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Thread: Baclofen pump FAQ

  1. #71
    i had a tumor removed from my spin that an from c2 to c7 in august of 2008. when i woke up i couldnt move the right side of my body i spent 2 months in inpatiet physiccal therapy where i had to learn towalk again. i have been goin 2 outpatient physical and occupational therapy 3x's a week since.
    and and i havebeen taking baclofen orally since then but i stil have random spasms mostly when i first wake up and when i stand up aftewr sitti,ng for a long time. but i dont need any assistance when i walk and i can walk very far, i just walk slow and with a limp. but ive kinda gotten 2 the point wherrre im not getting any better could some one tell me there b4/ after story with the baclofen pump

  2. #72
    Senior Member darrel's Avatar
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    Before my pump I was maxed out on the oral Baclofen and other meds to help with the spasms. The spasms were about 4/hr and they would arch my back and pull my hands to my chest if I was in my chair they would almost pull me out of it. I was learning to walk again also. Life was hell then.
    Now that I have the pump and it is regulated to the dosage I need I rarely have a spasm, I can walk a lot farther now and it has made life more bearable.

  3. #73
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    My physiatrist is pushin for me to take the test. My PT has little experience with the pump due to the fact I am still using my inpatient pt thru a continuing care program. I also have had a person with the pump, who is now not using the pump for medicine, to wait longer to see if changes in my recovery are still ahead. 18 months in, I haven't seen any in a while.

    Darrel, you mentioned you drag your foot. Ever tried pt using bioness device? Worked wonders for me

    Thanks again
    shep

  4. #74
    Senior Member darrel's Avatar
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    I was directed to it at one time and I brought the subject up with my physiatrist and she said that it would not help in my case. that I need to wear my afo. that was two years ago (one year post) I have not looked into it since. would medicare pay for it?

  5. #75
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    I'm not sure where, but i do believe i saw on one of the forums here that the bioness LS300 was medicare approved. I did drag my right foot bad enough that a cane was unsafe. my dorsiflexion of the ankle was pretty much non existent. the bioness corrected this. Inow walk with a cane and have little or no problems with my dorsiflexion.

  6. #76
    Senior Member darrel's Avatar
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    how much return did you get back? I only got 30% on the side that has the drop foot.
    I have to see the physiatrist on the 21st of this month I'll ask her about it.

  7. #77
    My insurance company has denied my doctor's request for an overnight stay after my implant surgery. Should I be concerned about coming home immediately after the surgery?

  8. #78
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    I don;t think it is that big a deal, the hospital that did mine treated it as out patient, but my physiatrist wanted me in rehab for 2 days. A lot of people went right home. I am a bit of a wuss, so it was nice to have nurses the first night.

    1. Will someone be there? .... typical post o/p surgery stuff. It would be nice to have someone to fetch and carry for you, so you don;t have to get up to get a drink of water and such. Also do you have an electric bed at home? I don;t, and really appreciated the electric sitter upper the hospital bed had the next day! Be aware the surgery made it a little harder for me to sit up for a day or so. (The incision, not the pump effects, I think at least).

    2. BE CAREFUL about how they are weaning you off the oral baclofen. You can;t go cold turkey! The pump doesn;t immediately replace it as far as your body is concerned. My doc decreased it a little too fast I think, and I had some nightmares, but nothing more serious. Discuss this.

    3. This will make a big difference in your adls, especially transfers and showers. Any plans for some PT? And I would recommend you have someone with you, or at least w/in yelling difference the 1st couple times you transfer.

    4. What are the plans for tweaking the pump? They increased mine about 3X before I went home.

    5. Nothing to do w/ going home right away, but from my experience, the dose will seem just right for a bit, then slowly things will creep up. Dose gets increased, and it repeats. This is typical, it can take up to a year to get the right dose. I didn;t realize this at first and was concerned. (It took me about 6 months).

    Good luck, feel free to pm me.
    Last edited by sjean423; 02-03-2009 at 06:13 PM.
    T7-8 since Feb 2005

  9. #79
    Senior Member darrel's Avatar
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    I had to travel 90 miles to get home after my pump was put in and I had no problem.

  10. #80
    hi i've had my pump in for about a month now. I'm 8 months post op from injury and it has helped with the spasms for the most part ( i get here and there) but my tone is awful!! how long does it take to get the right dosage? i think i'm at 190 mcg a day. one day when i was on 100mcg they had me go into the hospital and gave me a bolus of an extra 50mcg over 15 min. that worked GREAT!!! it started working within the hour and lasted till 6pm i went in at 9:30am. but ever since then we keep increasing and i am still stiff and have some jumpyness. any suggestions? i see my surgeon tomorrow so i will also ask him. thanks

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