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Thread: Baclofen pump FAQ

  1. #121
    Senior Member McDuff's Avatar
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    Leedogg, wow that is weird. Any new news on whether it's pumping?

    I just got back from my neurosurgeon appt. He is going to replace both the pump and the catheter, front to back. He said he has to open the pump pouch anyway to get at the catheter, so might as well do the pump too, 'specially since I am 5yrs in on this pump. Save me another surgery in 1-2 yrs.

    Bad news, he's so busy, it won't be until june 3rd.
    "a T10, who'd Rather be ridin'; than rollin'"

  2. #122
    Mcduff, on friday when I had another x-ray done, the dye was able to get up to where it enters in my spine. But it still wasn't in my spine or brain.

    SCI-Nurse or anybody that may know, does it normally take 48-72 hours for the medicine to get to my spine from my pump? At a dosage rate at 290 mmg a day?

  3. #123
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    It shouldn;t take that long. When I first got the pump, it started taking effect by the next day. So less than 24 at least.

    I had the concentration changed, when it was refilled a while back, and they had to do some calculations to determine when the new, more concentrated, med was taking effect, and I am not positive, but I think it was 5 hours. Mine is only about 180 a day.
    T7-8 since Feb 2005

  4. #124
    Senior Member rdf's Avatar
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    Quote Originally Posted by Leedogg View Post
    Mcduff, on friday when I had another x-ray done, the dye was able to get up to where it enters in my spine. But it still wasn't in my spine or brain.

    SCI-Nurse or anybody that may know, does it normally take 48-72 hours for the medicine to get to my spine from my pump? At a dosage rate at 290 mmg a day?
    Lioresal's website (brand name for baclofen) claims it takes 6-8 hours for the drug to reach your spinal cord. They also say it can take 24-48 hours for maximum effect. I'm surprised you have no withdrawal symptoms. Aren't you suffering spasms and spasticity?
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  5. #125
    Senior Member rdf's Avatar
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    Quote Originally Posted by McDuff View Post
    Leedogg, wow that is weird. Any new news on whether it's pumping?

    I just got back from my neurosurgeon appt. He is going to replace both the pump and the catheter, front to back. He said he has to open the pump pouch anyway to get at the catheter, so might as well do the pump too, 'specially since I am 5yrs in on this pump. Save me another surgery in 1-2 yrs.

    Bad news, he's so busy, it won't be until june 3rd.
    Glad they're going to replace everything McD. I'm sure that'll do the trick. I just had my surgery yesterday, they had to open the pump pouch, too, and my back to hook up the one piece catheter. But so far, so good. I tried to get them to replace the pump, too, but they said no...it's only 2.5 years old. Oh well, quit your whining, I had to tell myself.

    Sorry you have to wait McD, that really blows. Maybe you can tell him to schedule you in if there's a cancellation, or make clear to him if there is a surgery that isn't urgent or an emergency, and doesn't involve a child or a senior scheduled before you, to try to fit you in. It's worth a shot. I know how much hell you're going through buddy.

    I wish you the best in finding relief, I wish everyone with troubles that a solution will soon be found.
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  6. #126
    ok so i went to my rehab doctor and we have decided that the location of the pump catheter is not a good one!! so that means he's going to call the surgeon and tell him it needs to be moved down. it's causing too many problems which isn't allowing us to turn the pump up to where i need it. so spasms are really bad right now. now i'm just waiting to see when the second surgery is going to be. we will see.

  7. #127
    Here is a picture of the scanner used to program the pump:


    Here is the syringe, tube and needle that they used to fill the pump. It goes in the center pork on the previous pictures I showed:


    I hope these pictures that I've been posting help someone who is curious. I was going to have the doctor take a picture of the needle in my side, but I forgot about it until it was too late and she wouldn't put it back in. LOL.
    C-5/6, 7-9-2000
    Scottsdale, AZ

    Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

  8. #128
    Senior Member McDuff's Avatar
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    Rdf - yeah I am on the "if cancellation" list, doubt they'd bump anybody for me though. Glad your surgery went well, too bad you couldn't get a new pump, but yeah 2.5 may be a little early.
    "a T10, who'd Rather be ridin'; than rollin'"

  9. #129
    Senior Member rdf's Avatar
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    Quote Originally Posted by bailey5774 View Post
    ok so i went to my rehab doctor and we have decided that the location of the pump catheter is not a good one!! so that means he's going to call the surgeon and tell him it needs to be moved down. it's causing too many problems which isn't allowing us to turn the pump up to where i need it. so spasms are really bad right now. now i'm just waiting to see when the second surgery is going to be. we will see.
    Good luck bailey, I hope they can get the catheter placed in the right spot. Hope you have surgery soon.

    McD, yeah, it's a little early, but I'm a greedy bastard and want it all done now so I can stay the *uck away from hospitals for many, many years. Hopefully they'll have a pump that lasts 10 or 15 years in the future - but I doubt that'll happen.

    Good luck, and thanks for helping out our buddy in Cali. That's a good thing you and a lot of other people from CC have done.
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  10. #130
    Quote Originally Posted by rdf View Post
    Lioresal's website (brand name for baclofen) claims it takes 6-8 hours for the drug to reach your spinal cord. They also say it can take 24-48 hours for maximum effect. I'm surprised you have no withdrawal symptoms. Aren't you suffering spasms and spasticity?
    yes the spasticity is bad, I've recently started taking bacolefen (20 mg by mouth two times a day) And thats helped some. I'm going to tell the doc on monday, that the baccolefen helps loose me up some. And that I just want to get the cathedar replaced. (and/or pump) Because for it to take 72 hours for lioresal to get into my body. (if it gets in there) Is too long I think. And I'm still not feeling like I did when I first had the pump implanted.

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