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Type: Posts; User: zevobru

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  1. Replies
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    Sticky: Hope the pump works out for you Quad79. Just a...

    Hope the pump works out for you Quad79. Just a note that my son started out the same way. After about 6 months he became depressed was put on anti-depressents..starting a downward spiral in hsi...
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    My son is having the pump removed in about a...

    My son is having the pump removed in about a week. For him, it was a big mistake having it installed. Big issues is that you are at the mercy of the doctors to have dosages adjusted, and there have...
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    Just an update. My son has been off baclofen for...

    Just an update. My son has been off baclofen for almost 8 months now. He has regained enough strength, balance and coordination to start using a walker. His speech is improving. Best news is that...
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    Just a caution that you should review the...

    Just a caution that you should review the side-effects of balofen with your doctor. These side-effects are real. My son developed psych problems which his psychiatrist attributed to the drug and she...
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    Sticky: Before having a baclofen pump put in, I would...

    Before having a baclofen pump put in, I would suggest reviewing the potential side-effects of baclofen with the doctor. My son had many problems which his psychiatrist attributed to baclofen. Also...
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    My son claims he can not recall being advised of...

    My son claims he can not recall being advised of the side-effects of baclofen. In fact, his neurologist still claims my sons psych problems, blood pressure issues, weigh gain and other health...
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    My son developed psych problems when he went on...

    My son developed psych problems when he went on baclofen. The problems developed slowly over a number of years. But his psychiatrist said that his problems where definitely a side-effect from using...
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    Sticky: My son had problems with Baclofen. We still...

    My son had problems with Baclofen. We still don't know the long-term impact. Many physicial therapists we talked with say there are many others who have had problems with the drug.
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    My son has been off baclofen now for about 8...

    My son has been off baclofen now for about 8 months. Good news is that he is improving greatly...depression seems under control. In fact he is working on getting his ilfe back together...started...
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    Baclofen and the baclofen pump was a horrible...

    Baclofen and the baclofen pump was a horrible choice for my son. My son has Cerbral palsey. But he never let it hold him back. We went away to college, obtained a masters degree, and became a...
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    Just an update. My sons physical therapist asked...

    Just an update. My sons physical therapist asked my son if he ever hallucinated and what did he see while he was on baclofen. She said that all her patients on baclofen hallucinate at times from...
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    An update. My son has been off baclofen now for...

    An update. My son has been off baclofen now for about 4 months. The increase in his strength and improved control over his muscles had been dramatic. He is able to walk slowly but uses a walker to...
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    ...baclofen was very hard for my son to get off...

    ...baclofen was very hard for my son to get off of...he was on it for about 10 years...through a baclofen pump. Over that same time period he developed depression and aniety and was put on...
  14. Freebird. Are you still off baclofen?

    Freebird. Are you still off baclofen?
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    Good luck Wheellin. My son's been off the stuff...

    Good luck Wheellin. My son's been off the stuff since late January. He is stronger, not tired all the time, and has been up on a walker and taking a couple steps. First time he could do that in...
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    My son is off baclofen now for over 4 months. He...

    My son is off baclofen now for over 4 months. He is doing considerablly better tnow than when he was on he pump dosing at 350 per day. Big question we have is why he ever was on the high of a...
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    SoFla, interesting question. Come to think of...

    SoFla, interesting question. Come to think of it, many of my sons therapists suggested he either get off baclofen or have the dosage reduced. It was my sons pump manager (doctor) who kept upping...
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    We met with my son's physical therapist (of over...

    We met with my son's physical therapist (of over 20 years). She was livid and siad that she is heaing about more patients having problems that may be related to baclofen. And she asked a good...
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    My son's urologist indicated that his inability...

    My son's urologist indicated that his inability to control his bladder was related to baclofe. IWe believe this because as he was weaned off baclofen, he regained control of his bladder. Today he...
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    Scary thing is that some doctors are "poo-pooing"...

    Scary thing is that some doctors are "poo-pooing" the side-effects of baclofen. possiblely because the long-term imapct is not understood. My son almost died from what we believe was caused by...
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    Thanks rdf. Appreciate it. And good luck to you...

    Thanks rdf. Appreciate it. And good luck to you also.
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    Sticky: Today is the 1 year anniversity of my sons...

    Today is the 1 year anniversity of my sons "event"...we think the baclofen pump malfunctioned sending him into a coma which last for months. Today, he is still in rehab from the event. During the...
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    Today is the 1 year anniversity of my sons...

    Today is the 1 year anniversity of my sons "event"...we think the baclofen pump malfunctioned sending him into a coma which last for months. Today, he is still in rehab from the event. During the...
  24. Today is the 1 year anniversity of my sons...

    Today is the 1 year anniversity of my sons "event"...we think the baclofen pump malfunctioned sending him into a coma which last for months. Today, he is still in rehab from the event. During the...
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    My son was on a rather heavy dosage of baclofen...

    My son was on a rather heavy dosage of baclofen ...350 on his pump and has been off baclofen since mid-January. He does stretching for about an hour each day and this controls his spasticity. The...
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