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Thread: Stem Cell Patient Praises Maverick Indian Doctor

  1. #41
    Quote Originally Posted by SethO
    Has anyone on this forum been to india for this surgery? I had looked into doing this and was raising money to go but I was told by doctors here that the problem isn't growing nerves it was reattaching them. I have a t8 complete from a motorcycle accident on 9/27/07 and had a little over 50% of my spinal cord cut by bone fragments. I am looking to see if anything can help me get back to normal again? I have read that your body only needs 10% of your spinal cord to work your lower body and was wondering if anyone had input on this.
    SethO,

    I am a spinal cord injury researcher who has been working in the field for nearly 30 years. I have visited many centers in China and India that are offering experimental therapies for spinal cord injury. If you are from the United States, you will probably find the conditions in most Indian hospitals to be unacceptable. It is true that some doctors in India tend to be more adventurous and will do surgeries that doctors in the United States would not do. I am not convinced yet that any of the therapies offered in India have sufficient benefit to warrant the risk. These include:
    • Bombay. Alok Sharma and his group are offering bone marrow stem cell transplants. I saw several patients who may have had some improvements but this needs to be confirmed in controlled trials.
    • Chennai. There is a group called Lifeline that is offering umbilical cord blood cell transplants. I don't think that intravascular infusion of cord blood, particularly cord blood that is not HLA-matched, is of any benefit.
    • Delhi. Dr. Geeta Shroff is offering cells that she claims are human embryonic stem cells. Her training and background is in in vitro fertilization. She will not provide evidence that the cells are embryonic stem cells and unfortunately has made fantastical claims concerning curing of many conditions, including blindness. Several people who have been on this site have claimed that her treatment has helped them. Others have also indicated that her treatment has not.

    Wise.

  2. #42
    Quote Originally Posted by Wise Young
    • Delhi. Dr. Geeta Shroff is offering cells that she claims are human embryonic stem cells. Her training and background is in in vitro fertilization. She will not provide evidence that the cells are embryonic stem cells and unfortunately has made fantastical claims concerning curing of many conditions, including blindness. Several people who have been on this site have claimed that her treatment has helped them. Others have also indicated that her treatment has not.

    Wise.
    Some on this site have had shroff's procedure?

  3. #43
    Quote Originally Posted by Eric.S
    Some on this site have had shroff's procedure?
    Yes, several people have posted about their experience. Wise.

  4. #44
    I just spoke to Perry Cross. He came to Rutgers and we spent a couple of hours together. He has made significant improvements in his ability to breathe off the ventilator. First, let me tell you how I know him. I first met him in 1996 in Brisbane. He subsequently came to visit me probably in 1998 or 1999. I met him again in 2003 when I was in Sydney with Christopher Reeve.

    For the past 14 years, Perry has been on a ventilator and unable to move anything below his shoulder. He has often tried to wean off the respirator over the years. Every several days, they would take him off the respirator to see how long he can manage. Until 3 months ago, he was not able to go off for more than 10 minutes. For the past three months (just ending last week), he has been receiving daily (6 days a week) injections of cells that Dr. Geeta Shroff claims are human embryonic stem cells. The cells were injected mostly intramuscularly (I did not ask exactly where but Perry did say that some of the injections were made into neck muscles).

    He is now able to get off the respirator for an hour or more without significant distress. In fact, on one occasion, he fell asleep without the respirator for an hour. They use to rush to reconnect him back onto the respirator when he is being transferred off airplanes, etc. but they are now able to be quite leisurely about it. In fact, they are not panicked about going on very long flights because they are confident that he can go without the respirator for fairly long periods. Perry says that longest has been 12 hours. Perry also says that he is getting some trunk movements back and some deep sensations in his thorax, but not in his hands. He says that he is getting trace triceps for the first time on the right. Finally, he has had no complications or problems as a result of the almost daily injections of the cells.

    To me, Perry looks quite healthy and happy, compared to the times that I have seen him before. His cheeks are ruddy, the skin on his hands look healthy. He was able to rock side to side and forward and backwards, something that I cannot recall him doing before. He was on a respiratory and laughed, smiled, and talked with enthusiasm. He of course did not demonstrate his breathing in the lab but I believe his description. Prior to the treatment, he was doing "frog" breathing and did not last 10 minutes. This was confirmed by the people who travelled with him.

    Upon further questioning, Perry says that Geeta Shroff is treating everybody with the same human embryonic stem cell line. He has requested to see the laboratory but she has not allowed him to see it. However, she answered all other questions. Perry is going back to India for a month of further treatments in November. He has paid something like US$40,000 for the treatment to date. They did not stay in the place but rented a house. They went daily to the clinic where he got physical therapy and the treatment. There was no special exercise or other therapy. They did not have a respiratory therapist and Perry is planning to find a respiratory therapist/doctor when he returns to Australia to go through a proper evaluation and weaning.

    While it it is possible for a person on the ventilator to regain the type of function that Perry did without any therapy, it is striking that all these improvements happened to coincide with the timing of the treatment. The fact that the improvements are modest also lend some credibility to his claims. If Perry had gotten substantial breathing changes, like getting off the respirator in 3 months, I would not have believed. Finally, the procedure seems to have had no negative side-effects for Perry.

    Does this mean that the treatment is effective? I don't know. But it is interesting and I will find out more.

    Wise.
    Last edited by Wise Young; 06-12-2008 at 05:27 PM.

  5. #45
    Senior Member shak's Avatar
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    Dr. Young did you mean to say, no negative side effects for Perry.
    "ELE" ~ Jackie Moon

  6. #46
    Senior Member Quadcessible's Avatar
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    Quote Originally Posted by Eric.S
    your using other cases to dismiss this one. no one here is qualified to approve or dismiss anything they haven't even seen first hand. dr wise knows the guy and they have agreed to meet so lets wait to get his response to all this. maybe its legit maybe its not. how can anyone just assume they understand something completely from behind a computer screne... yes we have all seen it before but to write off all procedures based on what you've seen in the past could prove to be foolish... unless you know dr sheroff or what she's doing you really don't know if its legit or not...
    Eric,
    I have read posts here on this forum regarding Dr Shroff and the above treatments, as well as many others with similar claims of treatments being successful. The point I am trying to make, is there is no documented evidence to back the claims. Believe me, if clinical documented evidence is shown, then it may benefit us, without it, it means little.

    That is why I was making the comparison, you may very well be right that the treatment is legit, and then again it may not. But common sense tells me to be leary, I've heard it all from shark cartilage to walking boots, many, many, countless claims of improvement but with nothing to back it, including the above, but they'll take your money and treat you with something. I don't know Dr Shroff and have read no documentation proving or disproving the work.

    I noticed in another thread that she may be at the Miami Project next week. I will be in Miami on Tuesday June 17, and if time allows, make an attempt to go over there to see if anything can be learned. Foolish I am not, it is my right as well as yours and all others to question what can't be proven.

  7. #47
    Quote Originally Posted by Wise Young

    Upon further questioning, Perry says that Geeta Shroff is treating everybody with the same human embryonic stem cell line. He has requested to see the laboratory but she has not allowed him to see it.
    It is precisely this type of secrecy that is bothersom. Once a patent application is filed, Dr. Shroffs proprietary rights are protected.


    Quote Originally Posted by Wise Young
    While it it is possible for a person on the ventilator to regain the type of function that Perry did without any therapy, it is striking that all these improvements happened to coincide with the timing of the treatment. The fact that the improvements are modest also lend some credibility to his claims. If Perry had gotten substantial breathing changes, like getting off the respirator in 3 months, I would not have believed. Finally, the procedure seems to have had negative side-effects for Perry.
    Think Dr. Young meant No negative side-effects. Agreed with your summary. Thanks for following up. I still don't understand how supposed cells injected IV & IM can have this type of effect.

    Anyone given any thought to Dr. Shroff & those from the Miami Project meeting. I think something is in the works.

  8. #48
    Yes, I mean no negative side effects. Thanks. Wise.

  9. #49
    Dr. Wise I have done the surgrey in Lifelife hospital in Chennai, it didn't involve any umbilical cord blood cells, they took bone marrow and treated it somehow and then they injected it back in my spine.

    None the less, I did not have any improvement since last august.

    I'm T9 complete since march 2004.

    A.J.

  10. #50
    Quote Originally Posted by Neo
    Dr. Wise I have done the surgrey in Lifelife hospital in Chennai, it didn't involve any umbilical cord blood cells, they took bone marrow and treated it somehow and then they injected it back in my spine.

    None the less, I did not have any improvement since last august.

    I'm T9 complete since march 2004.

    A.J.
    Neo, thanks. My mistake. Wise.

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