Page 3 of 36 FirstFirst 12345678910111213 ... LastLast
Results 21 to 30 of 356

Thread: seeking others w/ CENTRAL CORD SYNDROME

  1. #21
    I have a central cord injury at C5. I can walk normally, but sometimes have balance problems. My hands and wrist function, but not my biceps or deltoids and my shoulder rotator cuffs are weak. All sensation, bowel, and bladder are normal.

  2. #22
    Here is an interesting link regarding possible treatment for central cord:

    http://nerve.wustl.edu/nd_centralcordsyndrome.php

  3. #23
    C6 ccs. Happened in May of this year regained all but hand strength/dextarity

  4. #24
    Senior Member
    Join Date
    Dec 2009
    Location
    Florida, USA
    Posts
    2,172
    I have it also. I recovered most functions but the neuropathic pain and spaciticity/pain is pretty bad and hard to cope with 24/7. I'm just now realizing how this is tearing me down mentally and that's why I finally joined this forum.

  5. #25
    Senior Member Evonne's Avatar
    Join Date
    Aug 2008
    Location
    Central California/ (the Republican side :)
    Posts
    1,105
    Just checking to see if there were any newbies. Hope all is well.

    Evonne
    I have a spinal cord injury...a spinal cord injury DOES NOT have me!

    walking quad-Central Cord Syndrome

  6. #26
    Senior Member
    Join Date
    Sep 2010
    Location
    Boise, ID USA
    Posts
    274
    Hi Evonne,
    I'm a C1/C2 walking quad, with CCS and BSS, at 13 months post injury. I was injured when cutting down a treebranch. I spent 2 weeks in ICU, including a bout of pneumonia, and 4 weeks on a ventilator. I was taking a few steps with a walker at three weeks. By the time that I left rehab, at 3 months, I could walk a half mile with no assistive devices. My arms were very weak at that time. I have been working as hard as my fatigue will allow and have made large improvements. On a good day, I can walk 5 miles. I have also learned how to ride a bike again and rode 25 miles one day. Before my injury I was an avid runner, cyclist and nordic skier. My upper body has gained lots of strength. I did 10 pushups recently! My left hand is weak and lacks good sensation, but it is also slowly improving. My biggest frustration is the fatigue that keeps me from working harder. Just sitting up for a long while will tire me. I have found that if I go too hard that it will require lots of rest. My belief is that my spasticity plays a large part in this. I don't have much spasms any more, but I do have lots of tightness, even in my chest. My bladder is OK, but my bowel continence is a little worrisome.
    Cheers.

  7. #27
    Hi all!! I do not have a sci but my sister does. We were on a bike trail on July 4th (of this year) and she fell into a shallow ravine and suffered a spinal contusion and has central cord syndrome. The injury is at C3 & C4. She is still in the hospital but has made awesome improvements in the past three weeks.

    Right after the injury she couldn't move her arms/hand or legs/feet and she is now walking on her own (a little balance issues but not too much). Her right side was affected much more than her left and she has re-gained much of her left arm/hand use but her right is still slow. She also just peed for the first time without a catheter but is still not totally emptying her bladder so they have her on some medication and keeping her (in the hospital) a week longer to work on it.

    She will be going home to her seven children and a grandchild. She is used to going 24/7 and doing everything for the kids. They are all very active in sports and is used to driving them everywhere and keeping up the house and helping with the yard (they live on 7+ acres).

    She is really struggling with being mad/sad/pissed/etc. and I'm not sure what to do at this point. I have been to the hospital every day since the accident and she won't ask the doctors questions about the future. She says she doesn't want to think about the future!

    She doesn't use the computer so I probably know more about her injury than she does. Her oldest daughter is also getting married Aug. 13 and she will have to wear the collar thingy and then have surgery after the wedding.

    I could really use your advice, help, thoughts, etc. Thank you so much for listening!

  8. #28
    Senior Member
    Join Date
    Sep 2010
    Location
    Boise, ID USA
    Posts
    274
    Hi mcs,
    Your sister is making amazing progress. How far can she walk now. I also have central cord syndrome. At three weeks, I could walk about ten feet. At about 15 monthis, I walked 7.5 miles. I also ride my bike again. When you say her right arm is slow, what does that mean? Good luck.
    C1/C2 walking quad, SCI from 4/2010

  9. #29
    Senior Member Evonne's Avatar
    Join Date
    Aug 2008
    Location
    Central California/ (the Republican side :)
    Posts
    1,105

    Smile

    Msc,

    I sent u an email with my email address and phone number, hope to hear from you soon.

    Evonne
    I have a spinal cord injury...a spinal cord injury DOES NOT have me!

    walking quad-Central Cord Syndrome

  10. #30
    Hi, wow I think this is my first post! I'm central cord C6 main involvement. It was the result of surgery. My injury was 6mos old on the 4th of Aug. I've noticed 'healing' is back and forth for me.

    I guess I should write something about myself somewhere on here.


Similar Threads

  1. Replies: 92
    Last Post: 06-11-2015, 06:21 PM
  2. Question Dr Wise or anyone...
    By luckydog in forum Tranverse Myelitis, Multiple Sclerosis, Non-traumatic SCI
    Replies: 5
    Last Post: 08-03-2007, 11:08 PM
  3. INFO ON 4AP
    By rybread in forum Cure
    Replies: 22
    Last Post: 10-05-2006, 07:17 PM
  4. Replies: 3
    Last Post: 03-11-2005, 11:16 PM
  5. Replies: 2
    Last Post: 08-06-2003, 06:11 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •