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  1. Motorcycle training - partial paraparesis Rt. leg (below knee) - doable ??

    Hi All -

    My 1st post in years - been off the grid since 2010 so hola. I live in Dallas, Tx.

    I have no muscle activity (drop foot - dead muscles below knee) on my Right leg. Walk with a carbon...
  2. Thread: Nucynta

    by Window
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    This past month I took more Nucynta than usual...

    This past month I took more Nucynta than usual (breakthru episodes only); and sure enough - my latest blood tests show slightly elevated levels of AST/ALT liver damage markers:
    AST: 37
    ALT: 35
    ...
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    I'm a very incomplete L-4 (foot drop Rt foot &...

    I'm a very incomplete L-4 (foot drop Rt foot & weak right leg - walk with AFO on Rt. ankle). My friends have been into CF several years now, and I love the idea of adapting it to my injury. I'm an...
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    Forteo use and CNP connection ?

    Last month I started on Forteo for oseoporosis after 6 years on Actonel. I'm getting longer breakthru days with new pain sites in my foot/leg - gunshot wound at L4 with a very incomplete SCI &...
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    Thanks all for the info. Victoria I had the flu a...

    Thanks all for the info. Victoria I had the flu a few years back & it was off the charts bad...like you it took 2 weeks & a month recoup...CP lasted about a week...indescribable.

    The flu &...
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    CP triggered by fever - anyone else ?

    In my 35+ year battle with bad Central Neuropathic Pain, amongst the many known triggers that can set it off - #1 is:

    FEVER of any grade. I rarely get the flu, etc. but when I do it is an absolute...
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    having a battle tonight...my CP seeks out the...

    having a battle tonight...my CP seeks out the calm limb/leg to move into - right now in my good left leg backside thigh..the zaps are probably 7-8's...taken another 30 mg. Tizanidine to try to get a...
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    out of things to say tonight...just here with the...

    out of things to say tonight...just here with the nemesis..
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    yeah for $4K i better like it...= ) of course...

    yeah for $4K i better like it...= )

    of course Mattress Firm has a 4yr. no interest plan i took advantage of. got a king system (frame/support/mattress). it is very firm at first then slightly...
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    i just got mine...wish i had bought one the day...

    i just got mine...wish i had bought one the day they hit the market...a big big help in my life, hoping it will help my CP episodes to firmly cushion my cauda equina.

    my sis gave me a long body...
  11. Dej, I think I have cauda equina type CNP, it...

    Dej,

    I think I have cauda equina type CNP, it was mentioned early in my injury years as such...and yes I think it has ( well I know it has) gotten worse over the years. But the changes are...
  12. You guys hang in there...be strong and know we care:

    Still in this episode day-4 now...unusual unless I am sick (UTI, flu,etc). I had a urine sample come back clear last week, so I may have picked it up ove rthe weekend..am going to have wife drive me...
  13. Dej, you hit the nail on the head...it is such a...

    Dej, you hit the nail on the head...it is such a mixed bag of pain compunds/profiles..I have severe CP w/ very incomplete L4 GSW...episodic for me & currently in the middle of one..it is taking many...
  14. Poll: Well said Dale, I have very bad CP from an...

    Well said Dale, I have very bad CP from an incomplete L4 bullet wound..the paralysis I can live with..the pain, it has changed my life/personality/income/creative juices/life path..as I get older it...
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    hang in there friend, i'm in Houston too and in...

    hang in there friend, i'm in Houston too and in the middle of a bad one...maybe our weather today ?..although anything can trigger the CP, as u know I'm sure.
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    We share the same level of sexual function,...

    We share the same level of sexual function, although I can finish but it takes a long time..as you said, woman loves it. But, erections were sometimes problematic...but
    I highly recommmend...
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    Suzanne & Chad - Welcome to the group, am very...

    Suzanne & Chad - Welcome to the group, am very sorry for the loss..stay stong & focused on your recovery. Sending much healing Chi your way. You will get some great support here, like I did - and I'm...
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    I will echo the sincere care and understanding...

    I will echo the sincere care and understanding for the loss your husband and your family has sustained..we know it's a long hard road back, just know u have a group of friends here that care & want...
  19. Welcome to the group, sending warm wishes and...

    Welcome to the group, sending warm wishes and much healing Chi your way. Stay strong, never give up..Keep us posted on your progress - you are now part of a special group of individuals dealing with...
  20. Replies
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    yes sudden noises..any neural input can trigger...

    yes sudden noises..any neural input can trigger my pain bursts - within an episode.
    it was hard with kids/house noises etc.

    i'm in tthe middle of a very bad episode rightnow...new pain locations...
  21. Thanks all for writing back -

    Much appreciated, and yes to be with ones who "get it" is where we all want to be.

    Hip - Yes I have a great Houston pain doc I see regularly, and other docs but he handles the pain (yet the pain...
  22. 1st post - central pain veteran - breakthru episode

    Hi - I have a 30+ yr. very incomplete SCI L-4 gunshot injury. Have lurked on this forum a while, my current CP episode drove me to register and vent a little.

    I'm in the middle of a 2-day...
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