. Getting ready to give up.

    As if having a SCI isn't enough.......

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