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  1. Still have 8 new in package sip puff filters. If...

    Still have 8 new in package sip puff filters. If anyone needs them pls contact me.
  2. Bowel tools/suppository inserter (unused- lol!) and sip/puff filters for postage

    Hi,

    My son is gone and I have not been on here in some time. I had been locked out for quite a while.

    Anyway, I have a few things of his I hope someone can use or may want:

    I had purchased...
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    I am not here much, probably not enough to miss,...

    I am not here much, probably not enough to miss, but I will soon have reason to stop coming. I lost my son this week to sepsis. I may offer some of his things in the forum but then this place that I...
  4. Hi, I have a box of 100 magic bullets purchased...

    Hi, I have a box of 100 magic bullets purchased last month that we will no longer need as my son has passed this week. They are still in shrink wrap. PM me your mailing address. I ask in return...
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    Son got Prialt pump last September had it removed...

    Son got Prialt pump last September had it removed in January. It was infected, he was sick and in and out of the hospital for months. They baby stepped up the Prialt dose so he never was able to tell...
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    Looking for a decent table that my son could sit...

    Looking for a decent table that my son could sit at in his wheelchair that wasn't a POS, I bought him an IKEA stand up desk! It's great for him.
  7. Hi Chaz, Reading your post I cannot help but...

    Hi Chaz,

    Reading your post I cannot help but comment.

    I have no information either, just more of what Dlevy wrote, I wish you the easiest possible trip, whatever your destination.
  8. Sounds like good advice all around. I got hopeful...

    Sounds like good advice all around. I got hopeful when I found the seat elevator controller in the accessory box that came with his chair and it got me thinking.

    Thanks for offering voices of...
  9. Adding after market seat elevation to Permobil C300?

    Hi,

    My sons Permobil C300 does not have seat elevation, something he really wishes Medicare or I would pay for, but I don't hold out hope for either. I am finding seat elevation kits for...
  10. Thanks Bonnette, I'm sorry you went through that....

    Thanks Bonnette, I'm sorry you went through that.

    He was on Primaxin, a fluoroquinolone, which is sited in that report.
  11. Psychosis following antibiotic resistant infection

    Son went to hospital with ESBL infection, came home 10 days ago with a 4x day antibiotic IV via picc line. After 3 days he became delusional. Started running a fever, and went to the ER.

    Mental...
  12. Thanks Fuentes, we would have to put it on an...

    Thanks Fuentes, we would have to put it on an elevating hospital bed frame to accommodate for transfers, and caregiving. I don't see that the SN adjustable frame elevates.
  13. Waterproof cover/bed bath on a Sleep Number bed?

    Hi,

    After going through 3 low air loss mattresses in less than 3 years, we are thinking about a Sleep Number bed. My son gets bed baths, and will for at least another year or so. His Drive...
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    I bought the ikea Starska sit/stand desk for my...

    I bought the ikea Starska sit/stand desk for my son. It's pretty easy to lower and raise, but if you set it at the right height I don't know why you would have to adjust it much. They make a wider...
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    After just 3 months on Prialt my son is now...

    After just 3 months on Prialt my son is now scheduled to have the pump removed. He developed an infection at the incision site which wouldn't heal. The medication never provided any relief. We are so...
  16. Thread: expectation

    by Mommycares
    Replies
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    22,828

    A written job description does help, we started...

    A written job description does help, we started to use one after reading this a few months ago. I send a written job offer describing a typical day and a not so typical day, during times of illness....
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    I'm the Mom in our situation and I've been...

    I'm the Mom in our situation and I've been telling my son to pretend I'm dead for the past few months because someday, hopefully not too soon, I will be! When that time comes he won't have me on...
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    Remote control for a power chair?

    I want something for the same reason this woman did, to get the chair if it's too far away and something like this would be perfect but it was a one off:

    ...
  19. Thanks, yes, that is the type of reclining manual...

    Thanks, yes, that is the type of reclining manual chair I could find too. I'm looking at Mike Box site. Pretty cool stuff!
  20. Free for shipping, Rochester Natural Condom Catheters w/strap

    Hi

    Anyone need these?

    We have a box of 35 of these. Size large, 36mm. Non-adhesive. All silicone. It's a box of 30, but there are 35, with strap.

    Can mail cheapest way, you PayPal the...
  21. Looking for reclining manual wheelchair that isn't a POS

    Hi!

    30 y/o c6 son has a Permobil C300 which is fine, but limits his mobility somewhat:

    -Cannot get it into my Scion XB and I cannot buy a WC van, no way, no how.

    -We want a manual chair so...
  22. Bladder flushing with cider vinegar? Really?

    Son messaged me he tried doing this while his vetricyn re-order comes in, and that it hurts like hell, no surprise there. I cannot find any reference to flushing with cider vinegar.

    Anyone doing...
  23. Drive should cover the bed according to this!...

    Drive should cover the bed according to this! Thanks!
  24. Thanks for the info and advice. I believe it was...

    Thanks for the info and advice. I believe it was a Medicare rental that transferred to ownership. The dme assembled the frame. I will try contacting Drive and see if I can get any help there. The dme...
  25. New bed, and how to get insurance to pay for it?

    Hi,

    My apologies if this is the wrong forum!

    My son (6'1" 180#, C6) has the worst POS bed. It's a Drive bed. They replaced the leaky low air loss mattress twice and the new one now only works...
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