Results 1 to 6 of 6

Thread: The 3rd International Rare Neuroimmunologic Disorders Symposium

  1. #1

    The 3rd International Rare Neuroimmunologic Disorders Symposium

    MAJOR CONFAB ON NEUROIMMUNE DISEASES TO BE HELD IN SEATTLE IN JULY

    World-renowned medical experts from Johns Hopkins, Kennedy Krieger in Baltimore, the Mayo Clinic, and the MS Center at Evergreen in Washington State will gather in Seattle from July 16th through 19th for the 3rd International Neuroimmunologic Disorders Symposium to announce the latest findings on chronic and often crippling diseases like MS, transverse myelitis (TM), lupus, and Devic’s disease.

    Sponsored by Project RESTORE, the Johns Hopkins combined center for MS and TM, and the Transverse Myelitis Association (TMA), this is a unique forum where those with these disorders and their families can meet face to face with the foremost authorities in the field to discuss everything from stem cell therapies to symptom management to depression.

    According to symposium organizer, Sandy Siegel, President of the TMA, “There is no other medical education program in the world focused on TM, MS, NMO (Devic’s), ADEM (Acute Disseminated Encephalomyelitis), and ON (Optic Neuritis) that provides the breath and depth of information offered here. Plus, no one understands the experience of these diseases like the hundreds and hundreds of other attendees. Lifelong friendships are made here!””

    Noted speakers include Dr. Douglas Kerr of Johns Hopkins, perhaps the world’s foremost expert on TM; Dr. Adam Kaplin, also of Johns Hopkins, a pioneer in the field of depression and cognitive dysfunction; Dr. Dean Wingerchuk of the Mayo Clinic on Devic’s, or NMO; and Dr. James Bowen of the MS Center at Evergreen on the latest MS research and therapies.

    Also speaking will be Allen Rucker, author of “The Best Seat In The House: How I Woke Up One Tuesday and Was Paralyzed For Life,” his recently-published chronicle of life after TM; and noted researcher/writer Donna Jackson Nakazawa, author of the upcoming “The Autoimmune Epidemic.”

    For more information, go to the symposium web site at http://dev.esg.us/Seattle/ or the TMA web site at http://www.myelitis.org/

  2. #2
    Senior Member lynnifer's Avatar
    Join Date
    Aug 2002
    Location
    Windsor ON Canada
    Posts
    19,320
    Ack! I'm off work this year and 1) can't afford to go and 2) couldn't make it because of illness anyway.

    The one year I'm off! Hopefully there's a lot of NEW and ENCOURAGING info coming out of this one!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  3. #3
    Super Moderator Sue Pendleton's Avatar
    Join Date
    Jul 2001
    Location
    Wisconsin USA
    Posts
    11,007
    This won't help Lynn but... While reading through all the heath stuff deductible under Schedule A on US Taxes, using TurboTax, it appears seminars and symposiums on your medical condition are deductible as far as cost and travel but not lodging. Can someone else in the tax business back this up?
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  4. #4
    Super Moderator Sue Pendleton's Avatar
    Join Date
    Jul 2001
    Location
    Wisconsin USA
    Posts
    11,007
    Anyone who is there want to pass on the latest good news?
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  5. #5

    2008 Seattle symposium videos online

    the whole symposium was video taped. I am putting them online to view/download at no cost. Almost as good as being there.

    http://www.myelitis.org/rnds2008/index.htm
    the ones with the times are already online. the rest will be soon after I receive the rest.

    these are online now

    rnds2008-01
    2008 Rare Neuroimmunologic Disorders Symposium
    The RNDS Community: Past, Present and Future
    Douglas A. Kerr, MD, PhD

    rnds2008-02
    2008 Rare Neuroimmunologic Disorders Symposium,
    Neuroimmunologic Disorders: An Overview,
    Benjamin M. Greenberg, MD, MHS

    rnds2008-03
    2008 Rare Neuroimmunologic Disorders Symposium,
    Brain, Spinal Cord and Cells: The Actors and The Movie
    A Neuro-primer for Non-Neurologists,
    Carlos A. Pardo, MD

    rnds2008-04
    2008 Rare Neuroimmunologic Disorders Symposium,
    Acute Disseminated Encephalomyelitis (ADEM),
    Benjamin Greenberg, MD, MHS

    rnds2008-05
    2008 Rare Neuroimmunologic Disorders Symposium,
    Understanding the Immunopathology of Central Nervous System Diseases,
    Mariko Kita, MD

    rnds2008-06
    2008 Rare Neuroimmunologic Disorders Symposium,
    Multiple Sclerosis (MS),
    James Bowen, MD

    rnds2008-07
    2008 Rare Neuroimmunologic Disorders Symposium,
    Approach to Acute Myelopathy,
    Douglas A. Kerr, MD, PhD

    rnds2008-08
    2008 Rare Neuroimmunologic Disorders Symposium,
    Pediatric Transverse Myelitis,
    Frank Pidcock, MD

    rnds2008-09
    2008 Rare Neuroimmunologic Disorders Symposium,
    Pediatric TM as different from CIDP, and pediatric ADEM,
    Gregory Barnes, MD/PhD

    rnds2008-10
    2008 Rare Neuroimmunologic Disorders Symposium,
    Neurosarcoidosis,
    Carlos Pardo, MD

    rnds2008-11
    2008 Rare Neuroimmunologic Disorders Symposium,
    Neuromyelitis Optica and the concept of Autoimmune Aquaporin-4 Channelopathy,
    Sean J Pittock, MD

    rnds2008-12
    2008 Rare Neuroimmunologic Disorders Symposium,
    Demoralization, Depression and Cognitive Impairment in MS, TM NMO & Other CNS Autoimmune Diseases,
    Adam I. Kaplin, MD, PhD

    rnds2008-13
    2008 Rare Neuroimmunologic Disorders Symposium,
    The auto-immune epidemic: Bodies gone haywire in a world out of balance and the cutting edge science that promises Hope,
    Author: Donna Jackson Nakazawa,
    Introduced by Douglas A. Kerr, MD, PhD

    rnds2008-14
    2008 Rare Neuroimmunologic Disorders Symposium,
    Neurological manifestations of lupus and other systemic rheumatologic disorders,
    Julius Birnbaum, MD

    rnds2008-15
    2008 Rare Neuroimmunologic Disorders Symposium,
    Future Immunotherapies and Neuroprotective therapies,
    Mariko Kita, MD

    rnds2008-16
    2008 Rare Neuroimmunologic Disorders Symposium,
    Medical and interventional approaches to Neuropathic Pain and Paresthesias,
    Denise Taylor, MD

    rnds2008-17
    2008 Rare Neuroimmunologic Disorders Symposium,
    Sexual Dysfunction in Multiple Sclerosis and other Demyelinating Diseases
    Bobbie Severson, ARNP

    rnds2008-18
    2008 Rare Neuroimmunologic Disorders Symposium,
    Bladder Dysfunction and Management,
    Claire C. Yang, MD

    rnds2008-19
    2008 Rare Neuroimmunologic Disorders Symposium,
    Spasticity Management,
    Frank Pidcock, MD

    rnds2008-20
    2008 Rare Neuroimmunologic Disorders Symposium,
    Patient Centered Care: The Role of Self-management,
    Stephen Wegener, PhD

    rnds2008-21
    2008 Rare Neuroimmunologic Disorders Symposium,
    Self advocacy and employment with disabilities,
    Sandy Hanebrink, OTR/L

    rnds2008-22
    2008 Rare Neuroimmunologic Disorders Symposium,
    Obstetric Issues in Women with Demyelinating Disease,
    Benjamin M. Greenberg, MD, MHS - Donna Chattin, BSN, RN

    rnds2008-23
    2008 Rare Neuroimmunologic Disorders Symposium,
    The Genetics of Autoimmunity,
    Benjamin M. Greenberg, MD, MHS

    rnds2008-24
    2008 Rare Neuroimmunologic Disorders Symposium,
    Acute Therapies: Steroids, IVIG, Plasmaexchange and Cyclophosphamide,
    Benjamin M. Greenberg, MD, MHS

    rnds2008-25
    2008 Rare Neuroimmunologic Disorders Symposium,
    Choosing a Treatment for New Diagnosis of Multiple Sclerosis,
    Kathleen M. Costello, MS, CRNP

    rnds2008-26
    2008 Rare Neuroimmunologic Disorders Symposium,
    Relating Sensorimotor Function to MRI,
    Kathleen M. Zackowski, PhD, OT

  6. #6
    Super Moderator Sue Pendleton's Avatar
    Join Date
    Jul 2001
    Location
    Wisconsin USA
    Posts
    11,007
    Thanks Jim. I'll be ordering mine as soon as you're done. I so miss not being there this year.

    Sue
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

Similar Threads

  1. 2006 Rare Neuroimmunologic Disorders Symposium
    By Sue Pendleton in forum Tranverse Myelitis, Multiple Sclerosis, Non-traumatic SCI
    Replies: 7
    Last Post: 04-26-2007, 05:21 AM
  2. Southwest Neuroimmunologic Symposium -- April 26-28, 2007
    By jlubin in forum Tranverse Myelitis, Multiple Sclerosis, Non-traumatic SCI
    Replies: 3
    Last Post: 04-17-2007, 03:24 PM
  3. Replies: 0
    Last Post: 09-01-2004, 02:35 PM
  4. 2004 Rare Neuroimmunologic Disorders Symposium
    By Sue Pendleton in forum Announcements & Feedback
    Replies: 1
    Last Post: 04-02-2004, 10:37 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •