Thread: Kate's On Line Journal

  1. #1201
    welcome Trish!!!!! I wish I had words of wisdom for you but I too am just figuring out this whole SCI mess.

    Last week was really hard for me but this week I'm feeling much better. Trying to bear the cold weather here. It just amazes me that I woke up to 50 degree weather yesterday morning and now its negative something or other (does it really matter once its below zero???? , its just damn cold!)

    Last night Rob was getting ready for a shower (which is now in our laundry room) and I was doing laundry. I came up behind him to give him a hug. He held my hands tight and hugged me back, I'm not sure what happened from there but his wheelchair tipped backwards and gracefully he fell backwards on the floor. I was standing over him, he was still holding my hands. I just stood there mouth wide open. How the hell did that happen? We both start laughing, he's lying on the ground and we are laughing. My six year old comes in to see what is so funny, she sees her dad on the floor and the wheelchair tipped over, she starts crying and yelling at me, "How could you let daddy fall over?" Rob and I start laughing even harder. I had to leave him on the ground and calm down her down. We eventually stopped laughing enough to get Rob back in his chair.

    Rob can't wait to tell family and friends how I gave him the smack down.

    Hopefully we haven't scarred our 6 year old for life.

    Hope you all are having warmer weather in your neck of the woods.

    Kelly

  2. #1202
    Moderator Obieone's Avatar
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    Hey Kap ... you've figured out one of the cardinal rules of sci ... never loose your sense of humour !! You'll be amazed at what you learn to laugh at whilst everyone around is looking at you like you're nuts ..... sokay ... helps us stay sane .. and I wouldn't worry about you scaring your 6 year old ... our youngest daughter was 3 when her Dad got hurt .. grew up in a very different family dynamic then her elder bro and sis's .... mature beyond her years and laughs at the absurdity of some of the situations we find ourselves in right along with the rest of us!

    Oh ... by the way ... you want cold ... I'll give you cold .... http://www.weatheroffice.gc.ca/city/..._metric_e.html ..... yup that's -35 C /-45C with the windchill .... ....... we're tough as nails here on the frozen Canajun' prairie ..... its a dry cold ..... hang in there at least we don't have to contend with 'squiters ....

    Obieone
    ~ Be the change you wish to see in the world ~ Mahatma Gandi


    " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
    Jane Siberry

  3. #1203
    Obi- Brrrrrrrrrrr! Stay warm, ever tried hot choclate w/ butter shots in it. Yum! It will warm you up instantly.

  4. #1204
    Thank you for the warm welcome!
    Racheal had a wonderful birthday and was out of her bed for most of the day, which is remarkable for her because usually she doesn't want to do much of anything. I told her about this site but she still isn't ready to talk with others about her disability. I guess with time comes healing. I still cry just about everyday it is hard for me to remember my daughter taking her first steps, her first ballet class, learning to ride her bike and just dancing around the house. She still has her sence of humor which has just gotton a little demented...she jokes and tells me she wants to be a stand up comedian!
    Anyway, have an appt with her OT and PT today, she has refused to go since she was released from the hospital we are hoping that they can talk her into comming back. She will be getting her Bowflex this week so maybe that will help with her deppression, maybe it will help with mine.
    Anyway, it looks like rain again so it should be fun trying to get her in and out of the little Toyota Corolla without us both getting soaking wet.
    Good Day to all, keep smiling and take one day at a time.

  5. #1205

    Rob starts work today!

    I'm not sure if I'm worried, happy or what????? He was a police officer before his accident and he has gone back to the same department as a dispatcher.

    I worry about his bowel and bladder care at work. How will his back and butt feel after 8 plus hours in the chair? I'm worried about a pressure sore that has healed on his butt but will it get worse? I'm sure he is fine but I want to call and make sure . He's a big boy and can handle it but I still worry.

    I'm excited to get back to our old schedule. I have enjoyed having Rob at home every night but I was used to having him work 2nd shift. I'm ready to have that time to myself again. I used to love putting the girls to bed and enjoying those hours when no one asked what I was doing or watching some sappy lifetime movie without fighting over the remote.

    So this morning as he left for training I was torn. Is this a good thing or should he just stay home and be Mr. Mom (the girls loved him being home all the time.) I guess time shall tell.

    Its supposed to snow 8-12 inches tonight and into tomorrow. Darn snow!! Is a little sun and green grass too much to ask for?????

    Kelly

  6. #1206

    Hey Kap

    It is wonderful to hear that he is going back to work. I just went on LTD and am 42yrs old. I worked for five years in the chair afte my SCI. It will be great for him to have other things to talk about with you at the kitchen table. He will do fine with the bathroom stuff. If he has any trouble he can always dispatch the HAZ-MAT team to the rescue.
    Feelin good is good enough!

  7. #1207
    I wanted to check in after a week of sickness in our house. I had a horrible sinus infection, the girls both had bronchitis, and now Rob has a terrible cold. I keep disinfecting the house hoping to kill all the germs. I'm glad to be feeling "normal" again. I can actually breathe!

    Rob has been back to work for two weeks now and all is going well. Actually way better than I had thought. He's a little tired when he gets home but nothing too horrible. (I envisioned him coming home everyday and going to bed the rest of the night.) He enjoys being part of the working class again and seeing all his friends. I have been religously checking his butt in fear of the pressure sore coming back. He's frustrated that my obsession with his butt has nothing to do with foreplay.

    I'm once again trying to schedule our trip to Walt Disney World (for the third time in 13 months.) Of course the week Rob has vacation the hotels are completely booked. I'm starting to think my kids will never get to experience the happiest place on earth. ****a deep sigh**** I have visions of me packing the kids up in the car, kissing Rob goodbye, and hauling the pop up camper behind us with a sign in the back window "Disney or Bust." I'm just worried with the way luck is going it would be a bust somewhere along the way.

    On a happier note, February is half way over and its getting lighter in the mornings. I can see spring around the corner!!!!

  8. #1208
    Moderator Obieone's Avatar
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    Quote Originally Posted by kap
    I have been religously checking his butt in fear of the pressure sore coming back. He's frustrated that my obsession with his butt has nothing to do with foreplay.
    ........................
    On a happier note, February is half way over and its getting lighter in the mornings. I can see spring around the corner!!!!
    Oh Kap .... I so hear that ... Jesus Mary and Joseph we are tough as nails .... (pat pat pat on the back )
    We worry for ourselves and we take on the worry for them .... we are so going on a spa day ... some day .. every single one of us .... for a year !

    Obieone
    ~ Be the change you wish to see in the world ~ Mahatma Gandi


    " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
    Jane Siberry

  9. #1209
    Hi I am new to all of this so please patient with me. My brother was in an accident in November and has been paralized ever since he is 27 never been married and still lives at home with Mom and Dad. I dont understand much about all this but i am trying to learn and help my parents out. Any advice on how to help them thru this please let me know

  10. #1210
    byrdssis,

    Welcome! I'm sorry to hear about your brother. I think one of the best things for one of the family members to do is get on the forums and read and talk to others. SCI completely sucks and its hard to deal with but it seems easier to deal with when you know your not alone.

    I can remember my husband coming home from the hospital and feeling like we were the only people who ever had to deal with this crap and life just wasn't fair. Then I met some of the most amazing people through this website who offer great advice and a shoulder to cry on.

    We are still in our first year of injury. Of course it feels more like ten years, but it has gotten easier. We have good days more often than bad days now. I remember when a good day never seemed possible.

    You may want to fill out your profile more so people can better understand level of injury and who you are.

    Take care,
    Kelly

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