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Thread: Wanted to introduce myself.... finally!

  1. #11
    Hi and Welcome! I had an incomplete SCI at T8-9 in June, 2007. I needed lots of help during the first six months after returning home from rehab. My partner was with me constantly during that time and I don't know how I would have gotten through it without her! Now, she works full-time and I take care of myself when she's away. Hang in there! Progress can be painstakingly slow, but progress WILL happen and your husband will surely appreciate what you've had to do for him during this vulnerable time in his life.

  2. #12
    So sorry you had to find us, but glad you did.

    Welcome.

  3. #13
    PS-At T8, with decent rehab, he'll be able to live and work completely independently, most likely. Didn't know if they'd told you that. You'll probably still have to change the overhead lightbulbs LOL, but this state where he is really dependent on you is only temporary.

  4. #14
    Welcome!! I sent you a PM by the way.

    I forgot to ask....Is Mike a Veteran?

    Dave
    Dave

  5. #15
    Thank you everyone for your responses. I guess I should elaborate a little more. Okay, so after 6 weeks in the hospital we were both dying to come home, we just couldn't wait. As soon as we did get home, panic set in for me, I had no call button for the nurse, I was responsible for everything. I pulled through, though it was extremely hard. I remember for the first 3 weeks I would have to turn him throughout the night about 10 times and I just wanted to shoot myself (not really). I was so tired I could barely keep my thoughts straight. I was told in the hospital that 3 well balanced meals per day will keep his bowels happy so I cooked all the time too and waited on him hand and foot. He couldn't transfer on his own yet so I was alway hovering over him. I seriously felt like I was taking care of triplets. Oh yeah, and on top on all that, he was having several accidents (bathroom ones) per day so my laundry duty was huge! I got to the point that if the underwear were soiled I just threw them away, I couldn't take it anymore. So eventually he has gotten stronger, he can do everything for himself (except change the lightbulbs).
    In June we went to a rehab facility called ProjectWalk in Carlsbad, Ca. They set us up for a home program that we do for 2 hours, 3 days a week. Starting this month, Mike will go to a place called SCI-Fit in Danville 2 days a weeks for more rehab. Just last week he bought a lowered truck and put hand controls in it so now he is as independant as can be and I couldn't be happier. I love him to death, we've been married ten years, but I was on the verge of having a break down. This have been physically hard on me (I'm not that big or strong) and emotionally hard on me. So that's our story in a nutshell. Mainly right now the worst thing he is dealing with is pain. There is soooooo much pain in his mid back that I have heard him quielty weeping inthe middle of the night because he can't sleep. It's so sad but there is nothing that I can do for him. We are locating some specialists in our surrounding areas. Someone suggested that maybe one of his rods is moving and the pain may be from that.
    Whew!

  6. #16
    I forgot to ask....Is Mike a Veteran?
    No, he is not a veteran.

  7. #17
    Hey Jen, I'm Jenn too. My husband is C5 and we were married one year before accident but together for 10. It's been 8 years since his diving accident and I am his fulltime caregiver. Thank god your husbands injury is so low, he will be so independent. If you ever want to talk, I'm here. By the way, you guys are HOT! You can feel the love in your picture. Good luck to you both.

  8. #18
    Welcome to the crazyhouse Mikeswife and Mike too. Great information from knowledgable people here, so don't be shy about asking anything. Both of you be strong and be patient with one another, it WILL get better.
    "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

  9. #19
    Welcome. I think everyone has summed up why this is such a good site - some of us are still here asking questions and getting great advice years into our injuries.

    Don't be afraid to ask anything. The more you both learn now the better.
    C5/6 incomplete

    "I assume you all have guns and crack....."

  10. #20
    To care Cure
    For every minute you're angry you lose a second of happiness

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