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  1. Replies
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    There are turning mattresses, both LAL and foam...

    There are turning mattresses, both LAL and foam over air chamber. None are cheap though. Not turning at all at night can catch up with you as you age, both skin and lung-wise.

    (KLD)
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    Confused. Are you going to be using an indwelling...

    Confused. Are you going to be using an indwelling urethral catheter or an external condom catheter?

    If the former, you can get a sterile insertion tray with catheter, but it will only include a...
  3. Not an overlay. This is a full mattress. (KLD)

    Not an overlay. This is a full mattress.

    (KLD)
  4. Air travel is not covered under the ADA. It is...

    Air travel is not covered under the ADA. It is separate legislation, cited above, usually called the Air Access Act. And yes, again, see the regulations above, assistance in transferred is required...
  5. I would add to this the following for...

    I would add to this the following for disembarkation:
    At least 30 minutes before landing, alert the cabin attendant that you will need the following upon landing:

    Your wheelchair brought up from...
  6. Actually, that varies by the airport. For...

    Actually, that varies by the airport. For example, at LAX these people work for the airport, which contracts their services to the airline, while in Denver they work for the airline. The airline is...
  7. You can get information here about filing a...

    You can get information here about filing a formal complaint with the DOT. https://www.transportation.gov/airconsumer/file-consumer-complaint

    We have had frequent complaints about AA here in the...
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    Don't attempt to take your own medications to any...

    Don't attempt to take your own medications to any inpatient hospital stay. You will be required to relinquish these for storage during your hospitalization; no meds including herbs are generally...
  9. You could have a leak if the catheter pulled out...

    You could have a leak if the catheter pulled out of place, or if the catheter tore the dura where the catheter goes into the intrathecal space. A blood patch is usually the treatment for a leak like...
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    Spasticity is excessively high muscle tone. If...

    Spasticity is excessively high muscle tone. If she has spasticity, it would be difficult to move her arms at the joints. Spasms (related, but not the same) are involuntary muscle movements....
  11. None of those substances are appropriately used...

    None of those substances are appropriately used to treat a UTI. They are designed to help prevent UTIs, and may vary significantly in how effective they are at that from person to person.

    Are you...
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    Just to be clear, tizanadine and baclofen are...

    Just to be clear, tizanadine and baclofen are anti-spasticity medications, not neuropathic pain meds. Gabapentin and pregabalin are anti-seizure medications that may help with neuropathic pain. These...
  13. Not cure. Remediation at best. If it ever gets to...

    Not cure. Remediation at best. If it ever gets to the market, it will likely not be covered by insurance and be horribly expensive. It also does not address the other effects of SCI, such as loss of...
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    Has she been tried on either Neurontin...

    Has she been tried on either Neurontin (gabapentin) or Lyrica (pregabalin) for her neuropathic pain? These work better for central neuropathic pain than the meds you mention. Acupuncture can help...
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    Sticky: Bump. (KLD)

    Bump.

    (KLD)
  16. Replies
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    Not to be snarky, but a cervical spinal cord...

    Not to be snarky, but a cervical spinal cord injury is often a "cure" for essential hypertension. Most people with high level SCI have problems with a blood pressure that is too low (hypotension),...
  17. Did you look at the Roho product? (KLD)

    Did you look at the Roho product?

    (KLD)
  18. Replies
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    Talk to your surgeon about trying to keep as much...

    Talk to your surgeon about trying to keep as much thigh as possible; even a knee disarticulation. Your thighs take a lot of weight off your ischium when seated, so a short above knee (AKA) amputation...
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    A reclining back manual wheelchair with chest...

    A reclining back manual wheelchair with chest strap could be used, as long as he has someone with him who could do transfers, dependent weight shifts, and has enough room in their car to break the...
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    Also, it is dangerous to suddenly stop baclofen....

    Also, it is dangerous to suddenly stop baclofen. This can cause hallucinations and nightmares. The nurse practitioner should know this. Shame on her for stopping it completely without consulting with...
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    Please include, either in your profile, or your...

    Please include, either in your profile, or your posting where this is located, and what arrangements can be made for shipping.

    (KLD)
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    The CBC should give you the sed rate. Osteo,...

    The CBC should give you the sed rate.

    Osteo, prostatitis, uti, are the most common causes of sepsis, especially when you have had a spinal cord injury. Any respiratory problems? I am assuming...
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    You need to try to strengthen the muscles around...

    You need to try to strengthen the muscles around the scapula. Sitting in a good posture and using good positioning can also make it a little more comfortable.
    Also, try to use the muscles in your...
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    What is your CRP level? Sed rate? Could you have...

    What is your CRP level? Sed rate? Could you have osteomyelitis someplace? Prostatitis?

    (KLD)
  25. This is pretty much the information that we have...

    This is pretty much the information that we have been sharing for many years. The supposition that catheter placement equals similar infection rates is not accurate.

    ckf
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