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Thread: Glimmer of hope :)

  1. #11
    Glad things are improving SoulMate -

  2. #12
    We went to the new physiatrist yesterday! I like him. ((((((THANKS MARILYN))))))
    He is a really good listener and helped my bf stay focused on what needs taking care of as part of the whole picture and his recovery. He sat and drew us pictures to explain stuff. The bf will be seeing 3 different specialists who are al affiliated with the same group and all familiar with SCI! God, I feel kind of 'polly-anna' getting this excited.
    It's just been so hard for me to get my bf interested in learning anything about what has happened to him and what continues to happen to him. Plus, no matter what I find out, I don't have the credibility I need to assure him that what I'm telling him is accurate. Oh, I am hoping this gets things going in the direction of imporvement!
    My bf really likes the doctor too. He doesn't trust too easily, and he felt really good about the visit. He was quite open and shared a lot about the physical, as well as the mental distress SCI has brought him. I was impressed.
    Like I said, Oh, I am hopeful!
    He has so much going for him and he just needs a good solid group to point him in the right direction.
    I'll keep yo posted!
    Thanks again,
    SoulMate

    We are all faced with a series of great opportunities... Brilliantly disguised as impossible situations.

  3. #13
    Soulmate - It's so good to feel your excitement through your posts! I'm happy for you and the bf!

    One tiny word of caution, tho - learned thru experience with my son - don't come across too, too 'gung-ho' - let him take it at his own pace; be supportive, be enthusiastic - remember, you've led the horse to drink, he's starting to take sips - don't make him gulp down the whole trough at once, lol!

    Lots and lots of luck! Jackie

    _____________
    If we have no peace, it is because we have forgotten that we belong to each other. - Mother Teresa

  4. #14
    Marmalady-
    I will heed your caution as best I can. It's gonna be hard but, I know you are absolutely right. I'm goint to have to be patient some more and let him take the reigns on this. After all, it is his injury, his body, his situation. I really am soooo excited to see him interested.

    We are all faced with a series of great opportunities... Brilliantly disguised as impossible situations.

  5. #15
    I am so happy for you to finally find a good set of doctors and to feel comfortable with them. When we first moved in together, he had moved from a different area and had to find all new doctors and most of them had no clue about SCI or anything having to do with it. We spent a lot of time in the ER because of it.

    There were docs he felt ok with, but I didnt because they had no clue...finally he realized that he needed to look into his situation a little closer and find some good docs, so I can totally relate to the feeling of relief and excitement when you find a wonderful doc who makes you and your boyfriend feel comfortable and who also knows his stuff. Thats great!!!

    I am so happy for you and your boyfriend.

    Scarlett

  6. #16
    Way to go SoulMate -

  7. #17
    Moderator Obieone's Avatar
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    It sure is nice when something kind of works out for someone around here!!!!! Right on SoulMate !!! Since sharing information is at the heart and soul of CareCure ..... it's nice to see it's doing its job ....... Wise would be pleased!!

    Obieone

  8. #18
    I swear! We have had one of the most wonderful weeks! The bf quite all the various laxatives and committed to using the miralax only for at least 2 weeks. His body sure calmed down. He is actually getting to spend time OUT of the bathroom! I suspected he was over doing the lax but, sometimes you just gotta shut up and let them figure it out for themselves. Right marm

    He starts OT and PT this Tuesday May 5th at the rehab medicine group. He even said something about getting back to work. So, it's not only me feeling like we're better! It's just soo nice to look at his face and see the man who is facinated, passionate, and playful about living again! I feel giddy. I'm sure you guys know what I mean. I guess the plus side of this SCI shit is, when I see him feel good, and he's able to participate in his own life instead of the pain, it's like getting to fall in love with him all over again.
    I realize things will be up and then down and back and forth but, MAAANNNN, up is good!
    cheers,
    SoulMate

    We are all faced with a series of great opportunities... Brilliantly disguised as impossible situations.

  9. #19
    We went to see 'the team' on Tuesday. I am impressed! I didn't think I would have to be there but, we spent most of the day at the hospital answering questions between the strength tests and evaluations. Everyone kept saying "I can't believe how well he's doing! And, he's had no nero rehab until now?" It was hard for us to understand what they meant until they started their analysis of his physical/mental state. WOW. Please, please, please other caregivers......... If you don't have a physiatrist or a rehab medical group of doctors for your injured one, find some!
    The bf is still reluctant to want to hear anything about his injury but, he's willint to go to the appointments and will sort thru his feelings with the psychologist.
    great big sigh of releif.........
    Thank god for this site!
    Thank god for you people!
    hugs,
    SoulMate

    We are all faced with a series of great opportunities... Brilliantly disguised as impossible situations.

  10. #20
    Soulmate, I'm so glad you're finally seeing some of the light at the end of the tunnel.

    Jackie

    _____________
    If we have no peace, it is because we have forgotten that we belong to each other. - Mother Teresa

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