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Type: Posts; User: AliceM

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    This weekend Stemcell Inc. received a favorable...

    This weekend Stemcell Inc. received a favorable broker statement which generated the increased interest. Also the support of the Governor of California for stem cell research helped the stock rise....
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    Hi Alan, I don't know if this would work, but...

    Hi Alan,

    I don't know if this would work, but last week my son, T3 SCI began a mixture of morphine into his bacolfen pump. It is a slow process, but the people at the Red Butte Pain Clinic who...
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    Rod Removal Doctors

    Dear Carecure members,

    Please send me the names and contact numbers for the doctors who have removed your harrington rods. Any feedback on the experience is greatly appreciated. My son's pain is...
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    Hello all, Thank you for your kind words. I...

    Hello all,

    Thank you for your kind words. I have been trying to get Morphine put into my son's pump for a long time. We finally have found a doctor who is willing to try this. Now we have to...
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    Alan, Mike, all, I read the notes you post...

    Alan, Mike, all,

    I read the notes you post about your never-ending, worsening pain. My heart aches. My son is in the same place. Everyday it gets worse and there is no explanation. Doctors...
  6. Have you heard of any recent successes mixing the...

    Have you heard of any recent successes mixing the pain medication with the bacylphen. We asked our doctors here in SLC and they were very hestiant to pursue this possibility? It seems to me if you...
  7. Thread: Lost my son

    by AliceM
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    Dear Linda, Words do not express what I feel...

    Dear Linda,

    Words do not express what I feel for you. I wish you and your family the best and hope that there is joy in your future.

    Warmest Wishes, Alice
  8. Thread: please help

    by AliceM
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    Hi Andrea, I am sorry that your spinal test...

    Hi Andrea,

    I am sorry that your spinal test was disappointing. After the surgery it will take a couple of weeks to get the right dosage that minmizes the spasms and still provides you some tone. ...
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    Ask About the Success Ratio of the Pump Implant

    My son had three surgeries related to the pump. The catheter broke within two weeks neccessitating another surgery. At this time the doctor told us there was a one in four failure rate. The second...
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    In Search of the Lost Cord

    Happy New Years Caregivers,

    I hope this is a year of positive change and hope for all of us.

    I recently completed Luba Vikhanski's book called In Search of the Lost Cord. I would recommend...
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    TD, Are you aware of any pain medication that...

    TD, Are you aware of any pain medication that would bath the spinal cord, like bacolfen? It seems that pain treatment is so poor for SCI people that I wish I could find something better. I am sure...
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    Bacolfen Pump for Pain Relief Treatment

    I read the article that describes the Omeros Medical Systems' plan to use an intrathecal devise for the delivery of pain medication directly into the spinal cord fluid. Would it be possible to mix...
  13. Thread: Handcycling

    by AliceM
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    Training Wheels for a Mountain Bike

    My son can pedal a mountain bike; however, he can't stop himself or brake himself with his legs. My husband runs along side him... quite the positive sight. Jeff, do you think this company you...
  14. Thread: Introductions

    by AliceM
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    Introduction

    Hello Caregivers,

    This forum has helped me immensely. I am very appreciative that I can read about the feelings and life experiences of SCI individuals and their caregivers.

    My 26 year old...
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    Merinol ...any information?

    Hello Carecure Forum Members,

    I have heard from several people that Merinol (I may have spelling wrong)helps SCI patients deal with nausea and pain. I have found only one doctor aware of this...
  16. Thread: 4-AP

    by AliceM
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    Where is College Pharmcy?

    I do not have a Doctor who will perscribe 4-AP for my son. I found a pharmacy in Salt Lake City (Jolley Pharmacy) that will compound drugs if given the directions. I do not have a perscription for...
  17. Thread: 4-AP

    by AliceM
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    What Doctor

    Hello Wise,

    My son and I have asked several doctors in Salt Lake City about obtaining a perscription for 4-AP. Only one doctor had ever heard of the drug and he did not want to perscribe it. Any...
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    How do you Email?

    Hello Carecure members,

    Sometimes a message comes with a icon that you click on and send email; other times this icon is not there. How do you respond to members without this icon? I notice...
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    View Post

    Originally posted by Clipper:

    Hi Clipper,
    Your email message is filled with great insight. Finding employment associated with your pre-SCI passions is a wonderful idea. I will definitely try...
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    View Post

    Originally posted by Clipper:


    Hi Clipper,

    Thank you for your response! My 26 year old son was injured on Nov. 18, 1999. He has incomplete T3 and T11 injuries and suffers from spasms...
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    Depression....what can you do?

    It is devastating to see the one you love the most suffer constantly. My son's injury is almost two years old. He has always refused anti-depressants. I have tried to cheer him up which seems to...
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    Removal of Harrington Rods

    The pain specialist doctors cannot find the source of my son's constant pain. They say that the CAT Scan's and MRIs from the time of the accident do not show any problems that would cause his pain. ...
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    How do you encourage laughter?

    My son's injury is almost two years old....I don't see much joy or laughter in his life. What can I do to encourage my son to laugh? I am destroyed by his negative feelings towards life. I would...
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    Walker66's Reply

    Hi Walker66 (Pat),

    Thank you for the message you sent to me and for this for message. I admire your optimism and must tell you that your message reminded me how important it is not to give up...
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    Advise on Pain Treatment for SCI Patient

    My son (LW) was injured on Nov. 18, 1999. He has incomplete SC breaks at T3 and T11. At the time of the accident Harrington rods were placed parallel to his spine extending from L1 to T1. LW has...
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