My husband was injured on 6-6-02. He is an incomplete C5-7.
We have been married for 11 years but have spent the last year
separated but were discussing getting back together when he was
released from prison. We have 2 young children, 20 months and
4 years. The 4 year old is also autistic. We were lucky enough
for my husband to go to a really good medical hospital and then
a really good rehibilitation hospital. They have given me a spinal
cord injury book and taught me alot of things that I will need to
know to take care of him. He has no feeling or sensation from his
nipples down and only minimal use of his hands. They want to
release him 8-6-02 but I'm not sure the apartment will be finished
by then (new ones being built) I have to stay in the area where
our 4 year old is already getting help. But after reading the
book, all the pamphlets and reading some of the messages on these
sites. I'm almost to scared to bring him home. It is like everything
will make him sick, AD, or hurt him in some form. He's having a lot
of pressure pain inside of his legs, he's cold (freezing) all the
time, and he wants to sleep all the time. Is all of this normal?
We were both drug addicts, I have 2yrs-4months clean and He has
just over 6 months clean. At first he was really upset about
having to take any kind of drug again and it seems he is starting
to ask for them more often now. I'm not really sure how I feel
about it. I don't want the addict he was to come back but I
also know if he's in pain he needs help.
I have found take when I'm helping him transfer he doesn't help
as much as when his therapists are helping him. And at times
he doesnt help them either. He is expects the nurses and aids
to remember when he needs cathed. Are these all things that
some people go through? I guess I feel they might want to be
more independent, if not by doing it them selves at least by
what, when and how.
Like I said I new to all of this so maybe in time we'll get it
together, finally.LOL God Bless