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Thread: I probably shouldn't be here...but if anyone can help me...

  1. #21
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    I would also like to add that the Nuerologist said that because he felt my leg (at THAT time) he didn't feel coldness..I get in a hot shower however...and my legs are frozen..they feel no heat when I touch them...it's hard to explain...but my warm hands feel ice cold legs - no matter how long in a hot shower.

  2. #22
    How about seeing a chiropractor? Get a consult from your GP Maybe?

  3. #23
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    I did go to a chiropractor...at $45 dollars a shot 3 times a week. It had no affect. In fact...she tried to crack a certain joint in my back and it didn't work..so she said...let's try this again...so she did...there was no cacking noise with her manouever and she simply said "excellent" and sent me on my way.

    That is when I quit the chiropractor. Seemed like bullshit to me that I couldn't afford.

  4. #24
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    I know my problem may seem contrite to most of you..but I am digressing and scared...forgive me if I search for an answer...here...there...and everywhere.

  5. #25
    Your first description of a vision issue then motor skill/sensory issues developed.

    You may have had a mini stroke.
    Last edited by Rbrauer; 10-17-2008 at 08:58 AM. Reason: Was already posted you've seen a neurologists..
    Rick Brauer or just call me - Mr B

    http://www.riseadventures.org

  6. #26
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    At the time my eyes started closing in with a white light... I thoughtI actually was going to die...going to the white light and all...was getting ready to go to work...this delayed me for half an hour...scared me ...realized how fragile life was. But someone at work said she had the same thing and said her doctor said it was an occular migraine seen in women experiencing menopause...so I accepted that.

  7. #27
    Super Moderator Sue Pendleton's Avatar
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    Quote Originally Posted by Rbrauer View Post
    Your first description of a vision issue then motor skill/sensory issues developed.

    You may have had a mini stroke.
    I was thinking the same. A possible stroke of the brain stem which effects both sides. Did your MRI cover your skull also? Have you had a lumbar puncture? And with the cold and pain...any time with a vascular surgeon or vascular specialist? PAD can make for freezing legs and over time effect nerves. Like lack of blood flow can cause foot drop. Then the lack of blood flow can move further up the legs. There is a simple test for PAD your GP can do. Have you had a second opinion on your lumbar spine MRI?
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  8. #28
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    This all began in June 2007. I waited until January 2008 to see a referred Vascular Surgeon. He came in the room tested my pulse areas and said I was too young to be there. No other tests. Waited another 4 months to see an internist who basically feels everything is psychosimatic and had students with him at the time to try and justify his reasons for ailments as being internally manifested....he sent me for blood tests...and when I returned for the results said I would never die of a heart attack (I rarely eat meat). Waited another horrible 5 months to see the neurologist who said I had "unknown" neuropathy....and has been giving me drugs that have no effect. Lyrica - no effect. Gabapentin - no effect. Amitrypiline - no effect. 4 Doctors have looked at the spine MRI and said this shouldn't be causing my problem. I see my GP on Monday as I was thinking perhaps it is all related to my knee - which I have had a problem with since my teens. It feels swollen and gives out a lot lately. I am going to ask for an MRI and Xray...but really...at this point I am thinking I am a pain in their ass. Meanwhile nothing they give me works...and I wonder why they give meds but couldn't care less about the cause. How can one say it's neuropathy of an unknown cause and just dish out chemicals? It's all too bizarre. I have been trying to find out what is wrong with me on my own. Neuropathy has certain symptoms and from what I have read I really am not fitting the description. When I asked the neurologist if he had ever had someone there who experienced painful freezing sensation he said - well yes - that is worse than the burning sensation. Here - take this. Numbness came to me 14 months after my initial complaint of freezing calves and feet which leads me to believe...things are getting worse....and damage is being caused. My quality of life is dwindling as I can not sit for long nor stand for long. I went for a very long walk today...and it doesn't matter anymore...the freezing is always there now no matter what I do..even while trying to sleep...I think I walk funny now...not just a limp...maybe I am protecting my leg..because I never know if my legs will function the way they used to..the numbness and all...I trip for no reason....or the knee gives out.
    Thanks for responding...I appreciate any advice/insight I can get.

  9. #29
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    A possible stroke of the brain stem which effects both sides. Did your MRI cover your skull also? Have you had a lumbar puncture?

    The answer to those would be no. What is a lumbar puncture?

  10. #30
    Super Moderator Sue Pendleton's Avatar
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    A lumbar puncture is also called a spinal tap. While MRIs see physical changes such as plaque in the brain or spinal cord indicating MS or other problems a lp is a sample of cerebral spinal fluid that shows bacteria, blood or viruses in the fluid that would indicate an infection like encephalitis, guillame barre syndrome, etc. Not that those would be likely. The puncture is normally not very painful. You're given a local in your lower back and then while you lie curled on your side a needle is inserted to withdraw a small amount of fluid. The couple days after can be very painful as the fluid needs to replace itself. Laying flat on your back and icing the neck helps. Pain meds do not.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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