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Thread: Need Help, Shoulder Rotating, Trunk shifting

  1. #1

    Need Help, Shoulder Rotating, Trunk shifting

    Hello,

    My son John is a C4-C5 quadriplegic. At the time of his injury 12/02 he had a fusion of his 3rd, 4th, and 5th vertebrae. Since his injury he seems to be a product of Murphy's Law for quadriplegics with his level of injury. He has constant UTIs, developed a paralytic scoliosis, amongst other things, but these the most bothersome and frustrating. In August of 2006 he had a fusion of his T10 -S1. Since then, his left shoulder seems to be rotating back and his right rib still appears to be in a somewhat other position than the straight form it should be in after his fusion. This is causing him great pain and discomfort. We have discussed this with his ortho surgeon, with a shoulder specialist, with the wheelchair clinic PT, with his Physiatrist, with the family doctor, with his home PT, and no one seems to have come up with a suggestion. John is really suffering from all of this discomfort. He is usually a cheerful, good and light hearted person. He still remained so pretty much after his initial injury. However, all of these recent complications are taking their toll on him. He's frustrated, miserable, uncomfortable and pretty much at the end of his rope. Please, if anyone has seen anything like this in the past, or heard of anything similar, or can just suggest something, please, give us your input. I want my son to have some relief from all of this. It kills me to see him hurt so much and I not have the slightest idea how to make his situation any better.

  2. #2
    Senior Member alan's Avatar
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    Sounds like the effects of scoliosis. My right side is torqued forward, my left shoulder is lower than my right, my shoulder blades catch (possibly due to poor posture), but no ortho would ever deal with my curve, so, 27 years post, I may be stuck.

    Good luck to John.
    Alan

    Proofread carefully to see if you any words out.

  3. #3
    Sorry to hear Alan. Hopefully SCI nurse or Dr. Wise can't offer some insight.

  4. #4
    Senior Member alan's Avatar
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    Betwen central pain syndrome, scoliosis, and popping shoulder blades, my upper back is ruined and use of my arms (I'm C-5) is severely limited (can't exercise or do most ADLs, even drive my chair much.) If the scoliosis is causing him problems, don't let docs keep putting you off by saying the curve isn't that bad - if it adversely affects his life, it should be dealt with if he can handle recovery from surgery, IMO. I am wishing evil thoughts on all the orthos who passed on me over the years, as I'd be in better shape if my spine had been dealt with when I was younger.
    Alan

    Proofread carefully to see if you any words out.

  5. #5
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    I am not sure where you are located, but there is a spinal specialist in Phoenix Arizona, Dr. William Stevens at the Center for Spinal Dissorders. You can google search him. He specializes in curvature of the spine. When nobody else would touch me, he did corrective surgery and saved my legs. If you do google search him, you will see additional articles with Walter Reed and some other locations, because he is used throughout the country. But it is the location at 7th St. and Mcdowell in Phx Az. that you would want to contact, and see if he could help, or have any advice. If you can't find the number, PM me, and I will get it for you. I Pray that your son gets some relief (By the way, he is a man of very few words. Not extremely outgoing, but he's the best for curvature of the spine)

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