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Thread: So, When Are You Gonna Get Out Of That Chair For Good?

  1. #11
    My alcoholic brother used to ask me every visit, about my forearm crutches. Not sure he ever saw me in my chair (I'm in it fulltime now.) He was brilliant before he sacrificed all those brain cells.

  2. #12
    Senior Member
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    What Rfbdorf said in #5.

    Copy an illustrated view of a spinal cord with abbreviated limbs and and arrows pointing to six or seven key vertebra with color coded spine sections and descriptions of resultant motor and sensory loses and your own injury arrow drawn in with "My injury a complete break (or variant).

    Make up a few hundred and always carry a dozen or so when out in public. Distribute as indicated and with an earnest expression and tone tell the person that the sheet will answer all their questions and if they're still having doubts after reading it they may be able to catch you on isle seven; or at Starbucks; or waiting for the bus on Main. You'll have gone 'above and beyond' on answering their questions and you'll rarely have to deal with any followup; at least not in the same vein.
    "The world will not perish for want of wonders but for want of wonder."
    J.B.S.Haldane

  3. #13
    Senior Member Buffie's Avatar
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    Quote Originally Posted by Mona~on~wheels




    I'll get out of this chair when God calls me home.


    Although I continue to hope that I will wake up and walk, I am with you Mona.
    I use to get upset when people ask me questions like that, but now I smile and just answer, "soon I hope" and let it go at that. There's no point in me getting upset by a question that I wouldn't think twice about if I was ablebodied with say a broken leg. It takes too much of my energy to get upset about questions asked out of the lack of knowing.

  4. #14
    I wish... someday...

  5. #15
    Thanks to all who have responded. It's interesting to get some different perspectives on this. As you can see, I'm still struggling with a lot of identity issues because of having to deal with living in limbo.

  6. #16
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    I probably wouldn't have been able to say it, but I would have wanted to reply that I would be out of the chair as soon as I could be, but it certainly didn't make me feel great to be asked as though I was the slow kid in class.

    Funny story, somewhat related. I took my van for its annual inspection sticker yesterday. The emergency brake has a hand lever on it as part of the conversion controls, but the truth is that I can no more push that sucker down than I can do fine finger movements. I never use it, and it just sits there between inspections. The inspector asked me to put the emergency brake on and then put it in drive. Now in theory the car is not supposed to move, IF the brake is really down. It started crawling forward and I finally told the guy I didn't have the strength to depress it. He pushed it down and the car didn't move at all now in drive. Then he starts telling me I really should be lifting weights or something to build up my left arm so I can push this down, emphasizing the muscle building over and over. I didn't have the heart to explain to him I'm a quad, so I just laughed and said it was a good thing I didn't live in mountainous regions because I never had to use it here.

  7. #17
    Quote Originally Posted by Eileen
    The emergency brake has a hand lever on it as part of the conversion controls, but the truth is that I can no more push that sucker down than I can do fine finger movements.
    I had to chuckle when I read this. Doesn't it suck that they can get by with expecting folks to use this silly little modification. I have good upper body strength and good hand control, but I can't even begin to operate that thing either. I think most AB people couldn't manage it, yet it's a matter of lifting weights for us

  8. #18
    I used to walk with forearm crutches too. I'd even go to the mall and walk that way. Now my shoulders are wore out. USE THE CHAIR!!!!! And to hell with the stupid assholes who ask the stupid questions. USE THE CHAIR!!!! I wish I'd gone to the chair sooner! I can't sleep some nights because my shoulders hurt. USE THE CHAIR!!!! I'm 25 years post. PLEASE use the chair. Yes, it's OK to exercise, but don't go crazy thinking being on your legs all the time is good because it isn't.

  9. #19
    Thanks for your comments, Parashooter. I guess it's easy for us to injure ourselves by falling prey to the ableism that's all around us. Aching shoulders are definately a side effect of using the crutches; and being upright for extended periods of time causes lots of extra pain in the back, legs, and feet as well.

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