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    I'm a walking quad and void on my own, but my...

    I'm a walking quad and void on my own, but my bladder is very spastic, and walking and running trigger it. The botox helps it from triggering as much. But my bowl and bladder prevent me from running...
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    Anything new bladder and bowel?

    11 year yesterday since my spinal cord stroke. Just checking in to see if there is anything new for b&b?. I?m currently doing Botox every 6 months, which helps, but still hopeing for something better!
  3. This sounds promising. I could use a little hope....

    This sounds promising. I could use a little hope. Other than the links posted anything else I can read on the results so far?
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    I wonder if this could help me. I'm C2-T2 spinal...

    I wonder if this could help me. I'm C2-T2 spinal cord infarction, incomplete, walking. If I could get bladder and bowel sensation improved that would be huge for me. I'm 10 years out though. I sent...
  5. Does anyone know if 4-ap could potentially help...

    Does anyone know if 4-ap could potentially help someone who had a spinal cord stroke; C2-t2 infarction? I'm full time walking. My quality of life issues are bladder and bowel, which I'm wondering if...
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    I have these same issues. Your recovery sounds...

    I have these same issues. Your recovery sounds pretty close to mine. I don't actually see any differences. I was diagnosed with mitochondrial disease 8 years after my stroke and only after my son was...
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    No, I've read about 1 million posts on this forum...

    No, I've read about 1 million posts on this forum in the last 8 years and it was just something I read along the way. I don't hear much about cure and non traumatic sci, so it stood out to me.
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    Cures and Non Traumatic SCI

    I know this is a broad question and probably does not have one answer, but will treatments/cure have to be different for people who suffered a spinal cord stroke or a non traumatic SCI? I read an...
  9. Grammy I hope you are right. I look on this site...

    Grammy I hope you are right. I look on this site everyday hoping today is the day.
  10. Spinal Cord ?Stroke? due to Mitochondrial DNA mutation

    Hi All,

    I was diagnosed with spinal cord stroke in 2007. No known cause. Since then, I have had a baby boy. He was presenting with acidosis and his been diagnosed with a mutation of his tRNA Ser...
  11. Thread: Bladder Botox

    by luckydog
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    2,624

    I found information about a new drug called...

    I found information about a new drug called Myrbetriq. That may be what CWO was refering to.
  12. Thread: Bladder Botox

    by luckydog
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    I’m not sure what my capacity is and not sure...

    I’m not sure what my capacity is and not sure what PVR is. Since I didn’t have retention before the botox, my Urologist did/does not have me do urodynamics yearly. I did have it 1 year after my...
  13. Thread: Bladder Botox

    by luckydog
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    Can someone tell me how many days after treatment...

    Can someone tell me how many days after treatment until bladder botox is supposed to be at its full effect? I had it 7 days ago. I am still urinating on my own, but I also have had some episodes of...
  14. Thread: Bladder Botox

    by luckydog
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    2,624

    Well I had 100(cc?) of botox in 20 injections...

    Well I had 100(cc?) of botox in 20 injections under anesthesia yesterday. So far I am still urinating on my own. I know there are some other incomplete members with similar issues to mine on the...
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    I have one. It does help, but not enough to...

    I have one. It does help, but not enough to increase my quality of life. I plan to have it removed as it causes some pain where the battery is.
  16. Thread: Spinal stroke

    by luckydog
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    I 2nd Kim B's response above. I was told it will...

    I 2nd Kim B's response above. I was told it will should not happen again.

    I am glad your daughter is doing well!
  17. Thread: Bladder Botox

    by luckydog
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    Couple follow up questions for everyone… 1. ...

    Couple follow up questions for everyone…
    1. I don’t get UTIs now. I assume the Botox will mean I will have UTIs because I will be cathing and when I cathed when I was first injured I had a...
  18. Thread: Bladder Botox

    by luckydog
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    Thank you for your response. Did all of your...

    Thank you for your response. Did all of your urgency totally go away? No more accidents? Just the burden of the cathing process?

    I am having a really hard time deciding. I hated cathing when I...
  19. Thread: Bladder Botox

    by luckydog
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    2,624

    Bladder Botox

    Hi, I have read a lot of posts on bladder botox, but haven’t found exactly what I am looking for…
    My injury is C2-T2 spinal cord infarction from spinal cord stroke. ASIA D. Pretty close to AB...
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    What type of doctor do I need to see?

    I am a walking quad. I was running about 8 miles a day, but my gate is not that great and my leg drags a little. Recently I have a very achy muscle in my butt, due to over compensation of that...
  21. Does anyone know if this type of therapy is...

    Does anyone know if this type of therapy is thought to help non-traumatic spinal cord injuries such as spinal cord stoke? I am very confused on how current trials might help some like myself, so if...
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    I’ve been on macrobid for 3 years. Works for...

    I’ve been on macrobid for 3 years. Works for me. The other meds gave me bowl issues. Hope you find a solution.
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    Project Walk is in Oregon. That is the only one I...

    Project Walk is in Oregon. That is the only one I know.
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    Hi Cajun: I am a C2-T2 injury. 4 years post. I...

    Hi Cajun:
    I am a C2-T2 injury. 4 years post. I run over 5 miles a day. Hike 15+. I have to be careful though, because if I push it, my legs will start giving out on me and I will fall. I was a...
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    I get the finger for parking in handicap parking...

    I get the finger for parking in handicap parking all the time. Honestly, I can walk fine. I just pee my pants if I walk more than 100 feet. At work I always park in handicap parking… I don’t want...
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