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Type: Posts; User: JohnnyUF

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  1. I have only been on opiates for 2 months. Before...

    I have only been on opiates for 2 months. Before that, I was on Suboxone (a pretty high dose - 12 mg per day) for 2 years. I know Suboxone is only a partial opioid agonist. Is it possible to develop...
  2. I'm sorry if I sounded like I presumed you guys...

    I'm sorry if I sounded like I presumed you guys didn't know what myelomalacia was - that was wrong and rude of me to do. I apologize. It's just that most people on most forums don't, so I went ahead...
  3. @shashms, The only reason I recently changed is...

    @shashms, The only reason I recently changed is because I moved to a different city. I've stuck with this same one for awhile now. I probably got flagged because of my age. I'm only 31, and them...
  4. I am already seeing, and have seen 6 in the past,...

    I am already seeing, and have seen 6 in the past, a board certified Pain Management Dr. They've done me more harm than good with the Rhizotomy procedure they did (which they later reprimanded the...
  5. Jim, I've seen 6 pain specialists over the last...

    Jim, I've seen 6 pain specialists over the last few years and I'm currently seeing one to come up with a plan. We are looking into possibly using a peripheral nerve stimulator. The problem with me is...
  6. When I have no other course of action to follow...

    When I have no other course of action to follow through on, what other options do I have? I've tried pretty much everything (other than a pain pump) and only meds give me any little moment of...
  7. @Smashms, my herniated discs are unoperable. I've...

    @Smashms, my herniated discs are unoperable. I've been to 3 neurosurgeons and 2 orthopaedic surgeons for their opinions, and all say that surgery would do nothing to help my pain or back. Also, I am...
  8. Jim and air ohs, with respect, you aren't me and...

    Jim and air ohs, with respect, you aren't me and you don't know the vast amount of pain I'm in. EVEN with all these meds, like I said, I mostly lay in bed, my entire body burning. Unable to work,...
  9. Pharmacy refusing to fill pain pills - PLEASE HELP!

    I'm on 30 mg oxycodone 3x per day, and MS Contin 15 mg 2x per day (among many, many other meds - which are not opiates). It has been a nightmare the last week calling Walgreens and my Dr back and...
  10. In order to hit all those dermatomes, you would...

    In order to hit all those dermatomes, you would need 2 leads put in. One at the thoracic/cervical level, and one at the lumbar/thoracic level. When I did my trial with the St Jude, they placed one...
  11. Done

    Done
  12. What Spinal Cord Stimulator brand did you go with?

    I trialed a St. Jude Spinal Cord Stimulator and it was not great. My dr said I could get another SCS, but not another trial. So, my permanent implant brand will be 100% based on my research. This...
  13. SORRY! Was away for awhile...

    I am sorry I never saw this. 6 months later here I am, after completing another semester of school and still trying to find a reason for my pain. A neurologist I saw in Stark, FL, all the way out in...
  14. If I can finally get an appointment with a new PM...

    If I can finally get an appointment with a new PM dr I will ask for that, thanks DaDutchman. I really am terrified of addiction though. I was really really bad. The addiction led me down a path to...
  15. Thank you for understanding, as I know everyone...

    Thank you for understanding, as I know everyone here is going through the same thing. Question though - I am on 50 mg amitriptyline, 3600 mg neurontin, and 1000 mg parafon forte (muscle relaxer) but...
  16. I am starting to doubt a diagnosis all-together....

    I am starting to doubt a diagnosis all-together. It's like every Dr I go to doubts my pain because my strength is normal and because nothing they do to me in the office can cause more pain (except me...
  17. Oh my you are right, this is a nightmare! What...

    Oh my you are right, this is a nightmare! What bugs me isn't the pain. Well... it is, but it's the fact that it gets worse and worse when I sit, have sex, or do anything physical. It doesn't just get...
  18. I actually saw a neurosurgeon at Mayo Clinic...

    I actually saw a neurosurgeon at Mayo Clinic (Jacksonville location, not as good) and he didn't think the MRI findings of my spine correlated with my back pain, and sent me off.

    I requested an...
  19. The amitriptyline was increased to 50 mg. Helps a...

    The amitriptyline was increased to 50 mg. Helps a little, but not much. I do not experience spasticity/tightness of my extremities. I take ibuprofen, it doesnt help. The HUGE thing is this.... the...
  20. @triumph, I cut out everything. I havent lifted...

    @triumph, I cut out everything. I havent lifted weights in a year. I can't have sex anymore. I do not swim. I can not take physical therapy. I can barely exist out of bed. I do not really drive. When...
  21. Scared, in pain, no diagnosis, and frustrated with doctors.

    Hi and thanks for having me on this forum, good to be around people (virtually) that are experiencing the same things. I am in extreme pain almost all over and no doctor (I've seen 2 neurosurgeons, 2...
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