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Type: Posts; User: marmalady

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  1. Replies
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    So the issue is copyright infringement and not...

    So the issue is copyright infringement and not patent. The pharmacy still won't fill the script if it says renacidin. Our pharmacy had the physician write the script as bladder instillation.
    ...
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    Oh, Obie, May the angels of light and love...

    Oh, Obie, May the angels of light and love surround you with your wings and fold you in their hearts.

    I am so, so sorry to hear of Bill's passing.

    Hugs in bunches to you and your family.
  3. Poll: Matt gets the hiccups.

    Matt gets the hiccups.
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    The compounding pharmacist and I went over the...

    The compounding pharmacist and I went over the formula he was using, and it turns out that he was lower on the magnesium, so is going to boost that to bring it to the levels on the UG bottle.
    ...
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    Renacidin users - what are you doing w/shortage?

    We're about at the end of our rope with this Renacidin shortage. We have a compounding pharmacy here in town, and Matt just finished his first month with the compounded formula. He had a cath...
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    Hey, all, We're stuck in the same Renacidin...

    Hey, all,

    We're stuck in the same Renacidin black hole again. Fortunately we were able to hoard some at the end of the summer, and so are only now running out.

    I've spoken to Guardian, too,...
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    we ordered tile on line, and even with the...

    we ordered tile on line, and even with the freight charges (and some ship free), it was cheaper than buying locally. We hired a tile guy to do the installation.
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    Does the wound care center you go to have after...

    Does the wound care center you go to have after hours calls?

    Is the redness spreading?
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    Roho has a heel cushion that worked pretty well...

    Roho has a heel cushion that worked pretty well for us -

    http://www.caremedicalsource.com/Shop/ROHO-Heel-Pad?CAWELAID=1138359881
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    We use a Radio Shack wireless intercom that just...

    We use a Radio Shack wireless intercom that just plugs in. It has both a call button and a voice activation, and you can set the volume wherever you want it. Ours are in Matt's room and in our...
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    You didn't mention gluten, just carbs. ;) Do you...

    You didn't mention gluten, just carbs. ;) Do you have a Whole Foods nearby? I think I've seen gluten free noodles there.
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    We use Dreamfields and really don't notice any...

    We use Dreamfields and really don't notice any difference; it does seem to cook faster, so be careful so you don't end up with mushy pasta.

    http://www.dreamfieldsfoods.com/
  13. I remember posts from the past suggesting that...

    I remember posts from the past suggesting that folks cut down to 1/2 of a MB and that seemed to work.
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    Matt has used Renacidin for years, and it's the...

    Matt has used Renacidin for years, and it's the only thing that works for keeping him bladder stone and grit free. If he's off it for even 10 days (when he takes antibiotics, he's off the Renacidin...
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    Hi, Wise, as a medical transcriptionist you...

    Hi, Wise, as a medical transcriptionist you wouldn't believe some of the words made into verbs by docs doing their dictation! And yes, I've heard 'vasa vagaled'. :)
  16. Thread: wound

    by marmalady
    Replies
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    1,877

    We've been battling about the same thing minus...

    We've been battling about the same thing minus the fungal infection with Matt. Used about a dozen different things, but here is what seems to be working.

    -Medihoney is a pretty good protectant...
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    Tx so much - I'll show this to him - I think this...

    Tx so much - I'll show this to him - I think this might work!
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    His fingers curl, and he's got zero 'strength' in...

    His fingers curl, and he's got zero 'strength' in them. Hubby has an I-touch, and Matt can't put enough pressure on the 'on' button to turn it on. Once it's on, he is able to use his fingers to do a...
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    Smart phones for C5 quads

    Hi, all - Did a search, but didn't come up with exactly what I was looking for.

    Matt has decided he'd like to investigate a smart phone; right now he has a land line, plus his recorder, and he'd...
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    The conference center used to be on the 2nd floor...

    The conference center used to be on the 2nd floor of the main building, sort of behind one of the wings. I'd suggest just going in the main entrance and asking at the desk. You can be pretty sure...
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    Unfortunately there is no sub for Renacidin. ...

    Unfortunately there is no sub for Renacidin.

    We got the news also that backorders 'may' start to be filled at the end of this month.

    In the meantime, Matt's urologist has recommended we...
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    Renacidin users - shortage?

    The company that supplies us with Matt's Renacidine has told us there is a nationwide 'shortage' due to some manufacturing snafu. They're not sure when they're going to be able to get it again.
    ...
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    Caregiver burnout is very real and it is exactly...

    Caregiver burnout is very real and it is exactly what you described. Talking about it here is, in my opinion, much more helpful than talking w/friends and family who don't/can't understand. I don't...
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    Sticky: A very Happy Thanksgiving to all my old...

    A very Happy Thanksgiving to all my old pipe-smoking friends, and to all the new 'faces' I see on board here!

    Linda, I hear the pain and can so relate to the feelings you have. Huggggss - just...
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    A gentle reminder that there are really no...

    A gentle reminder that there are really no 'shoulds'. Every person's capabilities are personal to themselves and their particular physical condition. Yes, there are guidelines to what level of...
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