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Thread: Baclofen pump FAQ

  1. #151
    Senior Member rdf's Avatar
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    Quote Originally Posted by bebe View Post
    The effects of long-term Baclofen use are not clear to me and I have not yet been given the chance to meet the doctor who will eventually implant the pump and oversee my treatment, to ask them.

    Anyone got any light to shed on this subject? E.g. what might long-term Baclofen use effects be and what do people do to minimise them?
    I don't know if intrathecal baclofen has been around long enough for any long-term studies of possible side-effects.
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  2. #152
    Quote Originally Posted by Zero View Post
    Well I've had the pump for a couple months now. I've been getting increases a couple times a week. I'm now at 800mcg/day and I've still seen absolutely no response whatsoever. [I responded very well to a 75mcg test dose.]

    The doctor now wants to add a 50mcg bolus every four hours. Personally I think there is something wrong with the catheter placement. I've already had one refill and they verified that the baclofen is leaving the pump. The question is, where is it going?

    Do you guys think there is any danger in setting the pump so high? The catheter is inserted between my two injuries at T7 and T10, is it possible the baclofen is just pooling between the two injuries? Could this be harmful?
    thats the exact same issues I had, I couldn't tell a difference between 250 and 850 mcg. And the 50 mcg bolus shots didn't do anything.

    By the way I went to my surgeon in Charleston, and they are going to look at the images of both dye studies and the radiation studies. But from what I told the nurse procatishioner (cant spell) she thinks the cathedar needs replaced. She is going to call me sometime after thursday. To tell me what they decided.

    And thats what I thought all along.

  3. #153
    Nurse practitioner

    Catheter

    (KLD)

  4. #154
    Quote Originally Posted by SCI-Nurse View Post
    Nurse practitioner

    Catheter

    (KLD)
    ty I was close to it.......

  5. #155
    I had a baclofen pump implanted in my body to help the spasms. It failed me also. This is a long story I will start at the 1st pump and where I still have a non working pump that no doctor will remove. The doctor will test it by forcing fluid through the catheter and watch it on a monitor and that was the only time I felt better and they tell me nothing is wrong. I couldn’t believe my ears. A better or more test are needed, not just that one test. The Doctor needs to listen to the patient. It didn’t fix anything I think the doctor may not get paid to replace the catheter. Think twice before you have a baclofen of pain pump implanted in your body. . Thank you for taking the time to read this part of my life so far. if my wounds get better i will finish this faster until then its on a snail task

  6. #156
    Hello! I would like to start with me being a happy man, but that’s further from the truth. I was married for about 12 years when a man we know came in my shop own Oct 3 1997 around 5pm J.R. Lock & Key a store me and my father Bobby Ramsey ran. I been a professional locksmith since 1986, anyway the man was showing us a gun he had purchased earlier from an unknown person. It went off and the bullet struck me in back entering my spinal cord at t-9.

    I looked my father in the eyes and said to him I been shot. It felt like a belt tightening around my waist really tight. I though at first IM goanna die. It didn’t sink in with my family and friends at first then the gun went off again striking the showcase opposite of me. My ears were ringing from the bangs! Then my dad hollered out really loud what the hell is going on? I slowly started falling when my sister n law Missy came to check on me, she was sitting at the desk when it happened. Im holding the counter as I slowly fall to the floor, and then walked in my wife and three kids. The pain started from my waist and worked its way down my legs David Banks was calling 911 around that time.

    I remember Nick the man that shot me was still talking about football like it was business as useable. The ambulance came and I remember thinking to myself please don’t let me be paralyzed. IM at the hospital now laying on the table in pain and crying, im not the type of person that likes to cry. I kept asking the doctors please give me something for pain. It seemed like hours before I could even communicate with anyone then the doctor gave me the bad news your paralyzed. Long story short my wife left about a year after the accident and took the kids with her. To this day I don’t know why and really don't want to ask her. I was forced to file for divorce, it was the only way legal service would help me, so I could see my kids. They treated me so disrespectful; at one time they had me crying. I ended up loosing my left hip joint because it became infected and had to me cut out. It was just a week later when my right hip joint forced it way through the skin on the right side. I casually picked up the phone and called 911. I have been in and out of the hospital since the accident. About all I can do is lay and type. The pain and spasms stop me from being more productive. I’ve seen and tried different types of procedures since the accident. I will continue to update my project from time to time. ". Most people I don’t think could feel or imagine on your worst day the pain and suffering I endured and sometimes still do to this day. I couldn’t get a doctor to subscribe me something for pain. I and my family and friends had to find me medicine back then and I find it very hard to forgive them doctors for denying me this medicine. You know who you are and what was you thinking??
    I had a baclofen pump implanted in my body to help the spasms. It failed me also. This is a long story I will start at the 1st pump and where I still have a non working pump that no doctor will remove. The doctor will test it by forcing fluid through the catheter and watch it on a monitor and that was the only time I felt better in a long time and they tell me nothing is wrong. I couldn’t believe my ears. A better or more test are needed, not just that one test. The Doctor needs to listen to the patient. It didn’t fix anything I think the doctor may not get paid to replace the catheter? Think twice before you have a baclofen of pain pump implanted in your body. . Thank you for taking the time to read this part of my life so far. if my wounds get better I will finish this faster until then its on a snail task.





    Sincerely,

    Jeffrey Ramsey

    2730 Hargrove Road East
    Tuscaloosa, AL. 35405

    Last edited by SCI-Nurse; 05-11-2009 at 07:05 PM. Reason: Removed personal plea for funds.

  7. #157
    Hey, LeeDogg,

    The neurosurgeon and his NP at MUSC in Charleston are who we use for my son's pump care and refills. I think they're both great folks, and certainly know what they're doing. The neurosurgeon even made a house call !!! after my son's flap surgery when the dose needed to be ramped up to cover the post-surgical spasms (shoulda thought of that beforehand)!!
    _____________

  8. #158

    Placement of baclofen pump

    Does anybody know----does the pump always necessarily have to be placed in the abdomen? Or can it be placed elsewhere, like the lower back/butt cheek?

  9. #159
    No, it is always placed in the abdomen. Putting it in your back or butt would put it under excessive pressure resulting in erosion of the skin over the device.

    (KLD)

  10. #160
    Just the thought of having that hard hockey puck placed in one of my butt cheeks, even with their ample padding, causes me to ~shudder~.

    If I may ask, etseq, why the interest in placing it somewhere other than the abdomen?
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar


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